Surprise! 5th Birthday

It has been years since I have updated here.  For anyone still checking in or receiving notices I wanted to again thank you for your prayers and support during our difficult first year.  I have writer's block that I can't fully explain.  Part of it is because it's Ella's story, not mine.  I'm sure I have a few mental blocks from our experiences as well.  Time is always the key factor... 

But she is FIVE!

Ella is finishing her second year of preschool and preparing to head to kindergarten in the Fall.  She loves music, books, animals and being silly.  She has spastic quad CP.  This means she needs support sitting, standing, walking, eating, dressing, and is non-verbal.  She also has Short Bowel Syndrome (SBS) from her NEC surgeries.  She still has a g-tube for her nutrition but she does love to eat soft foods. 

Here are some pictures from her super-fun birthday party over the weekend at a local little "zoo". 

And for those of you who have reached out to me... thank you!  I'm sorry I have not responded to everyone individually.  My email has been littered with spam and if I don't respond immediately emails get lost forever.