Use the labels in the right column to find what you want. Or you can go thru them one by one, there are only 30,741 posts. Searching is done in the search box in upper left corner. I blog on anything to do with stroke. DO NOT DO ANYTHING SUGGESTED HERE AS I AM NOT MEDICALLY TRAINED, YOUR DOCTOR IS, LISTEN TO THEM. BUT I BET THEY DON'T KNOW HOW TO GET YOU 100% RECOVERED. I DON'T EITHER BUT HAVE PLENTY OF QUESTIONS FOR YOUR DOCTOR TO ANSWER.
Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.
What this blog is for:
My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.
Showing posts with label patient centered goal setting. Show all posts
Showing posts with label patient centered goal setting. Show all posts
Wednesday, March 19, 2025
Short-term effects of goal setting by rehabilitation professionals on aspects of psychology: a non-randomized controlled trial involving recovering stroke survivors
Survivors set goals you blithering idiots! And the only goal in stroke is 100% recovery. Don't try to lower that goal. Which means YOUR RESPONSIBILITY IS TO HAVE EXACT 100% RECOVERY PROTOCOLS! How's that coming?
Wednesday, June 14, 2017
What Do Patients Really Want? Honesty and respect first, before technical expertise
For stroke patients it would be 100% recovery if the medical professionals haven't already biased any replies by suggesting how difficult stroke recovery is. Essentially by conditioning patients not to expect much in the way of recovery.
http://www.medpagetoday.com/PracticeManagement/PracticeManagement/66013
http://www.medpagetoday.com/PracticeManagement/PracticeManagement/66013
Monday, May 1, 2017
Vigorous walking three to five times each week decreases the chance of recurrent stroke by fivefold in patients with narrowed arteries in the brain,
So your doctor and therapists need to get you recovered well enough from your stroke to get you to vigorous walking. But I bet they have dumbed down goals of just getting you walking with assistance. Your patient centered goal is 100% recovery regardless of what your fucking doctor tells you can be accomplished. Don't pay her/him unless you achieve that goal.
http://academicdepartments.musc.edu/newscenter/2017/turan/
http://academicdepartments.musc.edu/newscenter/2017/turan/
Research
shows moderate to vigorous physical activity is by far the strongest
predictor of an improved outcome in people who have suffered a stroke.
Vigorous
walking three to five times each week decreases the chance of recurrent
stroke by fivefold in patients with narrowed arteries in the brain,
report investigators at the Medical University of South Carolina in an
article in Neurology.
The
results, published in the January 24 issue, involved patients with
symptoms of intracranial stenosis, the narrowing of arteries in the
brain, which is the most common cause of stroke worldwide.
![]() | |
Dr. Tanya Turan tells patients with intracranial stenosis that exercise can have a big impact on improving their health. |
The
investigators analyzed three-year follow-up data for 227 patients who
had been randomized to the intensive medical management arm of the
MUSC-led Sammpris or stenting versus aggressive medical therapy for
intracranial stenosis trial. Enrollment in the Sammpris trial, which was
designed to evaluate whether stenting plus intensive medical management
or intensive medical management alone was more effective at preventing
recurrent stroke in these patients, was stopped early, in 2011, for
safety reasons because patients in the stenting arm had a 2 ½ times
higher 30-day rate of stroke or death than those in the intensive
medical therapy arm.
Follow-up continued, however, to
evaluate the role of risk factor control in preventing recurrent stroke,
and those findings are presented in the Neurology article.
Reaching
targets for systolic blood pressure (<140 mmHg, < 130 mmHg for
diabetics) and low-density lipoprotein cholesterol (<70 mg/d)
significantly reduced the risk of secondary stroke, myocardial
infarction or a vascular event. Approximately half of the study
participants met these targets on average during the study. Those who
did not were about twice as likely to experience a recurrent stroke,
heart attack or vascular event.
However, moderate to
vigorous physical activity was by far the strongest predictor of an
improved outcome. Indeed, patients who did not regularly engage in
moderate to vigorous exercise were up to five times as likely to
experience a recurrent stroke or other vascular event.
How
much exercise was needed to attain benefit? “At least vigorous walking
for about 30 minutes, three to five times each week,” says Tanya Turan, M.D., director of the MUSC Stroke Division and lead author of the article.
Study
participants self-reported exercise using the 6-point Patient-Centered
Assessment and Counseling for Exercise, or PACE, score. Those who scored
above 3 met the target for physical activity and received benefit.
Moderate exercise was defined as brisk walking or slow cycling for at
least 10 minutes at a time, and vigorous activity as jogging or fast
cycling for at least 20 minutes at a time.
There was
evidence for a dose-dependent effect with exercise, with greater
protection from vascular events seen with more exercise. All study
participants were enrolled free of charge in a commercially available
lifestyle modification program, which included regular coaching on
healthy lifestyle behaviors.
Control of other risk
factors, such as smoking, body mass index and glycated hemoglobin, did
not significantly affect vascular outcomes.
This is the
first report showing an association between exercise and prevention of
recurrent stroke. The current American Heart guidelines for patients
with intracranial stenosis recommend lowering blood pressure and
cholesterol but do not mention exercise. Turan believes that, given
these findings, the next version of the guidelines may be more
supportive of exercise for secondary stroke prevention in patients with
intracranial stenosis.
“When I counsel my patients
with this condition, I talk with them about those two primary risk
factors, blood pressure and cholesterol, but also mention the impact of
exercise and tell them that they can do it without having to take an
extra pill and that it could have the biggest impact,” Turan says.
While
it is true that stroke patients can have physical or emotional barriers
to exercise, including stroke-related disability or depression, this
analysis demonstrates that access to a lifestyle modification program
can substantially increase their willingness to exercise. The percentage
of study participants who were at target for physical activity
increased from 32 percent at study entry to 56 percent by the four-month
follow-up visit.
Lifestyle modification programs, such
as the one used in the study, are commercially available and can be
used to help motivate stroke patients to meet exercise targets. These
programs can cost $400 to $500 annually and may be out of the reach of
some patients; however, insurance reimburses for these costs in some
cases. For patients who cannot afford to participate in a formal
lifestyle modification program, physicians and their health care staff
can work toward the same goal by consistently encouraging exercise in
order to prevent recurrent stroke. Many hospitals also offer cardiac and
stroke rehabilitation services that promote exercise.
Turan has a simple message for physicians.
“Tell your patients to exercise,” she says. “Think outside of the pillbox.”
Tuesday, November 15, 2016
The influence of patient-centredness during goal-setting in stroke rehabilitation
I bet this patient centered goal setting is still influenced by the staff, biasing what survivors expectations should be. The goal should be 100% recovery but I bet implicit and explicit interference from hospital staff relegates the goals to maybe walking, eating and dressing.
http://etheses.bham.ac.uk/7033/
Methods: A literature review and two qualitative studies were done in an acute stroke-unit. Study one aimed to explore influence of PCGS within stroke rehabilitation. Patients with stroke, with ability to participate and staff caring for them were included. Data collection involved interviews, observations, document analysis and focus-groups. Analysis involved sequential and intra-case analysis methods.
Study two aimed to build a resource to improve PCGS and evaluate its feasibility and appropriateness. Based on Study one and review, a resource (T-PEGS) was developed and applied in this setting. Patients with same criteria as Study one and staff who agreed to act as keyworkers were recruited. Data collection and analysis methods were similar to Study one.
Findings: Study one, with thirteen patients and twelve professionals, revealed limited application of PCGS due to participants’ health beliefs, limitations in knowledge and resources. Study two involved five patients and five staff who applied T-PEGS; recording of psychosocial goals, information sharing and rapport between patients and professionals had improved.
Conclusion: T-PEGS seemed to improve PCGS locally. Small study-size and single site limit generalisability. Future work should explore mechanisms and effectiveness of T-PEGS.
http://etheses.bham.ac.uk/7033/
Abstract
Background: Guidelines suggest that rehabilitation for people with stroke should adopt patient-centred goal-setting (PCGS).Methods: A literature review and two qualitative studies were done in an acute stroke-unit. Study one aimed to explore influence of PCGS within stroke rehabilitation. Patients with stroke, with ability to participate and staff caring for them were included. Data collection involved interviews, observations, document analysis and focus-groups. Analysis involved sequential and intra-case analysis methods.
Study two aimed to build a resource to improve PCGS and evaluate its feasibility and appropriateness. Based on Study one and review, a resource (T-PEGS) was developed and applied in this setting. Patients with same criteria as Study one and staff who agreed to act as keyworkers were recruited. Data collection and analysis methods were similar to Study one.
Findings: Study one, with thirteen patients and twelve professionals, revealed limited application of PCGS due to participants’ health beliefs, limitations in knowledge and resources. Study two involved five patients and five staff who applied T-PEGS; recording of psychosocial goals, information sharing and rapport between patients and professionals had improved.
Conclusion: T-PEGS seemed to improve PCGS locally. Small study-size and single site limit generalisability. Future work should explore mechanisms and effectiveness of T-PEGS.
Subscribe to:
Posts (Atom)