Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Showing posts with label provisional protocol. Show all posts
Showing posts with label provisional protocol. Show all posts

Saturday, November 20, 2021

Patients’ experiences of a Communication Enhanced Environment model on an acute/ slow stream rehabilitation and a rehabilitation ward following stroke: a qualitative description approach

So this is the partner to this enriched environment talked about by Dr. Dale Corbett in 2011?

Finally have a communication enriched environment for your hospital to set up. Did your hospital ever setup the enriched environment described by Dale Corbett? Why not? They love being incompetent?

Patients’ experiences of a Communication Enhanced Environment model on an acute/ slow stream rehabilitation and a rehabilitation ward following stroke: a qualitative description approach

 Sarah D’Souzaa,b , Deborah Hersha , Erin Godeckea,b , Natalie Cicconea , Heidi Janssenc and Elizabeth Armstronga a School of Medical and Health Sciences, Edith Cowan University, Perth, Australia; b Centre for Aphasia Recovery and Rehabilitation Research, La Trobe University, Melbourne, Australia; c School of Health Sciences, Hunter New England Local Health District, NSW Health, Australia 

ABSTRACT 

Background:  
 
Patients in hospital following stroke express a desire to continue therapy tasks outside of treatment activities. However, they commonly describe experiences of boredom and inactivity. An enriched environment aims to provide opportunities for physical, cognitive and social activity and informed the development of a Communication Enhanced Environment (CEE) model to promote patient engagement in language activities. 
 
Purpose: 
 
Explore patient perceptions of a CEE model, and barriers and facilitators to engagement in the model. Methods: A qualitative description study from a larger project that implemented a CEE model into acute and rehabilitation private hospital wards in Western Australia. Semi-structured interviews were conducted with seven patients, including four with aphasia, within 22 days post-stroke who had access to the CEE model. 
 
Results: 
Patients described variable experiences accessing different elements of the CEE model which were influenced by individual patient factors, staff factors, hospital features as well as staff time pressures. Those who were able to access elements of the CEE model described positive opportunities for engagement in language activities. 
 
Conclusions: 
While findings are encouraging, further exploration of the feasibility of a CEE model in this complex setting is indicated to inform the development of this intervention. (So write up a provisional protocol on this since no followup will occur. Survivors can at least get some recovery from this.)

IMPLICATIONS FOR REHABILITATION  

Patient access to a CEE model is challenging in a hospital setting.  Patients who were able to access elements of the CEE model described positive opportunities for engagement in language activities.  Patients’ access to the CEE model was influenced by patient factors, staff factors, hospital features as well as staff time pressures. ARTICLE HISTORY Received 15 February 2021 Revised 26 July 2021 Accepted 29 July 2021 KEYWORDS Stroke; aphasia; Communication Enhanced Environment model; enriched environment; rehabilitation 

Introduction 

 
It is recognised that the environment can influence neural remapping during early stroke recovery [1]. However, the current hospital environment may reflect what is considered impoverished [2–10] with patients following stroke spending large proportions of their day alone and inactive [11]. Patients in hospital following a stroke express a desire to continue therapy tasks outside of treatment tasks, perceiving time outside of therapy as an opportunity to practise rehabilitation activities within the real-world environment [12]. However, boredom is commonly experienced by patients which has the potential to negatively affect their engagement in rehabilitation [13]. Patients report that a lack of meaningful activity is strongly associated with boredom [13]. Boredom is highly correlated with depression and apathy and is perceived by patients to negatively affect their participation in stroke rehabilitation [13]. Patients following stroke perceive a lack of stimulation and inactivity impacts their ability to “drive” their own rehabilitation outside of therapy, describing their time outside of their therapy as “dead and wasted” [12].(p4) Nurses have been observed to be the most common communication partner for patients after their family members [14]. However, nurses in a stroke rehabilitation unit report that time constraints often limit their capacity to comfort, talk with and provide education to patients [15]. This lack of time for communication and education has also been identified by patients who “did not like to bother the busy nurse” [16]. Aphasia is a communication disorder that occurs in approximately 30% of stroke survivors [17] and affects all modalities of communication including speaking, listening, reading and writing. Aphasia is associated with higher levels of disability and has significant negative consequences for social participation, interpersonal relationships, autonomy, capacity to work and quality of life [18]. Patients with aphasia (PWA) following stroke have been observed to spend less than 28% of their day communicating with others and 44% of their day alone during their first weeks of inpatient rehabilitation [14]. Limited opportunities for language use, and engagement in meaningful activity and social interaction may negatively impact aphasia language recovery [3] and have adverse consequences for health-related quality of life [7]. This places PWA at increased risk of developing learned non-use of language as a result of inadequate opportunities for communication [14]. An enriched environment (EE) aims to provide greater opportunities for physical, cognitive and social activity and has been shown to contribute to significant improvements in neuroplasticity, motor recovery and a trend towards significant improvements in cognition in animal stroke models [19]. Application of EE in an acute7 and rehabilitation unit [20] setting has been shown to significantly increase patient engagement in physical, cognitive and social activity. Aphasia is a complex language impairment and PWA may need support within an EE. The principles of EE informed the development of a Communication Enhanced Environment (CEE) model to facilitate engagement in language activities for patients following stroke, which incorporated the needs of those with aphasia [21]. The definition of language activities encompassed any activity that involved the use of language including both solitary (i.e., reading, writing) and interactive (i.e., talking or listening to a communication partner) language activities. This CEE model was co-designed with hospital staff and considered hospital policies and procedures and incorporated evidence-based strategies, expert opinion, [21] and staff and patient-perceived barriers and facilitators to their engagement in language activity following stroke [22]. The CEE model sought to promote access to physically enhanced communal spaces, trained communication partners, resources, and organised social activities [23]. Results from piloting the CEE model found that 71% of the model was reported to be available to the intervention group [21]. Additionally, the intervention group who had access to the CEE model engaged in higher, but not significant, levels of language activities (600 of 816 observation time points, 73%) than the control group (551 of 835 observation time points, 66%) [21]. This study sought to explore patient perceptions of communication interactions and language activity including the perceived barriers and facilitators to engagement in the CEE model during their hospital admission. The specific research questions were: i. What are patients’ perceptions of communication interactions and language activities during their hospital admission following stroke where the CEE model was implemented in usual care? ii. What do patients perceive to be barriers and facilitators to engagement in the CEE model.
 
More at link.

Sunday, June 7, 2020

Towards the integration of mental practice in rehabilitation programs. A critical review

You'll have to demand your doctor get these protocols. S/he has only had 7 years to get them so ask why they are so fucking incompetent.  And the earliest research referred to is back to 2000, so 20 years of incompetency, how fucking long will you allow that to continue? It is your responsibility to get competence in your stroke hospital, that leadership(board of directors) is completely failing.

Towards the integration of mental practice in rehabilitation programs. A critical review

Front. Hum. Neurosci., 19 September 2013 | https://doi.org/10.3389/fnhum.2013.00576
  • 1Département de Réadaptation, Faculté de Médecine, Université Laval, Québec, QC, Canada
  • 2Centre Interdisciplinaire de Recherche en Réadaptation et Intégration Sociale, Québec, QC, Canada
  • 3École de Psychologie, Université Laval, Québec, QC, Canada
  • 4Centre de Recherche de l'Institut Universitaire en Santé Mentale de Québec, Québec, QC, Canada
Many clinical studies have investigated the use of mental practice (MP) through motor imagery (MI) to enhance functional recovery of patients with diverse physical disabilities. Although beneficial effects have been generally reported for training motor functions in persons with chronic stroke (e.g., reaching, writing, walking), attempts to integrate MP within rehabilitation programs have been met with mitigated results. These findings have stirred further questioning about the value of MP in neurological rehabilitation. In fact, despite abundant systematic reviews, which customarily focused on the methodological merits of selected studies, several questions about factors underlying observed effects remain to be addressed. This review discusses these issues in an attempt to identify factors likely to hamper the integration of MP within rehabilitation programs. First, the rationale underlying the use of MP for training motor function is briefly reviewed. Second, three modes of MI delivery are proposed based on the analysis of the research protocols from 27 studies in persons with stroke and Parkinson's disease. Third, for each mode of MI delivery, a general description of MI training is provided. Fourth, the review discusses factors influencing MI training outcomes such as: the adherence to MI training, the amount of training and the interaction between physical and mental rehearsal; the use of relaxation, the selection of reliable, valid and sensitive outcome measures, the heterogeneity of the patient groups, the selection of patients and the mental rehearsal procedures. To conclude, the review proposes a framework for integrating MP in rehabilitation programs and suggests research targets for steering the implementation of MP in the early stages of the rehabilitation process. The challenge has now shifted towards the demonstration that MI training can enhance the effects of regular therapy in persons with subacute stroke during the period of spontaneous recovery.

Introduction

The ever-increasing number of publications attests to clinician expectations of mental practice (MP) through motor imagery (MI) as a means of promoting the recovery of motor function (for a review see Malouin and Richards, 2013). MP not only provides a unique opportunity to increase the number of repetitions in a safe and autonomous manner without undue physical fatigue, but it also allows the mental rehearsal of motor tasks when and where the patient wants to, or is able to, practice. Furthermore, MP enables the rehearsal of more demanding or complex motor tasks (e.g., walking, writing) when physical practice is impossible or too difficult. Yet, despite these obvious advantages, MP is a complex mental process that is not readily amenable to be integrated into clinical practice. To date, in most published studies, MP has been used within constrained research environments to meet the requirements associated with research methodology.
As highlighted by several review papers concerning the use of MP in rehabilitation, (van Leeuwen and Inglis, 1998; Jackson et al., 2001; Braun et al., 2006; Dickstein and Deutsch, 2007; Zimmermann-Schlatter et al., 2008; Dijkerman et al., 2010; Malouin and Richards, 2010, 2013) there are marked differences in designs, research protocols, training regimens and outcome measures among the growing number of studies. Despite this heterogeneity, positive effects of MP on motor function have been generally reported. However, Braun et al. (2006), in a systematic review of five selected randomized controlled trials (RCT), stated that although there was some evidence that MP as an adjunct therapeutic intervention had beneficial effects on arm function, they were not able to draw definite conclusions(Well then, write up a provisional protocol, waiting for perfection is stupid.) and stated that further research with a clear definition of the content of the MP and standardized outcome measures were needed. In a more recent review that included six studies, Barclay-Goddard et al. (2011) also concluded that the combination of MP with other treatments appeared to be more effective than other treatments alone to improve upper extremity function. Based on their assessment with the PEDro scale, the quality of the evidence was moderate. Likewise, in their systematic review of 15 studies, Nilsen et al. (2010) attested that when MP was added to physical practice (PP), it was an effective intervention. Nevertheless, they also mentioned that further research was needed to identify those patients most likely to benefit from training, the optimal dose, and the most effective protocols.
These reviews, however, did not include the findings originating from recent multicenter RCTs (Bovend'Eerdt et al., 2010; Ietswaart et al., 2011; Braun et al., 2012; Timmermans et al., 2013) in subacute patients that have attempted to integrate MI training in regular rehabilitation programs. Not only did the addition of MP to conventional training on all tasks fail to yield better functional outcomes than conventional training, but the low compliance of therapists (Bovend'Eerdt et al., 2010; Braun et al., 2010, 2012) and realities related to patients such as advanced age of those in nursing homes (Braun et al., 2012) point to some of the difficulties encountered when attempting to introduce MP into regular clinical practice. The findings of two recent RCTs, (Ietswaart et al., 2011; Timmermans et al., 2013) did not confirm the additional benefits of including MI training in the rehabilitation program aimed at improving upper limb function. Despite meticulously designed MI training that included a variety of approaches (action observation through mirror therapy, implicit imagery, and self-practice), patients with subacute stroke did not show additional gains in the performance of activities of daily living (ADL) (Ietswaart et al., 2011). Altogether, these latest findings reflect the complexity of integrating MP into regular rehabilitation programs. Thus, this review scrutinizes the current application of MP, and from this analysis proposes a framework for its integration into usual rehabilitation programs.

Rationale Underlying MI Training

With the turn of the twenty-first century, we have witnessed the emergence of clinical studies designed to investigate the effects of MP on the relearning of motor skills in persons with stroke. The rationale for using MI training to promote the relearning of motor function arises from research on the functional correlates that MI shares with the execution of physical movements. It is now widely recognized that the duration of mentally simulated actions usually correlates with the duration of real movements (temporal coupling), that the simulation of movements evokes similar autonomic responses and that the imagination of an action or its physical execution engage largely similar neural networks (Decety and Boisson, 1990; Decety et al., 1991; Decety and Jeannerod, 1995; Wuyam et al., 1995; Decety, 1996; Decety and Grèzes, 1999; Lafleur et al., 2002; Malouin et al., 2003; Fusi et al., 2005; Munzert and Zentgraf, 2009; Hétu et al., 2013). These similarities led to the notion of functional equivalence. Thus, real and covert movements during MI obey similar principles and share similar neural mechanisms, likely explaining the beneficial effects of MP on motor performance (Jeannerod, 1995).