Use the labels in the right column to find what you want. Or you can go thru them one by one, there are only 30,549 posts. Searching is done in the search box in upper left corner. I blog on anything to do with stroke. DO NOT DO ANYTHING SUGGESTED HERE AS I AM NOT MEDICALLY TRAINED, YOUR DOCTOR IS, LISTEN TO THEM. BUT I BET THEY DON'T KNOW HOW TO GET YOU 100% RECOVERED. I DON'T EITHER BUT HAVE PLENTY OF QUESTIONS FOR YOUR DOCTOR TO ANSWER.
Changing stroke rehab and research worldwide now.Time is Brain!trillions and trillions of neuronsthatDIEeach day because there areNOeffective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.
What this blog is for:
My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.
Showing posts with label stroke support group. Show all posts
Showing posts with label stroke support group. Show all posts
Which means these hospitals are complete
failures at getting stroke survivors 100% recovered! This is a negative,
NOT a positive view of these hospitals! Stroke
hospitals that require setting up a stroke support group ARE COMPLETE
FUCKING FAILURES AT GETTING SURVIVORS 100% RECOVERED.
Send me hate mail on this:
oc1dean@gmail.com. I'll print your complete statement with your name and my
response in my blog. Or are you afraid to engage with my stroke-addled
mind? Your patients need an explanation of why you aren't working on 100% recovery protocols.
Why isn't your doctor solving stroke?
Laziness? Incompetence? Or just don't care? NO leadership? NO strategy? Not my job? Not my Problem
Join
us for a Stroke Support Group, a place where survivors and caregivers
can come together to share personal experiences, feelings, recovery
strategies, and firsthand information on managing life after stroke.
Meetings are held the fourth Tuesday of each month from 4 p.m. to 5 p.m.
at RWJ Fitness & Wellness Center in Hamilton.
The group will be facilitated and presented by RWJ Rehabilitation
Hamilton team members, Ashley Sarrol, Speech-Language Pathologist, and
Allyson Panikowski Berry, Occupational Therapist. Stroke survivors and
care partners at any stage of recovery are welcome and encouraged to
attend.
Stroke
hospitals that require setting up a stroke support group ARE COMPLETE
FUCKING FAILURES AT GETTING SURVIVORS 100% RECOVERED.
Send me hate mail on this:
oc1dean@gmail.com. I'll print your complete statement with your name and my
response in my blog. Or are you afraid to engage with my stroke-addled
mind? Your patients need an explanation of why you aren't working on 100% recovery protocols.
Why isn't your doctor solving stroke? Oh, your doctor is a follower; NOT A LEADER! Why hasn't s/he been fired yet?
Laziness? Incompetence? Or just don't care? NO leadership? NO strategy? Not my job? Not my Problem?
FRONT ROYAL — According to the World Stroke Association, someone
suffers a stroke every 45 seconds in the United States. Over 12 million
people worldwide will have a stroke each year, and around 7.3 million
people will die as a result.
May is designated as National Stroke
Awareness Month, dedicated to raising awareness about stroke, promoting
prevention and improving care for stroke survivors. The month also
highlights the importance of recognizing stroke warning signs and acting
quickly to seek medical attention, said Juhi Vora, a speech-language
pathologist who runs the Front Royal Stroke Support Group through Warren
Memorial Hospital.
Formed in 2011 to provide stroke survivors and
their caregivers with emotional support and resources for recovery, the
group meets monthly to share stories, build camaraderie, learn and have
fun.
“Strokes
affect everybody very differently,” said Vora, noting that while some
are mostly impacted physically, others struggle with speaking and
communication or cognition and memory.
The group, which ranges in
size between 10 to 20 people depending on the activity, is also varied
in age, with some members in their 30s and others in their 70s and 80s.
Vora
said that many group members — and their caregivers — experience
emotional anxiety, depression from a loss of independence and social
isolation.
“Not everyone understands this journey and the toll it
takes not only on a stroke survivor, but also on their caregivers,” she
said. “It’s a full-time job for the caregivers. We make them feel that
they’re not alone in this journey and that there is hope. There is
recovery. Things will get better and they will find the support and
connection they need in the recovery process.”
Stroke survivors Michael Fletcher and Joshua Kopetz attend the support group regularly and say it has been invaluable to them.
Fletcher,
who grew up in Front Royal and graduated from Warren County High School
in 1985, was working for Verizon at the time of his stroke 16 years
ago.
He woke up one September morning to find himself paralyzed.
“I
don’t remember being in pain. I remember when they told me I’d had a
stroke, I knew recovering from the stroke was going to be the hardest
work I've ever done in my life — and it was,” said Fletcher, who said he
walks with a cane because of the stroke’s effect on his left side.
He said he worked diligently to recover from the stroke, and continues to exercise to stay mobile.
In
the midst of physical and occupational therapy, former Warren Memorial
occupational therapist Michelle Davies reached out to Fletcher and told
him she was starting the support group.
“We have a camaraderie.
Stroke has affected everyone the same, but different. Everybody has
different effects from stroke, but we’ve all suffered the same thing,”
Fletcher said. “I love the group. We have a sense of closeness when
we’re all together. We all like each other.”
A 2000 graduate of
Warren County High School, Kopetz lives in Ladysmith with his wife. He
comes to Front Royal every month to visit his parents, attend doctor’s
appointments and participate in the support group.
“At
first I didn't want to go,” recalled Kopetz, who suffered a stroke in
August 2020 after breaking his shoulder in a fall. “My anxiety was way
up after the strokes, but since I've been going there, I’ve been meeting
other people who are an inspiration to me. They give me inspiration to
keep going.”
Kopetz was rushing into work during a downpour and
slipped and fell, landing on his left shoulder. Doctors confirmed he had
fractured his arm. After seeking treatment, Kopetz drove himself home.
Although
he and his family didn’t know it at the time, a blood clot had formed
in his arm, traveled to his chest and then into each side of his brain
stem causing a stroke. His parents, Melody and John Kopetz, went to
visit him.
“By the time we got there, he had lost his vision. He
was not able to speak or function or move,” said Melody Kopetz, adding
that the family thought he was dehydrated and nursed him at home for two
days before taking him back to the hospital.
“As we know now, you
have a window of only six hours to get medical help,” said Melody
Kopetz, adding that her son had to re-learn everything from how to walk
and talk to how to eat.
“The best analogy I can give is that it’s
like when you restart a computer and it takes a long time to re-boot.
That's how I was,” Kopetz said.
Melody Kopetz said the support group has been helpful in building community connections for the family.
“The people are really wonderful and the instructors are really great,” she said.
Vora
said that the group enjoys a variety of activities — from bowling and
bingo to holiday gatherings, bonfires and walks together. She also
coordinates guest speakers to talk about community resources and new
developments in the care of stroke patients. She said that while group
members are open about sharing their stories with new members, many
long-time members really enjoy having fun together.
“They’ve been
through this process, seen multiple doctors and rehab specialists. They
have heard about stroke over and over and over,” said Vora. “They want a
space to just be themselves without any judgement and have some fun
activities.”
Symptoms of a stroke include weakness/numbness of the
face, arm, or leg, especially on one side of the body; confusion,
trouble speaking, or understanding; trouble seeing in one or both eyes;
sudden trouble walking; dizziness, loss of balance or coordination; and
sudden severe headache with no known cause.
Vora noted that the
brain controls many functions including vision, speech, movement,
thinking, reasoning and understanding. A stroke can cause damage to the
brain tissue, which can affect one's ability to talk, move, walk, think,
or swallow. Because of this, stroke is a leading cause of serious
long-term disability.
To reduce the risk of stroke, Vora suggested
eating a healthy diet, controlling diabetes, monitoring blood pressure,
exercising and quitting smoking and alcohol.
The stroke support group is open to all stroke survivors and caregivers. For more information, email jvora@valleyhealthlink.com or call 540-635-0730.
I found zero comfort in stroke support groups, they were mainly about whining. If your hospital has one; IT MEANS THEY ARE A COMPLETE FUCKING FAILURE AT GETTING YOU 100% RECOVERED! They don't deserve to exist at all for such incompetence!
Trauma
comes in many forms, and sometimes, what we need is a tight-knit
community of those with whom we can all relate. That is where Michelle
Lang has those individuals covered.
Lang
leads the Stroke & Brain Injury Support Group at the M Fairview
Health Clinic in Wyoming, which meets on the first Saturday of each
month from 10 a.m. to 12 p.m. The group, founded by Lang for those
recovering from different forms of brain trauma, is one she describes as
a safe environment for attendees to open up and discuss their
struggles.
“I think everyone feels very comfortable with each other there,” said Lang. “We are all a family. We’re all very close.”
The
group’s origins are rooted in Lang’s own history of brain trauma
following a stroke in April 2023. “I spent about a month in acute
rehab,” she explained. “I was in a wheelchair to begin with.
“I
was also with a walker and a cane, so I worked my butt off to get to
where I was. Eventually, I found that when I went to an exercise class,
it made me realize how much in friendships I had lost as a result of the
stroke. People don’t know what to say or what to do, so it’s easier for
them to walk away or just ignore the whole situation.”
In
finding a location to hold group meetings, Lang chose the M Fairview
Health Clinic in Wyoming due to its proximity to her residence (Chisago
City) and its familiarity. “The closest groups were either up in Duluth
or down to the cities,” she said. “I think that a lot of it was because I
was there all the time, too. I talked with the administration, and they
were willing to give the space free of charge. It seemed like a natural
choice.”
Enlisting
the help of her daughter, Anna, to create and spread group flyers, Lang
began hosting the first meeting in December of that year. Though
attendance was initially minimal, participation steadily increased
through Facebook and different neighborhood group websites. By May 2024,
the group had 31 members from cities including Hugo and Forest Lake.
Among
the first few who joined were Hugo couple Marie and Dennis Knieff.
Dennis had previously suffered a malformation-induced brain bleed in
2022, which required emergency surgery. “We’d been coming here for
occupational and physical therapy,” said Marie. “I was a little
apprehensive just because I’ve never done anything like this, but when I
got to know Michelle, it felt like going to your neighbor’s house. She
kept us grounded and positive, and it just felt really at home. It’s
nice to know it’s getting bigger and bigger all the time.”
After
previous groups closed due to COVID-19, Forest Lake couple Carolyn and
Douglas Schulette found Lang. “As soon as the pandemic came, it left
us,” said Carolyn, who had attended a St. Paul-based brain tumor support
group with Douglas. “When I saw another group that had to do with brain
functioning, I thought it would be a good one to have some other people
that he (Douglas) could relate to.”
The
group has featured a number of notable guest speakers at certain group
meetings. Among them is Dr. Haitham Hussein, a neurologist with M Health
Fairview and the University of Minnesota Medical School, whom Lang
herself has seen as a patient.
“There’s
a lot of work that goes into starting a support group like that,” said
Hussein, “sustaining and keeping it going. Michelle really
single-handedly did that. It isn’t just that she had the motivation; she
also had the perseverance to find resources and figure out how to keep
things going.”
In
his role as guest speaker, Hussein said that his goal is not to discuss
any one single topic but to see it as an opportunity to spend time with
individual stroke/brain injury survivors. “I get to learn more about
their everyday struggles beyond the medical aspects,” explained Hussein,
“which tends to be the focus when they come to the clinic. In the
medical field, we have tools to measure stroke recovery developed based
on the doctor’s opinion about what is helpful for a person surviving a
stroke. But there is a different point of view when you hear the
patient.”
Hussein
said that spending this time helped him understand more about himself
as a doctor and the group members’ recovery process. “For example, we
think that if someone is able to walk, that’s good,” said Hussein. “But
maybe you hear from the patient, ‘No, that’s not good enough because I
want to be more independent or I want to go back to riding my bike.’
“Sometimes,
what is important for stroke survivors and their caregivers might not
be what a doctor is looking for or what the medical community thinks is a
good or bad outcome,” Hussein said. “I also learned from the stroke
survivors, when they go to a rehab facility, what ones are good and what
are not very good. We can find, for example, more sophisticated
therapists to help people recover from stroke in urban settings versus
rural settings. It is helpful for me to be in these meetings so I can
understand the everyday struggles at home with stroke recovery.
“I
am grateful to this support group for inviting me and me to go multiple
times. That has always been a fun and lovely experience for me.”
The
next group meeting will be from 10 a.m. to noon Saturday, March 1, at
the M Health Fairview Clinic, 5200 Fairview Blvd., Wyoming. To learn
more about stroke symptoms and treatments, visit the American Stroke
Association website at www.stroke.org/en/.
Which means these hospitals are complete
failures at getting stroke survivors 100% recovered! This is a negative,
NOT a positive view of these hospitals! Stroke
hospitals that require setting up a stroke support group ARE COMPLETE
FUCKING FAILURES AT GETTING SURVIVORS 100% RECOVERED.
Send me hate mail on this:
oc1dean@gmail.com. I'll print your complete statement with your name and my
response in my blog. Or are you afraid to engage with my stroke-addled
mind? Your patients need an explanation of why you aren't working on 100% recovery protocols.
Why isn't your doctor solving stroke?
Laziness? Incompetence? Or just don't care? NO leadership? NO strategy? Not my job? Not my Problem?
SOUTH TEXAS HEALTH SYSTEM’S STROKE
SURVIVORS SUPPORT GROUP CELEBRATES FIVE YEARS OF PROVIDING ENCOURAGEMENT
AND SUPPORT TO LOCAL STROKE SURVIVORS
Since 2019, the group has
provided a supportive environment for stroke survivors, their families
and caregivers to take part in educational activities to help them with
their recovery, as well as share their experiences with and motivate
fellow members
A stroke is a life-changing incident that can leave a person feeling
extremely isolated. While friends and family can be empathetic, having
the support of someone who has endured a similar experience can make all
the difference.
In the United States, there are more than 1,800 stroke support
groups,(WOW! That's a lot of hospital failure!) per the American Stroke Association, each providing essential
education, support, hope and encouragement for survivors and their loved
ones as they navigate their individual path to recovery.
Ultimately, the goal of these groups is to help eliminate feelings of
depression, hopelessness and loneliness after a stroke by reducing
isolation, providing coping mechanisms, alleviating stress and offering a
platform for the sharing of experiences with one another.
For the last five years, stroke survivors in the Rio Grande Valley –
including Winter Texans who make their home in the four-county region
during the winter months – have been able to receive support from the
South Texas Health System Stroke Survivors Support Group, which is
handled by the healthcare system’s outpatient rehabilitation centers at
STHS McAllen and STHS Edinburg.
“Having a stroke is traumatic due to the sudden and life-altering
nature of the medical emergency,” says Sophia Alton, PTA, STHS
Outpatient Rehabilitation Center McAllen, who established the group.
“Our support group provides a safe space for stroke survivors to receive
ongoing education vital to their recovery.”
During their monthly meetings, STHS staff provide invaluable
education and significant emotional support to help significantly
improve the physical and mental well-being and overall quality of life
of the group’s members while empowering them, including those who may
feel lost or uncertain about how to move forward, to remain positive and
stay the course on their road to recovery.
“They’re able to share their own personal experiences and receive the
emotional support they need, especially when they’re feeling isolated
or frustrated with their progress,” says Alton. “It’s helpful to know
they’re not alone and that, while the road to recovery isn’t always
linear, it does get better.”
It’s the social support provided by STHS Stroke Survivors Support
Group, which has allowed lasting friendships to form among members, that
kept Carrie Heim coming back time and time again.
“These people have been here for me providing emotional support and
encouragement when I was at my lowest,” says Heim, a hemorrhagic stroke
survivor who has been a member of the group since its inception in 2019.
“From one moment to the next, my life was in danger, and I had to
undergo surgery to stop the bleeding in my brain. For 10 days, no one
knew if I’d survive.”
But Carrie would pull through. Following her life-threatening ordeal,
she would go on to attend an STHS Stroke Survivors Support Group
meeting to help forge through a health situation few of her loved ones
could comprehend.
“As soon as I walked into the room, I encountered other people like
me who’d gone through the same situation and I instantly realized that
we were all in it together,” says Carrie, a Winter Texan who never
misses a meeting during her time in the Valley. “We’ve become a family,
and I wouldn’t miss this for the world because it is just so important.”
When the STHS Stroke Survivors Support Group was established, it
consisted of only about 10 stroke survivors and caregivers. Today, the
group has grown to 40 members, all connecting with others who understand
their experiences and share their challenges.
“It’s hard to believe what began as a simple idea has blossomed into
something so beautiful,” says Alton, who was inspired to launch the
group after working a stroke patient who talked about feeling like less
of a man because he couldn’t care for his wife the way he used to. “So,
to help our patients combat those negative feelings that arise after
experiencing a life-altering medical emergency, I threw out the idea of
launching a support group for stroke survivors, which my coworkers
supported. We had no idea how to start the group; we just felt this
strong desire to help our patients!”
Since then, the STHS Stroke Survivors Support Group has helped
hundreds of stroke survivors like Carrie, as well as the family members
and caregivers of stroke patients, improve their quality of life through
education, emotional support and community-building. It’s
life-improving assistance the STHS Outpatient Rehabilitation Services
teams at STHS McAllen and STHS Edinburg plan to offer the people of the
Rio Grande Valley for years to come.
The STHS Stroke Survivors Support Group meets every second Tuesday of
the month, from 6:00 to 7:30 p.m., at the STHS Edinburg Outpatient
Rehabilitation Center, located at 1800 S. 5 Street, Suite B in McAllen.
Additionally, the support group has a private Facebook page for members. For more information, contact Sophia Alton at 956-971-5728 or Sophia.alton@uhsrgv.com or visit the STHS McAllen website at https://www.sthsmcallen.com/stroke-support-group.
Just proof that this hospital IS A COMPLETE FUCKING FAILURE AT GETTING STROKE SURVIVORS 100% RECOVERED! That is the only goal in stroke, there are no valid excuses not to get there.
A hospital has set up a support group
to help people who have experienced a stroke to get advice, share
experiences and make new friendships with other stroke survivors.
Guy’s and St Thomas’ Community Stroke Team set up the Lambeth Stroke Peer Support Group in March, with sessions running every other week for 10 weeks.
Participants get advice on how to
prevent further strokes, the importance of family and friends and
maintaining links with the community, exercise and diet, managing mood
and fatigue, and the importance of fun and joy after a stroke.
Steve Ridley, 52 from Streatham,
had a stroke in July 2022, while working from home. After being taken
to hospital, Mr Ridley was found to have extremely high blood pressure
and a bleed on the left hand side of the brain.
He received six months of hospital
treatment followed by intensive rehabilitation, and support from the
community therapists at Guy’s and St Thomas’ Pulross Centre.
The stroke has affected his speech,
and the right side of his body including arm, hand and leg. Steve now
also walks with a stick.
Speaking about the support group, Mr
Ridley said: “Before the stroke, I had always been a very talkative
person, always the one who would stand up to speak.
“Sometimes I struggle to explain to
people why I’m a bit slow in my speech or forget things. But with the
group you realise you are not the only one out there. You are not on
your own.”
Life after a stroke can bring many
challenges including physical problems, financial difficulties and
feelings of loneliness and isolation. The Lambeth Stroke Peer Support Group aims to bridge the gap after hospital treatment and rehabilitation support ends.
Lolly Short, the Stroke Care Advisor
at Guy’s and St Thomas’, who runs the group, said: “The group start to
feel like they belong by meeting other people who are feeling exactly
the same.
“They feel understood and heard.”
To find out about the Lambeth Stroke Peer Support Group, email: gst-tr.lambethstrokecareadvisor@nhs.net or call 07824 600243.
Pictured top: Agnieszka and Steve Ridley (Picture: Guy’s and St Thomas’)
Which means these hospitals are complete failures at getting stroke survivors 100% recovered! This is a negative, NOT a positive view of these hospitals! Stroke hospitals that require setting up a stroke support group ARE COMPLETE FUCKING FAILURES AT GETTING SURVIVORS 100% RECOVERED.
Send me hate mail on this:
oc1dean@gmail.com. I'll print your complete statement with your name and my
response in my blog. Or are you afraid to engage with my stroke-addled
mind? Your patients need an explanation of why you aren't working on 100% recovery protocols.
Why isn't your doctor solving stroke?
Laziness? Incompetence? Or just don't care? NO leadership? NO strategy? Not my job? Not my Problem?
You've had a stroke. Now what? HCA Florida Englewood and Fawcett
Hospitals are excited to host a monthly support group for stroke
survivors and caregivers. As you navigate your post-stroke journey, the
support group offers more than just resources and information. It's a
place where you can find new friends, support, hope, and most
importantly, emotional support. The group is designed to help you with
your unique challenges, offering warmth and acceptance. Recovering from a
stroke can be difficult to navigate. One in four who have suffered a
stroke is at a higher risk of a second stroke. The good news is that
with education and lifestyle changes, such as improved diet and
exercise, you can take steps toward prevention. If you notice someone
showing signs of a stroke, such as face drooping, arm weakness, or
speech difficulty, it's crucial not to delay care. Immediate medical
intervention is necessary to halt a stroke and prevent extensive brain
damage. The sooner treatment is given, the more brain cells can be
saved, leading to a better long-term outcome. The group meets on the
last Friday of each month. The next session will be held on Friday,
September 27, at the HCA Florida Fawcett Hospital Community Center, 3280
North Tamiami Trail in Port Charlotte. HCA Florida Englewood is a
primary stroke center and Fawcett Hospital is a comprehensive stroke
center. Both hospitals have earned the prestigious 2024 Get With The
Guidelines®-Stroke Gold Plus award from the American Heart Association
and are proud to be part of HCA Healthcare and the HCA Healthcare
Foundation’s national sponsorship of the American Heart Association’s
Together to End Stroke® campaign.
CMMC was recently awarded the Montana
Rural Healthcare Performance Improvement Network’s Quality Improvement
Award for its work on The Mission: Lifeline Stroke Recognition program,
as well as the new Stroke Support Group CMMC Therapy and Rehab started
earlier this year.
The
Montana Rural Healthcare Performance Improvement Network (PIN) is a
voluntary membership of 50 critical access hospitals throughout the
state. Through this Network, member hospitals are able to benchmark
their performance with their peers on a variety of financial,
utilization and direct patient care measures that encourage safe,
effective, patient-centered care delivery in even the most remote
communities of the state. PIN quality of care measures are based on
national benchmarks, but are tailored to reflect the realities of the
state’s rural population.
CMMC
has demonstrated a commitment to its community and the region it serves
through its involvement with the MT Rural Healthcare PIN. Throughout
the last year, PIN members focused on four core improvement areas;
patient satisfaction and engagement, transitions of care from the
emergency room, emergency room stay times, assessment and provision of
influenza immunizations for inpatients, and influenza immunizations for
healthcare workers.
Award
winners are required to demonstrate measurable improvement in one of
the previously mentioned quality of care focus areas over the previous
year and show consistent participation in the PIN’s data programs.
Applicants are also required to demonstrate an active and leading role
in supporting PIN quality improvement efforts by participating in PIN
events and sharing with peers throughout the state.
So OhioHealth is a complete failure at getting survivors 100% recovered, as proven by the need to have a stroke support group. I'd suggest starting the whole stroke department from scratch. The board of directors is also a complete failure for not setting proper goals for the hospital; i.e. 100% recovery
MANSFIELD — Patrick Harp was given three to six hours to live upon
arriving in the emergency department at OhioHealth Mansfield Hospital.
Harp, a 60-year-old Mansfield resident, suffered a stroke in May of
2007. He was taken to the Mansfield hospital and underwent an emergency
craniotomy.
After a three-month stay at OhioHealth, Harp returned home — accompanied by several new challenges which affect his daily life.
Harp has severe aphasia, a language disorder caused by damage to his
brain. He’s lost peripheral vision in both eyes and movement of his
right arm.
Despite these obstacles, he’s able to move around and live with his wife Ronda and their family.
Since his stroke in 2007, Harp has gone to the OhioHealth Mansfield stroke survivor support group each month. Ronda credits some of her husband’s progress and positive attitude to the group.
The Harps encourage other stroke survivors to seek out support groups to help in their recovery.
OhioHealth Mansfield is located at 335 Glessner Ave. (Credit: OhioHealth Mansfield) Credit: OhioHealth Mansfield
Harp remains ‘happy-go-lucky’
Life as Patrick knew it changed following his stroke. His faith and “happy-go-lucky” attitude have allowed him to persevere.
“It’s a long road,” he said in regards to the recovery process.
Patrick enjoys riding his recumbent trike, a three-wheel bike with a
laid-back seat, as well as woodworking — creating items such as
ornaments, tables and wine racks, among others.
He’s also made connections with other stroke survivors by attending OhioHealth Mansfield’s support group for nearly 20 years.
Ronda said she and her husband learned about the group during Patrick’s inpatient rehab.
The group meets on the second Friday of each month from 1 to 2 p.m.
at the Mansfield hospital, 335 Glessner Ave. It includes a variety of
events such as dining-out socials, game nights, local tours and featured
speakers, among others.
Its members are the reason the Harps said they’ve continued to attend over the years.
“We like to keep up with what’s going on with them, what improvements
they’ve seen and what tips they might have,” Ronda said, adding Patrick
enjoys trying to encourage other survivors.
Furthermore, she said the group will occasionally split to allow
survivors and caregivers a chance to converse without the other, as well
as share challenges.
Survivor group supports physical, mental health
Stroke recovery demands determination from patients both physically and mentally.
Offering a chance to speak with others battling similar obstacles,
the support group has supported Patrick from falling into “depression
mode.”
The Harps agreed surrounding themselves with other survivors and caregivers has provided a productive emotional resource.
Survivors feel comfortable sharing stories about the ups-and-downs of their recovery, which the couple agreed has been helpful.
They’ve also attended several stroke camps, which take place in states around the country and allow survivors and caregivers to network even further.
“We just find things on the internet and think ‘Oh, well, let’s gather with more people that are like us,'” Ronda said.
She added a piece of advice for families experiencing unique challenges which accompany life after a stroke.
“Just don’t stay in the house in front of the TV,” Ronda said. “Just get out and try the community things.”
Certified primary stroke care center
Gubert Tan, neurologist and stroke medical director at OhioHealth
Mansfield, said strokes are a leading cause of disability in the United
States.
He added the Mansfield hospital is the area’s only certified primary stroke care center.
“We try to do our best,” Tan said. “We get our certification renewed
after several years and we constantly do that to provide excellence in
stroke care.”
Educating patients and the community about the warning signs of strokes is a critical aspect of stroke care, he explained.
OhioHealth Mansfield Hospital is a certified primary stroke care center. Credit: Hayden Gray
The acronym “BE FAST” — balance issues, eyesight changes, facial
weakness, arm weakness, speech difficulty and time to call 911 — serves
as a reminder of stroke signs and symptoms, as well as when to seek
medical assistance.
“That’s what we try to encourage patients to learn,” Tan said. “When
they come to the hospital, part of the treatment is education.”
A variety of preventative therapies are available at the stroke care
center, including medication, physical therapy, gyms and rehabilitation
practices. The ward also features a 14-bed inpatient rehab unit.
After patients leave the hospital, Tan said they communicate with
OhioHealth Mansfield’s stroke clinic to follow up with nurse
practitioners and vascular neurologists.
Support group is for patients, caregivers
Recovering from a stroke can be a lengthy, challenging and stressful process for both the patient and their caregivers.
Tan said resources available at the Mansfield Hospital, such as the
support group and educational classes, are meant to help and serve
patients and their support system.
“It’s continued care. From education to acute care, to rehabilitation
and the support group,” he said. “It’s more for the patient and more
for the family, too, for the caregiver, because sometimes the stress
level is in the patient, but also the caregiver.”
The need to have these stroke support groups means your stroke association has completely failed at their job of getting survivors 100% recovered! Are they even working towards that goal? If not, you need to take over them and get them run by survivors.
Absolute proof they are a complete failure to stroke survivors. This wouldn't be needed if they were competent is getting survivors 100% recovered.
Send me hate mail on this:
oc1dean@gmail.com. I'll print your complete statement with your name and my
response in my blog. Or are you afraid to engage with my stroke-addled
mind? Survivors would like to know why you are being so fucking incompetent that you can't get them 100% recovery! NO EXCUSES!
On Wednesday, May 29, Essentia Health will hold a Stroke Walk in
support of local stroke survivors. This complimentary event will be held
from 2-4 p.m. at the Rustad Recreation Center, located at 601 26th Ave.
E. in West Fargo.
The walk is open to stroke survivors, their support network and staff
that care for stroke patients. Walkers do not need to be patients of
Essentia. If interested in attending, please email StrokeSupportGroup@EssentiaHealth.org.
“With May being Stroke Awareness Month, our team looks forward to
hosting this walk to celebrate our stroke survivors and supporters in a
fun and active way while also highlighting stroke recognition and
prevention,” explained Chelsey Kuznia, stroke program manager at
Essentia Health-Fargo.
For those unable to attend, a Stroke Support Group is available the
following month, from 3-4 p.m. on Thursday, June 27, in Conference Room
LLH253 at Essentia Health-Fargo, located at 3000 32nd Ave. S.
Held the last Thursday of every month, this support group is open to
stroke survivors, family members and caregivers. It is designed to
provide support, education and encouragement from others that have
experienced similar life-changing events.
If interested in attending, or for questions, please call (701) 364-4509 or email StrokeSupportGroup@EssentiaHealth.org. A virtual attendance option is available.
Essentia Health-Fargo has been recertified as a Comprehensive Stroke
Center by DNV Healthcare USA Inc., reflecting the highest level of
competency(Well, you obviously are NOT COMPETENT if you have to have a support group. Think about that!) for treatment of serious stroke events.
This certification is based on standards set forth by the Brain
Attack Coalition and the American Stroke Association and demonstrates
Essentia’s commitment to the full spectrum of stroke care(NOT CURE! More proof you are not competent) – diagnosis,
treatment, rehabilitation and education.
Learn more about risk factors and symptoms of stroke and available stroke care at EssentiaHealth.org.
This is a direct acknowledgement that this hospital is a complete failure at getting survivors 100% recovered. The board of directors needs to be removed.
OSF HealthCare St. Elizabeth Medical Center is offering a Stroke
Support Group with the first session from 9 to 10 a.m. Friday, March 6.
The group provides support for people who have had a stroke, their
families and friends. This informal meeting allows attendees to share
experiences, solve problems they may encounter and answer questions for
those who are or have been in similar circumstances.
Participants will learn about stroke recovery, rehabilitation and
prevention. Also, explore resources and support available to live a
satisfying life while coping with any losses and disabilities associated
with stroke.
The group will meet from 9 to 10 a.m. the first Friday of every month
in the hospital's Meeting Room 4. No reservations are required. For
questions, call Mary Yuhas, speech-language pathologist, at
815-431-5316.
Does it have a stroke support group? If yes, that means they are completely failing at getting most survivors 100% recovered. They have accepted the tyranny of low expectations as gospel and are doing nothing to change the failed status quo. There are NO EXCUSES ALLOWED. They will use this fuckingly lazy statement to justify complete failure; 'All strokes are different, All stroke recoveries are different.' Laugh in their faces, rather maniacally. 'I'm supposed to accept that as your excuse for not getting me recovered?'
For your stroke doctor.
What prescriptions did your write to my therapists? OT, PT, ST?
If E.T.(Evaluate and Treat) that means your doctor knows nothing about stroke rehab, and is taking NO RESPONSIBILITY FOR YOUR LACK OF RECOVERY.
Oops, I'm not playing by the polite rules of Dale Carnegie, 'How to Win Friends and Influence People'.
I shouldn't presume to know more than all these medically trained persons, especially since I'm not medically trained. You need zero medical training to evaluate your doctor and hospital, just common sense at looking at their results.
Politeness
will never solve anything in stroke. I expect all doctors should know more about stroke than you or me.
If this doesn't get me flamed and hate mail it means your stroke providers aren't even following stroke survivor writings to see what needs improving. Another failure point on their side. Flame away, I will respond factually and in spades.
This is openly acknowledging that this hospital is a complete failure at getting patients 100% recovered! 'Hope' is just pushing the tyranny of low expectations. YOU need to have this hospital completely enabled with new staff. Why is your board of directors so incompetent as to allow such failure?
Stroke patients at King’s Mill
Hospital can now get extra support in their recovery thanks to a support
group set up in the Sutton site.
The patient experience group has been set up by staff
from the ward and previous stroke patients to help provide hope to both
stroke survivors and their families.
Members of the stroke group meet at King's Mill Hospital.
The first meeting was held in October which was
followed by the second group, held at the end of November. Both groups
have been very successful and so it has been decided to now run them on a
regular basis.
It has been supported by two previous patients and stroke survivors, Alex Winfield and Adam Lambert.
Alex, 31, who had a stroke aged just 30, said: “I think the
group is a really good idea, I wish there had been something like this
when I first had my stroke.
“It’s really good for patients to talk
to other people that have experienced something similar and see that
there is life after a stroke and it is possible to come through it.
“I
would encourage anyone who has suffered a stroke to come along to the
support group and have a chat, as it is really good to speak to people
who have been in the same situation.”
The group meets on the third
Wednesday of each month for patients on Ward 53 and their families, so
that they can benefit whilst they are still patients on the ward.
Sara Gent, the occupational therapist who helped
set up the group, said: “We have had some really good feedback from
patients about the group.
“It can be really overwhelming for
patients and their family, so I think it really helps for our current
patients to listen and speak to others who have had a stroke, but who
have progressed and have improved through therapy and support.
“I
would also like to thank my colleagues and our volunteers for helping to
set up the group and continuing to support the running of it.”
Their definition is probably the tyranny of low expectations/status quo. Or the craptastic statement; 'All strokes are different, all stroke recoveries are different.' Or maybe that they have met the Get With the Guidelines or Joint Commission
standards on stroke. Neither of which measures results, just whether
they are following processes. You can follow processes 100% and the
patient dies, good for the doctor, not so good for the patients. You
can't get better at anything unless you measure it. You don't measure
processes you measure results.
Whoops Dean, you are challenging all the stroke doctors and hospitals in the world. Bring it on, show me your results and then we can discuss your competency. I'm stroke-addled so it should be easy for you to bowl me over with your results.
You will need this post-stroke since you will lose most of your friends. Your doctor, psychologist and psychiatrist should have multiple protocols to boost your social self esteem. Or they could take the correct way out of this and get you 100% recovered in the first month so you will immediately go back to your previous life. I bet they do neither and you will have to figure this out on your own. Or they tell you to join a stroke support group which is their way of saying they are incompetent in getting you recovered. A Simple Way To Boost Social Confidence
An easy self-affirmation exercise helps reduce social insecurities for at least two months.
Sometimes in life we get exactly what we expect.
Nowhere is this more true than in social relations.
When we meet someone new, if we expect to like them—for whatever reason—then they tend to like us.
If we experience apprehension or nascent dislike then things can quickly go wrong.
Psychologists have called it the ‘acceptance prophecy’ and there’s more about it in this previous article: The Acceptance Prophecy: How You Control Who Likes You.
The problem is that for insecure or socially nervous individuals it becomes the rejection prophecy.
A feeling of apprehension about meeting new people is outwardly expressed as nervous behaviour and this leads to rejection.
But a new paper published in Psychological Science provides a
simple exercise that helps boost relational security and should help
turn the rejection prophecy back into the acceptance prophecy.
Self-affirmation
Stinson et al. (2011)
measured the relational security of 117 participants by asking them how
much they agreed with statements like: “My friends regard me as very
important in their lives” and “My partner loves and accepts me
unconditionally”.
Half of them were then asked to do a very simple self-affirmation task.
Participants looked down a list of 11 values including things like
spontaneity, creativity, friends and family, personal attractiveness and
so on.
They put them in order of importance and wrote a couple of paragraphs saying why their top-ranked item was so important.
The results showed that this simple task boosted the relational
security of insecure individuals in comparison with a control group.
Afterwards their behaviour was seen as less nervous and they reported feeling more secure.
And when they were followed up at four and eight weeks later, the benefits were still apparent.
It appears that even a task as simple as this is enough to boost the social confidence of people who feel insecure.
The simple reason is that your doctor has completely failed at getting you 100% recovered. They should never be necessary if your doctor, hospital and therapists were competent.