Monday, March 31, 2008

Fun Monday #7

Thanks for coming back for more Fun Monday. For anyone wanting to read "How I Met the Smalltown Fire Department" (better known as my most embarrassing moment), that was referred to in the last FM, look here.

Robin, the penseive one has asked us to share words of inspiration.

When I first read the assignment, I was a little.....blank. One of those down times. There are the old tried and true, "one day at a time," "think positive," "I am not adverse to miracles" (and now you appreciate the dark side of an oncologist's life; yeah, that's about as inspirational as it gets on the bad days).

Perhaps, this doesn't even fall under the realm of inspirational, but for me, knowing where I picked up the phrase, it does. My inspirational phrase is: "Just keep on keepin' on." So often that is so right, and since I learned that phrase it has become a mantra for me. I am surprised when I hear patients say it back to me, knowing that they probably picked it up from me (a few of them even preface it with "as you always say, 'Jus' keep on keepin' on'." Right!)

I learned the phrase from a patient. Metastatic cancer had been diagnosed 5 years previously. The odds of this patient being alive at the 5 year mark was less than 1 percent. The patient had initially participated in a clinical trial where a portion of the tumor was taken and used to make a vaccine. About two weeks after the first dose of vaccine, spinal cord compression was diagnosed, and because of "progressive disease"the patient was taken off protocol (two weeks after a vaccination really isn't enough time for the vaccine to have an effect, especially when one is looking for an anti-tumor effect). The patient received radiation therapy, but was left paraplegic despite standard treatments with no sensation or strength in both legs. After failing standard chemotherapy (poor tolerance and progressive disease), the patient was placed on a drug called Iressa. Iressa was taken off the market after review of studies suggested that it did not provide the survival benefit that was initially thought. However, for this patient, the cancer slowly responded.

My nerd/geek like persona was fascinated. The fact that this patient was deemed to have progressive disease after one dose of the vaccine was unfair -- it happened far before one could anticipate there would be a significant immune response to the vaccine. I wondered if the combination of the vaccine followed by the Iressa was the key. I called the study coordinator -- he also seemed interested; thought there might be something to it, but I wander way beyond the realm of most of FM readers. These are the clinical observations that sometimes lead to further study; however, sometimes, what works for one person is unique to that person. The body is a very complex entity -- job security for the scientists. Was this a miracle? Perhaps. As I wrote, I am not adverse to miracles.

This patient was what I consider early middle age when the disease was diagnosed. Because there was no immediate family for support, the patient was residing in a nursing home. When I asked about the cancer journey and the loss of independence, the response was "I just keep on keepin' on; I'll keep on as long as God wants me here." Sometimes, the phrase felt like a eulogy at the end of each visit, "Let's just keep on keepin' on." With time, that became a inspiration for me.

So, although the words "Just keep on keepin' on" may not seem very inspirational on the surface, for me they are inspirational. I know....way more than you probably wanted to know, and a bad foray into the land of cancer and cancer treatment, but....well...that's me. Otherwise, my inspirational quote of the day would be something like, "bark, bark, bark."

Just' keep on keepin' on, OK? We never know where I road might lead.

Peace. (You didn't think I would get through a whole post without somehow getting a dog in there a time or two, did you?)

Now, go visit the others participating in FM.

Janet, From the Planet of Janet
Swampwitch, Anecdotes, Antidotes & Anodes
Lisa, Lisa's Chaos
Jo, This is Jo Beaufoix...
Patience, Patience-Please
ChrisB, Ms Cellania
Ellen, The Happy Wonderer
Kaytabug, Lady K
Swampangel65, A Florida Journal
Mariposa, Mariposa's Tales
AOJ & The Lurchers
Carrie, Carrie & the Koehmstedts
Lisa, The Food Snob
Janjanmom, All in a Day's Work
Jan, The Prytz Family
Karina, Candid Karina
Celeste, Ragracers
Sandy, Myanderings
Alison, RDH Mom
Jenn, Simply Jenn
Pamela, The Dust Will Wait
Alix, DC Days
Deb, Deb's Buzz (One Crazy Stitcher)
Molly, Return of the White Robin
Junebug, God Put a Smile on My Face
Kim, Rainy Day Diamonds
Peculiar, How Do We Get There From Here ** FIRST FUN MONDAY! :)
Jenn V., Jenn's Inklings
Joy T., A Spot of T
Nikki, My Husband Calls Me Weird
Rotten Correspondent, Confessions of a Rotten Correspondent
Sauntering Soul
Jientje, Heaven in Belgium
Tiggerlane, The Neophyte Blogger
Beth, The First of Six
Rose, Rose's Garden ** FIRST FUN MONDAY, new blogger & Karina's mom! :)
Hootin' Anni, Hootin' Anni's
Melanie, Our Happy Happenings
Sayre, SayreSmiles
Jenn, Jenn and the City (FIRST FUN MONDAY!!)
Nutso, House of the Purple Worms

ADDED SUNDAY @ 7:30 p.m. EST

Katie (Kitten), Kitten's Homeschool
Faye, Summit Musings

Hulagirlatheart, Growing Older but Not Up
Kim & Randy, Nekkid Lizard Adventures

18 comments:

Anonymous said...

No tellin' how many times I've told myself to just keep on keepin' on...great one.
And as for the dogs, ALWAYS post pics of those pooches. Love everyone of them.

Molly said...

I imagine "bark, bark, bark" might mean, "Just' keep on keepin' on."

Sayre said...

Love them both! Some days are bark-bark-bark and others are just keep on keepin' on!

Pamela said...

It is a wonderful quote -- I'm not going to forget it. Especially with the explanation.

Faye said...

How great that your patient understood the power of just keep on keeping on--putting one foot in front of the other. Reminds me of another quote that I like--central to a life that works is forward motion.

Any post with a dog feature is a great one!

Jo Beaufoix said...

I think the simple ones are often the best. I'll remember this one. And bark, bark, bark. Brill. :D

Hootin Anni said...

yes....keep on keepin' on!!!!

kitten said...

Keep on keeping on is one I have to remind my self often.
Beautiful story.

ChrisB said...

It was lovely to read the story behind the words. It does actually stick in the mind!

Rose said...

That is a very touching story. That quote is so true.

IamwhoIam said...

Great FM post (wag wag bark wag)

Alison said...

great story Celeste...I like that quote.

Tiggerlane said...

Wow...what fantastic words, when put in that context.

And you know, I have great faith in medicine, with an RN as a hubby - but I also believe in psychosomatics. May make me a freak, but I feel like "mind over matter" can work on the body, too.

my4kids said...

I tell myself to "keep on keeping on" frequently.

BS said...

Great quote - your explanation was great.

Unknown said...

I like just keep on. :) I said a lot while going through chemo - nasty stuff - I'm gonna live, or die trying. May sound depressing but it wasn't to me.

Anonymous said...

Hi Celeste,

So, for me, I learned your profession; I missed that before now. Having lost my mother, maternal grandmother and paternal grandmother to cancer, I'm thankful for what you do.

Movin' on...

I've heard a few people use this phrase in real life, but for obvious different reasons. Yours is an inspiring story, laced with sadness and beauty.

Thanks for taking the time to explain...it really made a difference...and it's a lovely tribute to your patient.

Patience-please said...

How did I miss this till now? I have been lost all week. Showed up at the hospital to do therapy with Sam I Am (who suffered another shower with me) to find out wrong day, wrong WEEK.
I so enjoy and appreciate your writing. Bill simply assumes I'm going to read something to him from some "Celeste" in TX every time I open the laptop!

all the best-
P