54 days old...

Just a quick update before the day gets started...

Connor keeps on growing - he's now 4 lbs, 4 oz!

Unfortunately, life without the nasal cannula was a little short-lived. He had a good day without it, and then started having too many bradys and desats (likely due to low blood volume). So, he's been back on the cannula, but he's at room air with a very low flow. For his surgery, he'll have to be intubated again anyway (and back in the isolette).

For a little while we were concerned that his vocal cords had possibly been damaged by his first intubation, because we hadn't really heard him cry since before Christmas. After he was extubated he barely let out squeaks here and there when he would get upset. This week, he's found his voice! While you don't like to hear your baby crying, I must admit Brian and I were relieved to hear him wailing the other night (and I think Connor was a little surprised, too). Each day when he gets upset (which really isn't very often at all), he gets a little louder, a little stronger... kind of like he's rediscovered the fact that he can make noise.

His enema went well on Wednesday, and so far, they don't see any evidence of strictures in his lower bowel. I got to be in the room with him, holding him still during the procedure... Connor is one brave little boy!

Looks like his surgery may happen as early as Monday. The sooner he's put back together, the sooner we get to bring him home. Please continue to keep him in your prayers.

Other than that, he's just been hanging out and getting stronger... just waiting for surgery.

I'll post more pics in the next few days...