I often get asked what I do for a job? As most people probably do. When I tell them I am a Disability Carer, I get a variety of reactions. The usual response is "Ohhhhh, You are such a special person doing that job". It used to bother me and I would fob it off. But over the last couple of years (I've had the same job for 15 years!) I have chosen to agree (somewhat sarcastically) that yes indeed - I am special!
One of the other responses I get bothered by, is after I tell them I work in a house. The quizzical look on people's faces means that they either
A) Think that this house has padded walls and looks like a hospital
OR
B) People with disabilities aren't supposed to live in houses?
So this is my photo of where I work - the front door of a regular house, on a regular street where the people living there lead regular lives surrounded by regular people.
Only a couple of nights ago, my husband and I were watching "A Current Affair". He had told me that there was a story on Autism, and he proceeded to sit down with me to see what it was about. If you didn't see it, it's about Ricky Stuart (famous NRL player and coach) and his family. His daughter has autism, and they talk quite passionately about their lives. It was quite a lovely story. But right at the end of the story, when talking about the future for their daughter, and what that future may hold, both Ricky and his wife remarked that "there should be beautiful facilities for these kids to live in, and be well looked after".
I have to say - this annoyed me.
The home where I just happen to work, IS a home. It is not a hospital, nor an institution, or a facility. Those days are long gone. It is a home for five amazing human beings, whom need assistance in their day to day life. They also require support with some of the wonderful skills they have. The majority of them also have loving and caring families who are very happy with the support we, as staff, give to
their family members.
I realise that I will never be in these parents shoes, as I do not have a child with special needs, and I do not have the added worries about what will happen to them when I go, but I just wanted to reassure those that do have such worries - there is an answer.
Sure, there are not enough places and houses for all of those needing housing. There will unfortunately always be waiting lists, because our Governments have budgets and can only do so much. But for those of you who have children with disabilities, and are wondering what you are going to do when you are no longer around to care and support your children - rest assured that there are hundreds, if not thousands of people who carry out the same job as I do on a daily basis. And we love the people we work with.
They are our extended families too.
So - where do you work?