Thursday, December 15, 2016

Toothpaste Hair and Walk for CF

Trying to put things in order as much as possible.  But I can't remember when all of these things happened.   One day I noticed Annalisa had blue hair.  One quick whiff told me it was toothpaste.  Yuck!  That was fun to get out. 







Karl bought a loaf of bread at Jimmy Johns one day (you can buy their day old bread for really cheap) and Annalisa looked so cute eating it.


There was a Cystic Fibrosis Walk and Walgreens was running a water booth for it.  It turned out to be a fun event with booths of games, balloon animals, and chick-fila sandwiches for lunch.
 Steven got Kylo-Ren's light saber





 Anna got a butterfly on a stick




 Summer got a pink horse (at least that is what I think it is. 



The Walgreens booth manned by the most handsome store manager ever!

On the drive home,  Steven told us he felt dizzy.  I was a bit concerned but it passed quickly.  A few days later he said he felt dizzy again.  So we took him to the doctor.  He sent us to the hospital for bloodwork and an EKG.  All came back normal so we scheduled an appointment with the neurologist at Primary Children's Hospital.  He checked out fine there too and then we were sent to a cardiologist.  Also checked out fine.  Recently we just went to an ENT and he checked out ok there too.  So all these months later we still don't have any answers.  Very frustrating and it worries me.  He still occasionally has dizzy spells.  And we don't know why. 

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