Showing posts with label Chronic pain. Show all posts
Showing posts with label Chronic pain. Show all posts

Wednesday, May 2, 2012

Levity, Lessons and Love

For those of you who have been visiting my little blog spot in Etherland for awhile, you might actually recognize the man in the lobster shirt with the Shitzu on his head.  For anyone else who might have just happened by while innocently looking up information on Shitzus first off, I apologize.  The dog likes it up there, he really does.  Second, allow me to introduce my father and my dog-brother.  No, I was not adopted(although my dog-brother was) and yes, my daughters think that I am just as much of a nut as their grandfather is only when he does things the girls think that they are much, much funnier than when I do them.  Pop-Pop gets all the laughs and I mostly get the eye-rolls.(Must be a generational thing, I am looking forward to my future grandchildren.)
When my father and my step-mom first adopted this little guy, his name was Augustus or Auggie for short.  Very befitting for a Shitzu residing in Palm Springs.  After a few days, they realized that he was more like a battering-ram on four short legs than a sophisticated little dumpling so they started calling him Rambo.  And as incongruous as the name Rambo and those beautiful eyelashes are, the name really suits him.  He follows our father around like an enormous watchdog would, barking at anything that he perceives as danger.  He recently received a new sister named Lizzie.  She is a wire-haired Dachshund.  She might need some doggie Prozac.  She makes Rambo look very, very calm.  Very calm.
But of course, then there is my human family.  This includes both my children and,

their grandfather, my father.

There is a sign that I have hanging up in our mountain house.  It says, "My family tree is full of nuts."  This is not a figure of speech in my case.

Over the course of the past several years, I have boiled most of those nuts down to the good kind because unfortunately, I also have my share of the other kind.  The kind that will constantly give you indigestion and heartburn all the while expecting a pass-go pass for forgiveness.  Which is something that I do: forgive.  Sadly, forgiveness cannot always include a free pass on forgetting which is something that they also expect without repercussions.  They seem to confuse the two, and up until fairly recently, I had a difficult time with the concept as well.  I not only forgave the abhorrent behavior but tried my best to forget about it, too.  But I think that this is just one of the many lessons that I am here to learn and for the most part, it is a good one for me because I am getting it.  I can forgive without trying to forget.  It is actually quite important to remember.  It breaks my heart more to move ahead in these stale relationships that cause me more pain than pleasure.  I think it is time for someone other than myself to put actual effort in to learning from life and then using those lessons to improve upon how the behaviors might adversely affect somebody else.  Patterns are very difficult to break, but if everyone involved continues dancing the same dance, then nothing will ever change.  Nothing will ever improve.  Nothing will be learned.  And nothing will be gained.
So, I am learning to embrace the "nuts"  who are willing to grow along with me, while distancing myself from the ones who leave a horribly bitter taste in my soul.  I mean, I enjoy pecans.  Walnuts, not so much.  So instead of continuing to add walnuts to my brownies, I might add some extra pecans.  Makes sense, yes?
A couple of weeks ago, we went out to Palm Springs to spend the weekend with my dad for his birthday.  Living two hours away from each other is hard and although we speak on the phone almost everyday, we do not get to see each other nearly enough.
We all arrived on different days and at different times, but everyone made it and we had a really nice trip.  My dad can make me laugh harder than anyone else in this world.  Not only that, he is as intelligent and as big-hearted as a man can be.  He mentors my daughters as if they are his own and motivates them to do things that Mark and I could never convince them of.(Once again, that generational thing.)  Would you believe me if I told you that he has several projects going on right now, one being that he is seriously considering opening up a college in China???  Who does that?  Who even believes that they are capable of doing that?  This man's mind is never, ever at rest.  Lordy, lordy...
Angel Daughter Number Two and Joshua drove out to join us on Saturday and stayed with my dad and Rita.  The rest of us stayed at the beautiful La Quinta resort across the street from their house.  We like it there and we can bring our thirteen year old pup, Becca, so it works out perfectly.  Becca is getting to the point in her life(and mine) where I do not feel comfortable leaving her with anybody else so we just set her up in the backseat and take her along.  Makes me happy, happy.
The girls adore their grandma Rita so much.  Twenty-five years ago when our oldest Angel Daughter was born, my step-mom felt like she was too young to be called "grandma" so the girls all called her Rita.  Now, she loves it because when she goes out with them, people think that she is their mother.  She now readily admits that she is their grandmother and qvells(Yiddish for "bubbles over with joy") when people don't believe it.  Too, too cute!  The girls absolutely love going into Rita's closet and coming out with all sorts of goodies that she doesn't wear anymore.  How many grandmothers can claim that?
Three generations.  This is what makes me happy.

I had to share a photo of a Palm Springs traffic-jam.  When Mark pulled up behind this golf-cart, I couldn't resist snapping some photos.  Yup, life is hard in my father's neighborhood.
On our way home from Palm Springs, I am always fascinated by the miles and miles of desert covered in windmills which seem to magically sprout up from the mostly baron land.  Leave it up to human ingenuity to take advantage of a natural resource that cannot be seen(the wind), and utilize it to create power for thousands and thousands of homes.  Something from what seems to be nothing.  There is so much beauty in the thought of that.

Update:

I am grateful to everyone who follows my blog either silently(I can feel your presence but don't be shy, say hello sometime:)), or those of you who have become my dear friends.  Thank you for all of the comments and e-mails and phone calls(Hi Nessie!) that you left for me after my previous post.  At first, I considered not writing anything at all about what I was going through, but then I decided that it was important for me to be authentic about my life when I write here because that is why I write here.  Life is messy sometimes and that goes for every life.  The object is to learn from both the wonderful times and the messy ones.  Things are better now.  I was able to verbalize the truth about what I was really going through over the course of the past four plus years since Robert's death, culminating in a pretty bad depression during the past few months or so to my husband, Mark.  In doing so, I have also come to terms with something that was pretty damn hard to admit.  I have been in a pretty big hole for awhile now.  I did not write much about the court case seeking visitation with my nieces after it ended a few months ago.  I thought that I would be able to handle the verdict regardless of what it was.  I thought that if a judge told me that I have no rights to my deceased brother's children, that I could accept it and move right along with my life.  I thought that I had properly grieved for my brother.  The truth is that what I should have known is that that was a bunch of crap.  I didn't consider that I would actually have to grieve the loss of my two nieces in the event that the court case did not end in my favor.  Unexpected feelings sucked me into a place of isolation which in turn, caused my physical pain levels to soar, which in turn spiraled my entire body into a flare.  My family, not really understanding what I was going through, made some major assumptions because those assumptions would have actually been much easier to deal with than depression, especially because I have never been seriously depressed before.  I am a very happy person and even though I have difficult days, essentially, I snap out of it very quickly. I don't think they knew what to do with me.  They did what they thought they needed to do and for that, I love them.

I am feeling much better now because I was able to acknowledge and in turn, got Mark to understand that what I was going through was profound sadness.  I have taken some steps toward healing but this will take some time.  There is no time table for grief.  There are still some things that I feel that I have to do before I can move ahead such as visit my brother's gravesite for the first time since the day of his funeral.  I know that his soul is often with me, but I can no longer use that as an excuse for not visiting the place where his body will forever remain.  I have been examining the reasons that I have stayed away and it is now time for me to go whether alone or with my husband.  I am not sure what I will feel after doing this, but it is something that I must do.  It is only right.

So here I sit, in a place of acceptance, forgiveness and contemplation and I am doing okay.  I am proud of myself for being a strong woman just as my grandmothers and great-grandmothers were.  There is a very tough gene residing someplace within my body and I am pretty sure that this gene has been inherited by my four beautiful daughters.  I mean, I may not agree with the way that they went about doing things, but I admire them for doing something.  I admire them for being proactive.  I admire them for not giving up on their momma.   It is an odd feeling knowing that one's own children are turning into adults right before their eyes and it is new territory for all of us.  If I have taught my girls nothing else, at least I know that there is one thing that I have taught them for sure, to lean on one another and to stick together when life gets messy.  Because it is so much easier to clean things up when you share the job with someone else whose motives are in line with your own.

Wishing you peace, my friends.





Sunday, April 15, 2012

Coming up for More than Just Air

Just a few photos that were taken over the past month and a brief explanation as to where I have been hiding.  Even in the midst of mostly joy, life can be very messy and sometimes we must spend some time trying to clean it up.  More about that later...
Angel Daughter Number Three turned 20 on the first day of spring.  She is becoming such a beautiful and mature young woman with such a great head on her shoulders.  I am prouder of this child than I can even express.  She has been through some rough times but instead of becoming jaded and delving inward, she reached out and in doing so, has shown a level of maturity beyond her two decades.  I can only see her life getting better and better as she continues to grow into the lovely woman that she is.
My oldest and my youngest.  There are six years between these two(with two other sisters in between) and sometimes, it is as if they grew up in different worlds.  We often talk about the differences in the things that AD1 was allowed to do when she was AD4s age at various points in time, and there are some huge differences!  That being said, they are both wonderful girls with so much to offer the world.
I am such a lucky momma.

And Mark is such a lucky dad...

Okay, so my 20 year old is a little bit taller than I am.  She is also wearing heels that double the difference!

Angel Daughter Number Two congratulating her little sister after her dance competition in Long Beach.  It has been a great season!

So here it all is in a nutshell:

On March 26th a very unexpected crap-storm came flying at me from what seemed to me to be out of nowhere.  Actually, it did come out of nowhere for me because I had not been privy to the conversations which were taking place over the course of a couple of months.  It blew in from the mouths of those I love and trust most in this world, forcing me to stand mostly on my own, confused, frightened and in immense pain.  I felt like a cornered animal who was being forced to explain fangs and claws and venom while trying to protect myself.  Chronic illness, chronic pain, and chronic fatigue are symptoms that I am forced to live with because of an illness that will more than likely be a part of me until the final day of my life,  but they are also enemies of the people who I love.  Aside from the life that this illness has attempted to take away from me, it has also robbed my husband and my daughters of the very vibrant person I was before the focus of my days became staving off the constant pain and lethargy, trying desperately to conserve the minimal reserve of energy that I am left with after fighting a daily, hourly, momentary battle with something that even I, myself, do not fully understand.  I understand their frustration.  I am sensitive to it and do my best to remain cheerful and positive in the face of the physicality of feeling like hell much of the time.  But having lived with this mysterious illness throughout some of my younger twenties and then again, after a long remission, for the past decade during my forties, my acceptance of what is apparently appears to be complacency to my husband and daughters.  I readily admit that it is often easier to give in to the physical pull to remain inactive physically so that I can be emotionally present for the people who are so important to me, yet it is difficult for them to comprehend what it is like to live with constant, chronic, nagging, sometimes severe physical pain.  I get that.  I do not dwell on it too much which sometimes creates a false veneer over the truth of what I go through.  Maybe this makes it harder to comprehend?  I forgive them for their chosen approach.  I know that it came from a place of worry and concern.  I do, however, wish that things had been handled very differently.  Feeling ambushed is an extremely lonely and helpless feeling, especially when the individuals who were helping to fuel the charge knew nothing about me personally and had a huge financial gain as their main interest.  This is the one part that I am having trouble not resenting.  Strangers should never, ever have been involved.  I think that we have reached a point of understanding.  I am making some changes in my medications which might enable me to feel less sleepy during the day(under my doctor's care).  I am also increasing my activity levels so that I can better keep up with these five, very energetic, very healthy people who I love so much.  I may or may not choose to write more about this in the future.  It has been extremely painful for me.  If I do, it will be to inform and assist others who might be in the same sort of position that my family and I are in.  Having a family member who is chronically ill is not an easy thing to cope with, but being that family member is always worse.  Please be gentle with those you love, but also be gentle with yourself.
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