Mr Mog is out of hospital, he ended up staying 5 days and came home with a back brace. He has to wear it all the time he is out of bed because his discs are collapsing. He has lost over 5inches in height and going on for 3 stone in weight loss. He has no appetite and is on fortisips from doctor . He can only taste citrus or spicy flavours . Jelly is a favourite breakfast. He is eating a fraction of what he did so the drinks help to provide essential nutrients. We have been assessed by Macmillan and a plan of sorts has been created. Mr Mog does not want to go back into hospital and they have decided that if (when) he needs more care it will be Hospice at Home. Occupational therapists have brought some essential stools etc for washing. He had a very relaxing hand massage at our local cancer centre on Monday and I had counselling . It helped to talk to someone who wasn't family or friends as sometimes I feel I am dropping all my fears and tears on to them. Next week is palliative pain clinic Monday followed by oncology Tuesday . Mr Mog is going to tell oncologist he doesn't want any more radiotherapy ,or at this stage, radium.
I am driving , Mr Mog hasn't to drive now he has the back brace. Not that he can as he is very wobbly and not quite with it a lot of the time. The drugs I suspect play a big part in that.
We have discussed apres death plans. He thought he might like his ashes taken to Glastonbury but then decided the Lake District was the place for him as he has spent so much time there cycling. He has given away his 2 cycles to family members and that was very upsetting as he has cycled all his life. But he didn't want to keep them as a reminder of what was. I've persuaded him to change his model rail layout as he had planned. So he sold all his OO gauge trains and vehicles to fund an extension to his O gauge layout. It's been wonderful to see him planning tracks etc. We all need hope , it helps on low days.
We have also planned a bucket list of things Mr Mog would like to do. Zoo visits, Glastonbury and Scotland to see old friends are all on it. I am encouraging him to think of others.
So that's where we are now.
I have very painful carpal tunnel in both wrists/hands. It has been keeping me awake. I've now got wrist splints and I am having more steroid injections as soon as there is space in clinic. I can't have operations, how would I care for Mr M or use my crutches during the recovery period?
Sorry no crafts to show. My heart hasn't been in it.
The musings and meanderings of a mixed media artist and yarn junkie who loves to knit,spin, crochet, make a mess, write and enjoy life. I try to follow the wheel of the year and enjoy each day of it. My art reflects that spiritual journey.
Showing posts with label bucket lists. Show all posts
Showing posts with label bucket lists. Show all posts
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Poetry for Brigid Imbolc
The Lake Isle of Innisfree BY WILLIAM BUTLER YEATS I will arise and go now, and go to Innisfree, And a small cabin build there, of clay a...
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I thought I'd have a little contest to lighten up the damp dark days we are having:) and also as a way of thanking you for the good thou...
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I am giving away the above yarn. There is over 300gm in the 2 skeins of Wollmeise you see before you. I've started a shawl, pattern i...