Friday, January 2, 2009

Today marks the day

A year ago today, our heart journey began. We had taken the boys with us to the follow-up ultrasound, and little did we know of the news we were about to hear. We knew that this ultrasound was to double-check all 4 chambers of the baby's heart, since at our routine 20 week ultrasound the tech had problems finding all 4 (Maddie was breach at that ultrasound so they didn't make a big issue of it), as well as to check the placement of the placenta...it's weird, but I was more worried about the placenta. With each of my babies, I've had a follow-up ultrasound to check something so I wasn't too alarmed with this one. I had no idea that the world of Congenital Heart Defects existed.

I'll never forget how I felt while lying on that ultrasound table, the technician quietly performing her tasks, not uttering a single word to us even though we were pelting her with questions. We sensed something major was wrong at that point, just by her facial expressions and the tense atmosphere. Our questions stopped. After about 30 minutes of this, she went to get her supervisor, the radiologist, to see if she could get better pictures of what they needed. While she was out of the room, Bryan and I sat quiet, shaken, and in shock of what was happening. We were completely blindsided. After she returned, which seemed like an eternity later, we were told that our baby's heart had some suspected abnormalities. The right ventricle was very small, she mentioned the word, "hypoplastic", and they were referring us on since they didn't feel that they should make a diagnosis. We asked many questions but the radiologist and technician wouldn't really answer them. Listening to them whisper back and forth while they were looking and pointing at the screen was extremely agonizing...we felt so helpless and confused.

After the ultrasound was complete, we were told to go wait in the waiting room while they talked to my doctor about the findings. Bryan and the boys went out to wait while I made my way into the bathroom where I completely lost it. I couldn't fight back the tears and found myself uncontrollably sobbing. How could this be happening to me? my baby? my family? WHY? This wouldn't be the first time I'd ask the question "why" (I still do at times), or that it wouldn't be the first time I'd lose it in a hospital bathroom! That's where most of my weak, furious, and desperate feelings have been unleashed. God and I have had some rounds in hospital bathrooms!!! When I finally composed myself, I went out to wait with my family. As I sat down and looked ahead, through bleary, swollen eyes, I noticed that the pregnant, young girl sitting across from me had a very large tattoo on her neck/chest. Now, I don't have anything against tattoo's but this one definitely caught my attention and just rubbed me the wrong way. She was wearing a low-cut shirt to reveal the big colorful artwork....her tattoo was of a heart. Not the shape of a heart but the anatomy picture of a heart. Her tattoo was of an actual heart, I can still see the aortic arch! God does work in mysterious ways, so maybe he thought I needed a visual since I was still trying to wrap my brain around my baby not having 4 symmetrical chambers, after all, I am a visual learner. What irony, and I couldn't help but stare at it. At that moment I immediately thought, I'm sure her unborn baby is healthy and just look at her...she's an unfit mother and just too young to be one. I don't know what her story was or how anything turned out for her and I never will. I do wonder why though, at that moment, she symbolized (or her tattoo rather did) the news that I had just received...my baby's anatomical heart was broken and mine was shattered. I was very angry and extremely judgemental of a little girl that I didn't even know and I'd probably never see again. I did refrain from glaring at her, although I remember she kept staring at me, probably wondering why I looked so horrible, mascara streaks all over my red face for I had just cried the very "ugly cry" and was still trying to get a grip. To this day, the image of that tattoo is stuck in my mind.

If you were to ask me what I envisioned the prognosis of the news of our baby's heart would bring a year ago, it would not have been this. Life is good. Yes, 2008 was a challenging year...but we did it! SHE DID IT!!! And Miss Maddie continues to beat the odds each and every day with her defected heart. That's what "having heart" is truly about. And since this blog is a journal of sorts, I thought I shouldn't refrain from sharing the ironic tattoo story. Plus, Maddie might find this funny to read someday. It is part of her heart journey, actually marking the beginning of it. I just hope it won't give her any big "body art" ideas when she's older...

14 comments:

Faith M. said...

Great Story! I love hearing every single heart story because they are all different in some way. God chooses to give each of us a different aspect to share, and He is and was in control at all times even when we are crying the "ugly" cry in hospital bathrooms. :-)

Anonymous said...

I just read your story and it just reminded me of what a special person you are and how much you've overcome in the last year. I can't believe it's been a year! You're baby girl is truly remarkable and I have enjoyed getting to know her even better lately! Such a go getter! Love you guys, Danyel

Worsham Family said...

Thank you for sharing that story. Miss Maddie isn't the only one who will benefit from hearing it. I have said this before, but you are truly an inspiration to me and everyone else who gets the privilage of knowing you!!! May 2009 be your best year yet. Love Shelli

Anonymous said...

Katie~ Such a great story! I think it is so awesome how after a "storm" we can sit, look back and reflect and see the blessings and how God was always there even in the smallest ways =) Shelli is right...you are an inspiration and I am one of those who feels privileged to know you! Lot of Love, Krista

The Mason Family said...

Isn't it crazy how "that day" is so fresh in your mind? We were told that Carlie's position didn't allow them to see all four chambers and that we should have a follow-up visit. I just blew it off as that, but now that I look back on it, all the signs were there (I mean why would they send me to a perinatologist to have another look because of position)...Caiteyn was also with us at "that appointment" and I remember LOOSING it and her asking both Mike and I "Mommy, Daddy why are you crying?" How do explain what is going on to a 2 year old when you don't even understand yourself? "That day" has changed so many of our lives and has also brought so many of us together…

I’m so glad that Maddie continues to do well and that our girls have brought us together…best wishes!

Miller Family said...

I've been wanting to share with you what I learned from our sermon last Sunday. Pastor read John 9:1-12 about healing the blind man. The disciples had asked Jesus who had sinned, the man or his parents for him to be blind. The words that struck me were "Neither this man or his parents sinned, but this happened so that the work of God might be displayed in his life." Thank you for showing us God's work through Maddie. Thank you for sharing your faith and helping us grow stronger in our faith. Thank you for sharing Maddie with us and allowing us to share her story with others. And thank you for this post and sharing your raw emotions with us. I think Maddie would love to read about the tatoo someday. God works in mysterious ways. Love, Michelle and family

michele said...

Sharing your journey has been a blessing to many. Your grateful heart, your positive attitude and your FAITH inspire me. Once again Katie, you have me in tears. With love, M

Unknown said...

Katie,

I love to read your posts. You always have me crying. This was such an incredible journey that you all have been on. You are such an incredible person and I am so lucky to have you in my life. I am lucky to get to be part of Maddie's journey. I love you all so much and I hope that all continues on this great path that she has been on so far. We are all lucky to have you and Moomers in our lives.
Our love goes out to you! Jessica

Anonymous said...

Wow Katie- is about all I can say. God is amazing and honestly a person with a tatoo of the anatomy of a heart at that time. It is hard to believe that is wasn't planned that way. Talk about goosebumps along with the tears. Maddie is so special in so many ways and you are amazing Katie. The unknown is the scariest thing out there to me and you have had to face it time and time again. I wish so bad I could snap my fingers and make all the worry go away for you. Hard to believe a year has passed. I am so glad all is going well and you were able to have a very special Christmas with a very special little girl who is the cutest ever. Love, Randee

The Simmons Family said...

THAT DAY was a day that I bawled like a baby too. I was frustrated and all I thought was "WHY MY BABY?" I have since realized that it's my baby because he is AMAZING and has made me stronger than I thought I could be. They are OUR babies because we are strong mommas who capable to handle their precious conditions. We are the LUCKY ones!!

Maddie is adorabe... I LOVE the Christmas pictures and she always has the most adorable dresses and bows!

Andrea

Anonymous said...

Wow Katie, thanks for sharing your story...We love your family and are amazed with Maddie :)

Courtney said...

I know I have said this before But Katie you are so amazing, that is such a neat story! You and your adorable family are such an inspiration, thank you sharing this journey!

Teri Martin said...

I am 30 years old and I was born with HRHS PA/IVS. I just wanted to let you know I started a blog this year. Where I am featuring adults with CHD where they tell their stories and answer question from parents. I hope you will come by and visit our site.

http://inspiringhearts.blogspot.com

Anonymous said...

It's strange...that we all have such similar stories which are, at the same time completely different. I like to hear about the little "signs" placed before each of us. I can also remember "the day" we found out. Every detail will remain etched into my mind(forever I'm sure)I'm glad to hear that Maddie is doing so well, I check in on your family often(just don't always leave a message)I am terrible about updating Braeden's blog, but know that I need to soon!

Heart hugs,
Stephanie and Braeden(HLHS)
Carepages.com/babyhusted