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Sunday, March 23, 2008

Bipolar Testing Gone Mad


When it comes to knowing what someone that is diagnosed with Bipolar disorder is all about I think I have a front row seat on the topic. By no means am I any kind of medical doctor or someone with fifteen letters after their name with advanced degrees in mental health education. I’m one of two parents that have faced it for years with one of our children and it is not an overnight diagnosis. Matter of fact, technically you can not be diagnosed bipolar until you are an adult. But Bipolar conditions in people can be narrowed down and treated with the right professional medical care and tested medications.

One of the things that I am certain of is that there is not one single doctor out there that will overwhelmingly say that any individual is bipolar even after several visits with the patient. Apparently, all of the medical doctors, counselors, psychiatric health care workers are out of a job due to a spit in a cup test that nails a person as bipolar. I can’t make this stuff up and MSNBC has this to say on it…

Experts troubled by at-home bipolar gene tests

Many such products sold online with almost no government oversight

Associated Press
updated 2:23 p.m. ET, Sun., March. 23, 2008

SAN DIEGO - Dr. John Kelsoe has spent his career trying to identify the biological roots of bipolar disorder. In December, he announced he had discovered several gene mutations closely tied to the disease, also known as manic depression.

Then Kelsoe, a prominent psychiatric geneticist at the University of California, San Diego, did something provocative for the buttoned-down world of academic medical research: He began selling bipolar genetic tests straight to the public over the Internet last month for $399.

His company, La Jolla-based Psynomics, joins a legion of startups racing to exploit the boom in research connecting genetic variations to a host of health conditions. More than 1,000 at-home gene tests have burst onto the market in the past few years.

The proliferation of these tests troubles many public health officials, medical ethicists and doctors. The tests receive almost no government oversight, even though many of them are being sold as tools for making serious medical decisions.

Health experts worry that many of these products are built on thin data and are preying on individuals’ deepest anxieties.

“People are always rushing to the market on the basis of one or two studies,” said Dr. Muin Khoury, director of the National Office of Public Health Genomics at the Centers for Disease Control and Prevention. “We have very little evidence that telling people their genetic information is going to make any difference.”

Tests have become available claiming to help predict and diagnose everything from serious illnesses like cancer and Alzheimer’s to athletic ability and a person’s ideal diet. Psynomics’ offering is one of the first psychiatric gene tests on the market.
- MSNBC

First off, the human mind is a very complex machine that will never be fully understood even with thousands of years of research. Granted that great progress has been made in the last forty years but that progress is only the very tip top of the iceberg.

Having been through the long trials of a child with mental health issues it is not anything that you would ever want to go through. It’s painful, it’s full of very difficult decisions, and it’s full of many highs and many lows. There is no middle ground when it comes to being the parent of someone that is probably Bipolar. All of the heartaches faced are from the person afflicted with the diagnosis that is not guaranteed and the ones that love them without question. One thing I am certain of is that many well educated people saw my child, diagnosed approximate disorders, missed the medications she needed and missed the overall picture. Standing back after years, if you picked apart the summation of each doctor and psychiatrist she saw you might have the overall picture but it is still a guess. Even to this very day it is a mystery so spitting in a cup is not the tell all diagnosis by any means.

One thing I am certain of is that you can not know what a persons mind is truly all about completely. Spitting in a cup and mailing the results back to your doctor is only one possible piece to the big picture that is the human mind. Our human mind is a jigsaw puzzle of the magnitude that if you spread all of the pieces out end to end it would take millions of light years to reach the end of it and that would only be the first we would ever understand. Assembling the pieces is a challenge we might never find the solution too when all of the pieces can change shape at any point in time. This kind of test is not cast in stone result positive of Bipolar, Alzheimer’s, Dementia or any other mind altering medical condition.

These conditions of the mind are not like being pregnant that chemically changes the entire human bodies chemistry. Don’t ever think that you can diagnose a child or anyone simply by spitting in a cup and sending it off to some lab that has unknown conditions for testing your samples. That is where the dangers of this miss appropriated use of a general knowledge of the bodies DNA and chemical properties can be greatly mistreated.

One of the things that scares me about this type of alleged science is the simple fact that is not regulated or perfected and the possible abuse that it will cast forth on millions of innocent people will never be known. I can literally picture someone thinking their child might be bipolar and rather than spend the time with therapists and doctors they choose the unproven method of spitting in a cup and it becomes biblical results to the parents. Same thing goes for someone that thinks they might have Alzheimer’s disease and spitting in a cup with positive results ends up destroying the future they had as a person.

You can never replace the serious education it takes to actually treat someone with Bipolar conditions. Many of the drugs needed to help someone with symptom’s similar to bipolar have been tested and proven to work for years before actually on the market. In some cases it could be as simple as vitamin deficiencies to help the patient brain chemistry and in others it may take a combination of prescription drugs but being Bipolar is treatable.

What I truly find ironic about this testing by spitting in a cup will be substituted by many as real health care by people without health insurance. That is how this story and diagnosing anyone with a mental health issue will find the abuse of a very willing open unregulated market that does not care what you do with the results as long as your check clears.

Thank you UMASS Medical and Transitions for stabilizing what was once a child diagnosed as possibly Bipolar. The future is far better than the past and true mental health professionals made that possible.

Papamoka

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Tuesday, May 22, 2007

Invasion of Families by the State


This is a personal issue that I think should be played out here. My girls are my world and my family is my world but when you insert one child with a serious mental health issue into the equation and ask the state for help it can turn your life up side down. Anything your child says is a weapon for the state social services to use against you and you are guilty till proven innocent no matter what you do. That is the case in our lives today.

Would you see a problem with a sixteen year old that is reasonably stable watching her little sisters for an hour or so till Mom gets home from work? Apparently, the Department of Mental Health in Mass A Two Sticks has a problem with that. They filed parental neglect charges along with more idiotic accusations from the mouth of just on child. Missing one phsyc appointment is neglect too! Not accepting as realistic as a parent of that child stating two days later that she took enough of her mental health medication that could have killed a cow is serious neglect because you did not take her to the Emergency room two days after the fact is a viable charge. The laundry list goes on. I apparently pick up a six pack and drink and drive with my four little ones in the car. NOT! This is what society has become when the state has a voice in raising the child. She can state any fact and we are guilty. We are dirty and we are criminals in the eyes of the state till proven innocent accordigng to the words from a child on more mind altering drugs than Timmothy Leary would have ever dreamed about being available.

A good friend of mine slapped me upside the head the other day and told me to get a lawyer. My wife and I don't really need one because we have done nothing wrong. We are lucky that we have nothing to hide. Having a child that is diagnosed Bi-Polar is a rough road to travel and it comes with some serious dilemas if you ask the state for help. From that point on they own you and you live under a microscope as parents. Any accusation from the troubled child triggers by law an investigation by other state services and you are guilty till proven innocent. Yup, toss out the Constitution and insert social services rules and state regulations.

There is no abuse of any kind here in this case, and yet I fully back social services in cases where children are truly abused. They don't make enough money in my opinion for the job that they have to do. Given our situation, if the sixteen year old does not like the decicions of her parents then she can say what ever she wants to make our lives hell. We get investigated because we refuse to allow a sixteen year old to date someone that is twenty three? That is how the system works if your kid is part of DMH in Mass! Tantrums gone extreme with teeth.

I do have a problem with them telling me that they will be in our lives for the next three months and visiting every single week till the investigation ends. Last time I checked this wasn't France and you are in prison till you pay the fine. This is what Mass A Two Sticks is like if you dare to beg the Department of Mental Health for help with a troubled teen. The troubled teen becomes the overlord of the family and you are the prisoner of the system forever. No matter how good of a parent you are they make you feel dirty and wondering what you ever did wrong. Guilty till proven innocent is all that it is.

I've pondered this for a while and I am fighting back fire with fire. If the state wants to come after me based on the laws of the land then those same laws work for me as well. I'm not going to let the railroad of state agencies rule my life or my other childrens lives. I have to fight for my family and if the one is lost to the state agencies and the laws they have to live by then so be it. There are still four sister in the family that are my daughters that need a voice of reason from a father that has done his best to date.

If you find yourself in this same situation and you have nothing to hide then I seriously beg you to contact your state representative or anyone that will listen in your state government. Do not let them tell you that you have no rights. Nobody can suspend the Constitution of our country and that is a fact.

Fight for what is right and you will never be wrong. Fight for your kids and you are a true parent. Even if one is over the edge you have to take a stand.

I'm planting my feet square and solid and I have contacted my State Representative and the Governors office. I will not be railroaded by them. Not going to happen in this lifetime!

Round one: State Representative is in our corner

Papamoka


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