It was strange: There was a perverse comfort in inertia.*

So I'm having a bit of a hard time lately, and I'll tell you, it is not becoming. It's one of those times when there's a lot of stuff just underneath , and you spend a lot of your time (or at least I do), measuring your words and acts carefully, because you're sure that what's underneath could come bursting through at any moment, and that it would not be a good thing if that happened.

Some of the underneath stuff is not my own, just mine to figure out how to navigate - all of that fun (and incredibly high-pressure, fast-paced) stuff related to putting together a wedding with a bride who has a bit of difficulty making choices (and then sticking with them); the trying to incorporate the opinions of everysingleperson ever, apparently; and two sisters with a tentative truce and a still rocky understanding of each other who are trying to collaborate on about 400 different aspects of a wedding in a little over a month. So there's that.

And then there's all my under the surface stuff, like the fact that Soon-to-be Sister-in-law sort of decided that it wasn't worth it to bring the kids up here anymore, only she didn't come right out and say that so I'd get up in the morning expecting them and instead find a text saying no one was coming. Although we've renegotiated for the summer, and she told SisterJ that she did it because she thought bringing them up here was burdening us, I was left with a bad taste in my mouth and the feeling that all the effort and time I spend with the kids (because I want to!) is not really worth all that much to her, while here I thought I was helping to raise them for the past eleven years. I guess I am more hurt by that then I let on, even though I know she didn't mean to hurt my feelings, and that - in general - they both appreciate the time we watch the kids.


And, of course LilGirl will be starting kindergarten in the fall, so that means our twice a week commitment with her will be ending anyways, so I was trying to pack as much fun stuff into the summer as I could, because once school starts, we're all weekend sleepovers, and that's just not as much time. LilGirl is not the only one disappearing come the fall - SisterK will be in Iowa to go to grad school in August (right after the wedding), and has been off gallivanting on trips to England and Vermont since she graduated so that I have barely seen her.

I have an uncle, who I am not very close to but still love, who is suffering from cancer and seems unlikely to make it to through the summer, and it also seems highly unlikely that I will get anybody to go up to where he lives with me, (and once there, I'm pretty sure I can't make it into his antique cabin because of stairs). Hell, I can't even get people to walk next door for me to deliver a pie I spent three hours baking (squeezing lemons is not in my skill set), which is another issue simmering underneath everything else. It also turns out that I am eligible for yet another social service program, which might change both my financial contributions to the house and the responsibilities that my mom would have when it comes to helping me out. Unfortunately, our current working relationship is not working out as it is, mostly because she's not been in the best health either (physically or mentally), and it is making it so that I don't always get the help I need. Having this between us, when we are so close, is hurtful, because I wind up feeling both resentful - not that she's not well enough to do something, but that she insists she is and then it doesn't get done - and trapped - we depend on the money my mom makes as my PCA, so if I try to give some of her hours to someone else who could do some of the less personal, errand running type stuff, then I'm taking away money that our family needs; and I assume that she feels pressured and misunderstood, because I am just not ok with the things that are getting left behind. It's very stressful, as you can imagine.

Along with that are some new health issues - not setbacks, exactly, but issues - that have kind of shocked me, and left me unsure of what to do next. It is likely that my body (jokester that it is) is just playing tricks on me, but either way, it's starting to seriously complicate matters, and that is not appreciated. Not to mention, although I hate hate hate the analogy of the biological clock, that certain ticking numbers, including my age and hormone levels (never mind my single & sick status), are making me wish I'd gotten knocked up at fifteen, before I got sick, so that I wouldn't have to worry about it maybe never happening now. (And even just typing that makes me literally sick to my stomach, which is why I am avoiding thinking about it as much as possible.) And of course, every one I know is pregnant. (Well, two cousins, two friends, a zillion bloggers - it just feels like everybody.)

And, if you've been here any length of time, you know that when I'm avoiding things, I take up residence solely inside my own head. Where I can either choose to zombie out - play a few "click a lot and blow things up" games, reread a series full of happy endings, Facebook stalk - or swim in the muddle and try to salvage some sense. Can you guess which choice I have been making lately? If I told you that the Bridgertons are doing just as well as they were the last time I read their books, and that I have a new high score on Big Money, would that help you out at all?

Yes, I've been zombie-ing out, which includes, of course, letting the blog fall semi-silent because "what the hell am I going to say that makes any sense to anybody?" But, as is often the case, it just took me a while to get things into place, just enough, that I could write about them some. So here's some of the stuff that's floating around underneath for me, thanks for letting me vent a bit.

I promise tomorrow's post will be full of ... something else. Hopefully a good something else. :) Have a great weekend you guys.

*Jeremy Groopman, The Anatomy of Hope

So welcome to the month

in which I tell you all about how I am writing a lot, and then proceed to write not at all. Honestly? December is not being very nice to me. It hardly ever is, what with all the germs floating around and the Christmas Chaos to participate in. So I've been a little sick and a little busy, and a little bad at balancing. But I'm still here. Hoping to finish up the shopping tomorrow (Free Shipping Day, you're saving me!) and put up some cookie dough over the weekend. Have lots of things to discuss, eventually. For today, just this short update!

"If I had my way I'd make health catching instead of disease."*

First off, I want to thank all of you for your very kind thoughts about my grandmother. She is much improved, and has moved from the hospital to a local (ish) rehab, where she's getting some much needed help with her leg strength and balance. Aside from being a bit more wobbly (which was an issue prior to her fall), there seem to be very few ill lasting effects. Knock wood, throw salt, praise the god/goddess/ancient deity/flying spaghetti monster of your choice. I do really appreciate the support I've received here, and can't tell you how much. We're working through it. Slow and steady.

One of the things I've been spending a good amount of time pondering during the endless hours of "hurry up and wait" or "the doctor/therapist/food will be here any time now" that have accompanied this experience is the shocking clarity of learning just how closely my grandmother's condition and my condition resemble each other. A few of the correlations I've seen just today -

• Because she has an atrial fibrillation, her heart rate and pulse can drop dramatically, and she's been on multiple blood pressure meds to help control this. For me, that's the POTS, and the drugs she's been on? I've been on the majority of them too.
• She has weakness and swelling in her legs, and they're not really sure why. Ditto here.
• She has freezing cold feet - sometimes requiring three or four pairs of socks. I also have this problem (although it's not as constant as hers, and is complicated by the burning on the bottom of my feet sensation I get too), and most days, if you put your hand on my upper thigh and slowly move it down, you can feel about a 10 degree temperature drop by the time you get to my icy cold toes.
• She has an unexplained (but attributed to her heart condition) dizziness and vertigo; I have an unexplained (but attributed to my POTS) dizziness and vertigo.
  
• Neither one of us can stand, unaided, and straight. We invariably begin to tip after just a few seconds.
• She's passed out more than once - her history of fainting spells stretches back to when she was a teenager. Want to take a guess when mine started?
• She's weak and she's tired a lot, and they like to say things like "Well, you're ninety three, what do you expect?" when she complains about it. I'm tired a lot, and unreasonably weak, and they like to say things like "Well, you've got chronic health conditions, what do you expect?"
• We've both learned to sit at the edge of the bed, feet dangling for a minute, before we dare to get up. (And by 'learned', I mean to say we both remember it when we feel like it, and sometimes screw the consequences when we don't.)
• We both have extremely sensitive skin - her back has been as hot as coals ever since she was admitted to the ER, due to some combination of hospital/rehab soap and laundry detergent. They gave her some medicine to put on it, which I've been helping her with, but the rash I got on my hands spread like fire all the way up one of my arms, so I had to start using gloves to put it on.
  
• Neither one of us likes to be in the position of asking for help, and get frustrated by people telling us what/how we should be doing things. (Oh wait: this is unrelated to our medical conditions unless "stubborn as a jack ass" is now listed as a medical condition.)
  
• Same goes for physical therapy and occupational therapy. (See above point, re: jackassery.)
  
  

Our medical conditions are in some ways eerily similar, even though I know they are not the same: I have had about a million heart tests, and by now, for sure, they would have found the murmur or the blockage or the tiny little atrial valve that plague my grandmother. It's not what's wrong with me - I've got a million things that she never had: extra sensitive sense of smell and hearing, allergies to every natural and man made substance ever, hyper reflexes, muscle wasting/weakness, chronic infections and low immune system support; Most importantly? Pain, pain, pain, pain, pain. I'm so glad that she doesn't suffer from pain that I could cry, but, since it's my most debilitating symptom, I can't pretend that it's not the biggest difference in our situations.

So I can see the differences, and the parallels, and I have to wonder: how much of this is in my genes? How much of this - whatever this turns out to be - is in everybody's genes, just sitting there, only coming out when something goes wrong? Because I can also see the similarities between me and my mum (who's got ulcerative colitis), or my sister with depression, or my other sister who developed random allergic hives for 8 months that disappeared as suddenly as they came. So how much of what's wrong with me is laying dormant (or not-dormant, as the case may be) in the people I love? And how much of it is floating around in everybody's genetic code?

It's a scary thought: Both the "why did I wind up being the lucky one" part, and the "Holy shit, what is wrong with us???" part.

The main difference between us is that my grandmother's condition - aside from her extremely sensitive skin & occasional fainting spells - waited till she was in her eighties to attack. She had a full 'before' life - with 9 kids and a husband, and the mother in law from hell, and being a nurse during WWII, and helping to raise her granddaughter when her son died, and a million other things that happened before she started to become unwell. For me, my life before - the lesser (percentage wise) portion of my life, at this point - ended at 15. Before I had the chance to do so many of the things I wanted to do, and consisted mostly of being a child, a dancer, a reader, a babysitter/big sister.

But here's where I go back to our similarities, because my grandmother - then in her eighties and now in her nineties - dealt with it. All of the inconveniences and indignities of being ill and having to figure out how to live your life the best way you know how. And - while I may not always succeed as well as she does - I'm certainly going to do my best to make that our most striking similarity: the fact that giving up ain't really an option. That we are not the illnesses we've been battling, or whatever disabilities we may have, but only ourselves.

And that the weaknesses we've got in common don't matter near as much as the strengths we share.

*Robert Ingersoll

Let's talk a little

My mind lately seems to be going at about triple it's normal speed. Frantic, speed-brain, for some reason. It's strange, really, because things are relatively calm (or what passes for it in my family anyways), and yet I can't get my stupid brain to slow down long enough for me to grip on to anything. Or - alternately - I get hold of something and just can't let it go.

July started off OK - I even took the month off from doctors, because all the news was bad and painful and just more of the same and I couldn't think about it anymore. But of course it hasn't stopped me from thinking about it: At the very least though, by taking the time off, I couldn't be poked or prodded or asked stupid questions about it anymore.

And then my brother and sister-in-law took the kids to the Cape for a week, and were too lazy to drive them up for a few days before that, and all of the "good summer fun with the kids" I had planned to cram into my month (and my mind) instead turned into "days of doing nothing but sitting around thinking about my life." These days were not nearly as much fun as the ones I had anticipated. Left with entirely too much time to ponder at least two major family situations (one of which has blown over and another that continues on without any solution to be seen), my own non-improving health and relationships situations, and the fact that yesterday was the anniversary of my father's death (not to mention a very rude person who treated it as if, because my father and I did not get along, this anniversary should be pretty meaningless to me); it's been an unexpectedly emotional time. There's just all this stuff, and I feel like I need energy to sift through it, and I haven't got the energy - emotional or physical - that god gave a gnat, so it's all heavy lifting.

It's all heavy lifting.

And I don't, as usual, realize how heavy, really, until I sit here with my fingers tapping away trying to explain why I haven't posted anything lately, or taken pictures of the gorgeous kids or why I've signed up for at least three projects this summer that I haven't even begun to consider, let alone start. Until I sit here and let my fingers start talking, I let my brain rev itself up into a frenzy, and don't realize that not saying anything, not posting anything is part of the trouble.

So here's some more of what I've been toting around, this week particularly -

We've been attempting to clean out Nana's storage: Yes, 2 years is a long time to pay storage fees, but when you roll up that door and the smell - her smell - hits you, I would gladly pay for another two years just to not have to sit there and sift through the contents of her life while my uncle - who is clueless - natters on about "Goodwill" and "Junk" and my mother and aunt try to move as quickly as possible so we can just leave already, and all I want to do is sit there with a box of stuff opened around me and absorb it into my skin. I've been taking pictures and saving things from the scrap bin; trying to hold all my emotions in in case my mom needs to let hers out.

I'm in that tiny little hallway, with it's concrete floors and neon orange doors, watching as box after box after box comes out. When my uncle pops out one of the windows on my grandmother's dollhouse (they're plastic and pop back in), I bite my tongue and control my need to scream about how important it is to fix it Right Away! I watch my aunt take a box of china she shouldn't be lifting and wrap it up so clumsily that it's sure to be in pieces the next time we open the box, but I don't say anything: I just wait till she turns around and slide the box in my direction, re-wrap it when she heads out for a cigarette. When my mom opens a box with baby shoes in it - shoes that Nana had lovingly wrapped in tissue paper, for her 'baby' who died twenty years before she did - mom doesn't cry, so I don't cry.

See, I know that this stuff is not my Nana, and that - in all honesty - she couldn't really have cared about the majority of it: glasses that lived in cabinets, tea sets made of gold that never made it to the table, knickknacks from places she never traveled to, lots of things that said 'grandma' because stuff that said 'nana' was so much harder to find. She wouldn't mind if we tossed all that out, would actually have done it herself if she'd have thought about us having to do it now.

But I also know that there are memories to be found here - not just my memories, but everyones - and so I feel like I have to safeguard them - for my mom, who isn't thinking anything except "get me out of here"; for all the grandchildren who can't be in that dark little hallway with me, and for all the great grandchildren - here now and to come - who never got a chance to know just how awesome a lady they missed out on.

So I sit there, allergies acting all renegade and body too sore to take breaths, it seems, setting aside a porcelain cat for one sister, a rogue leprechaun for my brother, a picture of himself that my cousin has probably never seen. Some of this stuff means something to me, some of it doesn't but I'm determined not to let the "one thing" that somebody would have wanted get tossed in a box for Goodwill. I feel like the only person there capable of remembering that this isn't just stuff, it has value to someone, and they should at least have the chance to say "No, you can toss that" or "Oh my god, I totally remember this!" So I click the shutter on my camera again and again and again, hoping that I'm capturing the something somebody wants, before I repack the boxes and watch my uncle roll his eyes again.

It's just heavy lifting.

And I try to be gentle with myself, try to say: Even though it doesn't seem like right now is a busy time, you are doing a lot of work. But it doesn't always sink in, because part of my heavy lifting is the way I think about myself, the way I don't give myself credit for the things that I do, the way I beat up on myself for all the things I don't do. It's a tricky line, I think - to hold yourself accountable without tearing yourself apart. (At least it is for me.)

I read, somewhere, in a recent blog post of somebody's, that one of the rules to remember in blogging is that your blog is not your best friend. If you feel like you need to vent, pick up the phone, don't complain to your audience or they'll stop coming back. I think that's probably good advice, but I don't know that I can follow it. I appreciate it, honestly, with my whole heart, that you people come back time and again to read things like this, where my head is a spinning top and my heart feels cracked open.

I won't say that I don't have people in my life who would listen, if I started talking, because I do, but it's different to write it here, freer somehow. Saying what I need to say to get my head back on straight is a large part of what's kept me writing for so long at this blog, and - while it may be the reason I don't have a zillion followers - it's also part of the reason that I cherish the followers I do have.

So, now that I feel somewhat normal again, what's going on with you all? I know somebody has a new job (YAY Ms J!!!) and other people are dealing with their own brands of chaos (Hope the bed rest is going well, Laurie!). I hope that you're all enjoying your weekend, come what may, and I promise to write again soon. (And less emotionally jumbled, hopefully.)

Took me a while

but I'm finally posting to let you all know that the surgery went well, and I am recuperating. It is a process, which I hate (I'm much more in the mood for a recovery of the 'flip a switch' variety), but since I'm finally seeing/feeling signs of progress, I suppose it'll do.

I will say that it was a much more painful prospect than I had prepared myself for, the probable cause of which includes me getting an infection, and thrush, and being hideously nauseous to the point of dry heaves, and not realizing that this was not just a normal post-op situation, and trying to 'push through' it like a big dope. But, now it is starting to get better, and today I ate noodles (my first meal other than mashed potatoes, slush, jello or soup broth), so I know it must be improving.

The pain meds are killer, in that I find myself constantly loopy: Today is my first day back on the computer, and I have spent an hour and a half writing the three paragraphs you see here in the hopes that they will be logical and legible. I do not like this sort of high life, and am trying to cut back on the pain meds as much as possible, so that I can function.

Worst of all, probably, is the fatigue. This is not unexpected either, since the CFIDS makes exhaustion my constant companion, but I always forget how much energy recovering from illness/stress/operations takes, and then am shocked when I can barely life my head from the pillow sometimes. We had two weeks without Lil Girl, and I think my incapacity has shocked her too, now, which I hate. I don't like for people to see how weak I can get, and for her to see it (because I see that it worries her) makes me want to cry.

Or punch things. If I had any energy to punch things, but I can't cry because Did you know? That crying? After sinus surgery? Will HURT??? Well it will: Trust me.

So there's the update: Am doing better. Would not make this decision again if I had it to do over (but should probably reserve judgement until I see if it actually helps things). Need a large, large nap. And less woogy drugs. Miss you all, and will try to check in again really soon.


Love, NTE

Blender brain! Update!

Last week was a strange week - Lil Girl stayed home sick (with a vicious cough), so as not to infect her infectious auntie; Dad stayed home sick, here, with pink eye or something, and wandered around the house a lot saying random things and aggravating me (perhaps unreasonably, but also: don't ask me the same question 17 times and expect me to be cheerful eversingletime!); and I couldn't see well for a large portion of the week, so reading and typing and watching tv and all those good distractable things that I count on were off the table, and my pain level was pretty high.

My pain seems to have platoughed, my eye is so much better now, and I even got to leave the house yesterday, which was a nice change of pace, as was a mostly cheerful SisterJ, who I miss when she's not here.

All of that backstory was supposed to lead into a meaningful blog post, but somewhere around the time that I started talking about my eye, I totally forgot what the point of the post was going to be.

So, let's just call it an update and call it a day, shall we?

Hour 22

Into the last couple of hours here, and while I wouldn't say I'm still going strong, I am still going. Not all that unusual for me, except that I don't usually post every hour or two of my insomnia, so it's weird to try to think of things to say, or to attempt to add numbers together (thank god for calcuators!) Here are my latest, updated stats... I probably won't check back in again till it's almost finish-line time, so I just want to wish everybody who's still playing along a great last little while: You can do it!

Title of book(s) read since last update: Vision in White, Areas of my Expertise by John Hodgeman
Number of books read since you started: 8 & 3/4
Pages read since last update: 65
Running total of pages read since you started: 1840 + 167 (hour 19) + 210 (hours 20/21) + 65 (now) = 2282
Amount of time spent reading since last update: 40 min
Running total of time spent reading since you started: 180 +140 + 40 +909 = 1269 = 21.5 hours
Mini-challenges completed: 8
Other participants you’ve visited: None since about 1 o'clock this morning
Prize you’ve won: 1! Yay! From JoyStory.

A little catching up...

Here is something people must forget about the whole concept of moving: once you are in the new place, you have to find a spot for all the things you've brought with you.

Or, if people don't, at least we did.

Right now, we are still living slightly bare bones - big furniture that the movers brought over (couches, beds, refrigerators), plus the personal care stuff you don't go anywhere without, some clothes, a couple of tables and bookcases and what not. But next week, we're getting our storage pods back, and now we have to figure out where the hell everything goes. Of course, I am "not supposed to worry about that", but since I am the only damn one who actually worries about things ahead of time, I have, of course, been worrying about that.

People who can get up and move things if the location of something doesn't suit them don't exactly think about what it means to not be able to do that. So that, if I have them set up my room (or the library, which I am still totally claiming as mostly mine) in one way and it doesn't work for me? Then I have to wait till everybody - or enough bodies, anyways - can make the time to come over here and help me again. And that is a party and a half.

So I've been skootching my bed (on wheels) from spot to spot, trying to decide where I get the least amount of sun glaring off the white house next door; trying to see how long the cords for my computer run, and how to make space for my printer; wondering where all of my crafty stuff is ever going to fit... all that kind of stuff. It's not high stress, but it takes a working brain, and some days I barely have that.

In other news, Harry Potter 7 is no longer playing at the only movie theater in our neck of the woods where I can watch movies, so I'll have to wait for Netflix for that one; my Wednesday appointment with Zach almost ended with me being hospitalized because of my know-nothing of a PCP, who told me that my intense ear pain was just some excess fluid in my ears - 3 weeks ago! - and was (shockingly) wrong. Instead I now have a double ear infection and a sinus infection and they've left me severely dehydrated and with quite the elevated numbers - Zach thinks it's probably not a good idea to see her anymore, which I knew way back last September, but Mass Health disagreed. Of course, now I've actually moved, so they can't give me crap about picking somebody closer, but still... grr I hate picking new doctors; And lastly, in happy news I haven't shared yet, my oldest sister -SisterS - is going to be a mama again (13 years after Oldest Nephew), and is due in the beginning of December: I am very excited, even if the little man will live too far away from us (They're up in Cow Hampshire, about 2 hours away). So, now I have to come up with a new name for Youngest Nephew, I guess... or something like that.

Anyways... that's what's happening in our little world, where it's been in the 90s all week (I got a blister on my arm after being outside with the kids - WITH SPF 85 on - for about 25 minutes. I was in the shade. Screw you, antibiotics and your "you may be more sensitive to the sun" warnings) and where the weather man is right this minute telling us about a tornado watch we are under until 9:00 and how Hurricane Bill might cause flooding this weekend.

Why did we decide to stay in Massachusetts again? Cuz it sure wasn't the weather. (Actually, I tend to like our weather, but this week has been ri-dic-u-lous.)

Oh, and I have a new banner: how do you like it?

Yes.

Yes, I am finally in the new house.

and

Yes, I finally have internet (that I don't have to stick the computer outside the window to steal from the neighbors) again.

and

Yes, I am doing mostly ok, although there are still L.O.T.S. of issues.

and

Yes, I hope to be back blogging (with whole sentences, and - gasp! - perhaps even paragraphs) very soon.

because

Yes, I am missing writing, and reading, and visiting with all of you.

but, also

Yes, I am just too wiped out for that to be today.

A little bit on the whiny side, I'm sorry to say.

Every phone call with my mother ends the same way now: with her telling me about the work that's still not done, and me trying to think of something to say that isn't twisted and harsh and bitter.

I don't like it, and I know it's not her fault that things are moving so slowly, and I know that I am lucky to have a place to be that is safe and warm and where I am loved and I know it's just stupid & useless to feel sorry for myself, but I do.

I feel like I don't have a place.

I just don't belong anywhere -

As much as I love it here, and spending time with my grandmother and sister and uncle is amazing and wonderful and great;

As much as I know that Mum and Dad are working and painting and scraping and getting estimates 4 days out of the week;

As much as I know that this is all temporary and eventually, there'll be a house I can get in and out of, with a brand new cozy bed I just paid a lot of money for, and a bathtub I can take showers in and a kitchen I can cook in and a room where I can let the kids just play and not have to worry about them breaking something that's 115 years old or waking somebody up from a much needed nap.

As much as all that is true, right now?

At this moment?

I feel ...like those days are still too far away.

like I've overstayed my welcome, no matter what they say

like nobody who's supposed to care, actually cares enough to do the things that I can't do for myself. Or to find out how I'm doing, or to even think that I might be upset by the way things are playing out.

And, wow, am I upset.
I'm angry, even.
I'm shocked at how angry I am - that people can't be trusted to do even the simplest things, that time keeps passing, that I'm so useless, that I keep getting worse, that nobody seems to be worried besides me. I'm angry at myself, and I'm angry at just about everybody else.

Not all the time, not even most of the time... but today. Today I am.

I know it's because I'm feeling so much worse, and because the longer I stay here the harder it gets to pretend I'm still ok, and because the harder it is to pretend, the more I cause the people here to worry, or to go out of their way, and the more I feel like a big fat burden.

And also? Because I am just so sick of pretending.

I'm at the point where I can't hide the fact that I get tired halfway through making a sandwich and have to lay down for 3 hours. At the point where wearing a bra 24 hours a day - for modesty's sake - is no longer an option (hell, most days, it's not even an option to put it on at all) and I almost don't even care that they know I haven't taken a shower in almost 2 weeks. At the point where they can see that I save every last drop of energy for those two days when the Lil Girl (&/or her big brother) is here, and the rest of the time recuperating.

It's all the little stuff that doesn't matter when I'm at home, that matters big time here. And it only matters because I let it: I know that my grandmother doesn't think any less of me because I have greasy hair, or that my uncle is going to be thinking I'm lazy because I just can't clean up those dishes I left in the sink.

But I'm not without pride. I don't like people, even the people closest to me, to know how much I can't do, to see how much help I need to make it through the day. It's not a choice, though, when I'm staying here. It feels like all of my flaws, all of my faults and failures, are on display, all day, everyday.

And even though this rant is full of angst and all 'poor me', I know it'll pass soon. I'm already embarrassed that I even wrote it, because reading it back for errors makes me sound petty and like I don't appreciate all I have. I do. I really do.

But I'm not going to pretend it never happened, I'm not going to keep on pretending, at least here, that I'm not bothered by the fact that I still have no home. Or the fact that the majority (not all, but most) of my siblings have only contacted me in the past two months when they needed me to do something for them, and then promptly forgot that I exist. Or the fact that, at 30 years old, I have to constantly eat food I don't like because I can't just fix my own or watch the news b/c if I don't stay in the living room till 11:00, I'll cause people to worry.

I'm going to give myself this space to not have to bite my tongue or to not have to use my "I'm totally fine and can socialize like a normal person" voice.

And then I'm going to take a deep breath and open the door again, and try to convince my uncle that he'd really just like to order a pizza tonight.

As always, thanks for listening.

Points of interest (ish)

For Lent, I am giving up not posting every day: It's my own personal NaBloPoMo! Basically, bad things happen in my brain when I don't have a place to blurt it all out, and since you all are kind enough to come back and listen, I should do my best to post as regularly as possible. And we all know that I do better if I feel I have to post, so I'm signing up for posting everyday till Easter Sunday, and committing to it right here on this nice bloggy thing. If When I make it, I will let myself get a little treat. Must think of good treat. Feel free to offer your suggestions below.

For my first post, I'm going to attempt the dazzling and death-defying bullet point post (oh! ah!):

• My parents may have found a house that they like enough to buy. They're going to the bank today to talk about putting down an offer so that they can get an inspection done. The only opinion I have about it is that it has a lot of stairs outside so that I cannot get in, and this does not please me. This whole house buying situation is showing me just how deep my control freak nature is - I am very uncomfortable buying a house I haven't been in, knowing I will have to live there for the foreseeable future. It's scary.
  
• Come to think of it, the house buying/having to move is bringing up a lot of issues that I'm not entirely comfortable with - the fact that I can't just go buy myself an apartment and have to keep living with my parents; the fact that my parents are not good with money and I just want to take it away from them (perhaps an allowance?); the idea that we've sold our 'family home' - it's been in our family for over 100 years, although it was originally a family run business. My great-grandparents moved here when Nana was just an infant, so from 1923 - 2009 my family has lived here. That's a lot of history to just be giving up on. And sometimes it does feel like we're giving it up. (I know we're not, it's just the closer it gets, the more I realize that this is forever.); the fear that my brother is trying to figure out a way to move with us into this new house (he didn't come out and say it, but he sure was asking a lot of questions about the house's finished basement, and the fact that it has it's own bathroom seemed important to him) because things are not going well with Soon-to-be (?) Sister-In-Law. A lot of things.
  
• We took my grandmother to lunch last week and she met three people she knew in the restaurant. I met 0. I was so happy for her, because she never goes out, really, and was so excited, but there was still a little piece of me that was jealous. Of my 92 year old Grandmother. Nice.
  
• I still haven't packed much of anything: A couple of boxes, but there's nowhere to put anything else, so why bother?


• Lil Girl is potty training and doing really well - no accidents at all yesterday. She came wearing big girl 'underwheres' (she says it like it's got that little h in it), and seeing them made me kinda sad, cuz she's the baby.
  
• This does not mean that we want another baby to take care of, so the universe should not see it as me putting out a call to any of my siblings. We are - none of us - in a position to have any (more) kids right now. I'd like to be, but that's a whole nother post.


• A little update from Friday's post about my TBR challenge - I suck at reading things I'm 'supposed' to be reading. If a new PBS book comes in the mail, I put it at the top of the pile - although I have cut down a lot on PBS incoming books, because I am trying to get rid of books, I still will say yes to a wish list book if it becomes available. And then when it gets here, because I know it's been on my list for so long, I read it first. I am totally counting this because it's been in my virtual TBR for longer than some of these books have been in my physical TBR. Counting it.
  
• I learned two new things while typing this post - how to do bullet points and strikethroughs on HTML. This makes me ridiculously happy.


That's all I've got for you right now... Check back in soon, because it's going to be a long Lent. :)

So here's what I thought I might do

blog everyday for two months straight, right up through Christmas, and then get really sick and abandon the whole thing for over three weeks. That's a great idea, yes?

Sorry to have disappeared, although I am sure you are not - my faithful readers - particularly surprised. But the fevers have finally broken, the steroids and antibiotics are starting to wear off (they always kick my ass), and my brain is plugging back in a bit. So I just wanted to say "hey: hope 09 isn't beating you up like it's been beating me up", and that I'll be back ASAP, as I've definitely missed the world outside my room.

A small freak out, which you can feel free to skip, followed by more bad news

So we do in fact have a preliminary buyer for our house: there's still an inspection to get through, but the house is damn old and we already told them that, so hopefully it won't turn up anything too surprising.

And while this is good, this is a good, good thing, it is also horrifying and panic inducing. I'm freaking out a little bit, and there's this ball of tension in my belly that's amped waaaaaaaaay up, mostly because, pending inspection, we're expected to clear out by February the 23rd. Which is basically, two months and two weeks from today.

We do not have anyplace to go once we leave here, and that, my friends, is a terrifying thought. I'm afraid of how fast my parents are going to burn through that money: if we find a permanent place to live right away, I'm worried about how much a mortgage is going to cost and how my parents haven't paid rent, let alone a mortgage in over 25 years, and how they're totally not being realistic about how much we're going to be spending now just to live somewhere. And about how my less than $500 a month isn't really going to help out all that much there.

If we don't find a permanent place right away (and we haven't in the nearly a year we've been looking, since there's so many constraints on what we need, let alone what we'd like), then how quickly are we going to go through our money renting some place accommodating enough for us (ok - me), and how will we ever be able to make that money back?

I'm really working very, very hard at not freaking out about those things, because they are, in very large part, beyond my control: we're looking, we'll have to go someplace, it's just that there's so many unanswered things right now and I HATE THAT.

I read a lot about people who can look at these sort of things - these challenges and changes - as adventures, and these sort of people - even the real life people whose blogs I read - take things as they come and don't really worry excessively and somehow it all turns out alright. I would give anything to be one of those people, but I'm just not.

I'm trying to see this as optimistically as possible, but there's also the reality of what's happening, and that is this: in two months and two weeks, unless we do some very hard work very soon, we will have nowhere to live.

Nowhere to live.

If that isn't scary to you, then I don't understand how your brain works. (Obviously).

Now, granted, I don't think it's possible that we'd wind up living in our van (which, also, sadly is deciding it should fall apart little piece by little piece, lately), but it's like my parents are living on a cloud of denial where our dream house is going to be A) affordable, B) immediately available, and C) Right next door! and so I feel like the less they are able to face reality, the more I have to think about it.

Not that thinking about it is doing me any good, because honestly, what good is worrying about it here going to do? I just need to get it all out of my head for a little bit, just put it here and LEAVE IT HERE for a while.

We are working hard - looking at houses and more houses and more houses, farther away than we want, really, but maybe our best option at this point. We're looking at two families to own and one families to rent; we're looking at long range hotel rooms and another storage container. (Confidentially, I've even looked into independent housing for myself, even though I know I'm not up to it health wise, but all of the housing for people with disabilities around here just isn't appropriate for me: I don't need most services, don't qualify for some I could use, and can't live in a group environment where someone else is making the rules about smells and chemicals and whatnot.) We're doing the work, but the answers haven't presented themselves yet, and I'm just not a "leave it to the universe" type of person.

The universe has screwed me on more than one occasion, you might recall, so I'm not exactly sure it's looking out for our best interests.


So, with all of that in my head, I sure am glad I have this place to just spew, and also ----

And also, as I was just finishing up this lovely little rant, a cousin calls to tell me that my great aunt - who I was not close to and really only knew through special occasions and the fact that she was our family kleptomaniac ("Is Irene coming? Make sure the Waterford crystal is not on the sidebar!) has passed away and I will be required to attend yet another funeral early next week.


It's like I said a few weeks ago: what I wake up worrying about is never the stuff I wind up worrying about at the end of the day, so why do I even bother?

2008 has been a sucky, sucky year, and if 2009 isn't better I might have to punch it in the face.

See how I almost forgot about you?

But I didn't.

And it wasn't so much a case of forgetting as it was a case of thinking I'd already written this, and then realizing I had written an e-mail to my friend instead. Since my blog is (mostly) anonymous, my IRL friends don't check up on me here, so I have to like... actually talk to them or send them e-mails or something in order to catch up with them. I know! It's prehistoric. Anyways, let me just recap what I was telling Best Friend/College Roommate:

It is very, very cold here ("Mid January temperatures" the weathermen proclaim gleefully as I wonder at their sanity. And also at the accuracy of our calendar - perhaps it is, in fact, Mid-January, but we just didn't notice. With the type of life I've been living lately, I would not be at all surprised.) Also, I don't really know why I told her it was cold here, as she lives 40 minutes away. Northern minutes, so, if anything, it's probably a few degrees colder than it is here. But I told her anyways.

I am on day two of a new medicine that makes me very woozy. So woozy that I am now appalled that I considered myself dizzy before this. But the doctor says that generally only lasts for a week or so. If you - or he - has a free week in which to feel like you are on a rocket ship even though you are not moving any part of your body - and especially not your head - please feel free to volunteer. I may not have much of a life, particularly, but the one I do have requires that I am somewhat able to converse with people without feeling like my head is filled with helium and is rising to the ceiling and I am barely holding on to the attached string.

The best thing about my new medication is that it makes No. Sense. Whatsoever. Not that this is new to me: It makes no sense for me to be on half the things I am on, but I take them anyways on the off chance that they might help me. But this new drug? Is stretching it even for me - It is a blood pressure medication for people with high blood pressure. To lower their blood pressure. I? Have very low blood pressure (and/or a very low pulse: it varies). I am taking this medication - a very, very, very low dose - because it has been shown to help blah de blah blood vessels, and they think that might help the blood flow around some of my more painful areas and... honestly? Zach lost me pretty quickly with this one. I thought I understood it yesterday... Wednesday, I mean, at the appt., but the woozy part is not helping me to remember it clearly. All I know is this - I am taking a medication that's originally designed to help lower people's blood pressures, and when I started taking it yesterday, mine immediately went up. And then down. And did the same again today. I do not understand it, and I do not like it. And I may give it the week, but if it doesn't start changing something - for the good - soon, I don't know how much longer I'm willing to take it.

The people who came to see the house on Wednesday are very interested. Extremely interested. This is good and bad - we, of course, have no other place to live, so should they go from 'extremely interested' to 'actively buying' in the near future, we will go from 'temporarily stuck in a bad living situation' to 'having no living situation', which I'm not sure is an improvement. But we'll just have to wait and see there: Mum continues to house hunt, I'm considering all my options. We'll see.

Other than that - Family members currently driving me insane = (I was totally going to count them up and everything, but what's the point) All; Craft projects started and as yet incomplete = 9; Local radio stations currently playing "all Christmas/all the time" and thereby making me want to boycott them for life = 2 (Dear Oldies 103.3 & WROR 105.7 - Midnight on Halloween is not the opening bell for the Christmas season - you are skipping over Thanksgiving, at the very least. Stop it. Seriously); Number of mice still taunting me somewhere in my room late at night = at least 1; Pies to bake next week = at least 3 (must hunt up new recipe for blueberry pie... do not like the way last years leaked); E-mails that still need to be written (off the top of my head) = 4; things that could keep this list going = infinite.

So there, that's my update. Anybody out there?