We really did get discharged today. We are very glad to be home and in our familiar bed! Trent was sent home on some gangbuster antibiotics that will require a lot of attention from me as they are administered through his port. We had home health come tonight and they will continue to come daily for awhile. That was comforting to me because Diane, the home health nurse, was fabulous and spent a lot of time teaching me about the drugs and the delivery and how to care for the drains in Trent's leg. Thankfully the drains are set to come out Friday-right before the kids come back. I was a little worried that Jonathan might be a little too curious with those! Tomorrow will be spent organizing our new drug regimen and space so that Trent can get around as easily as possible without the risk of falling or getting infection of any kind.
While we were in the hospital a social worker named Steven came to see us. He was so good! He had a nice soothing voice and spent quite a bit of time with us. I would love to talk to him again when we go next. He offered some very good suggestions for us and one that I thought was very interesting. He suggested Trent take up cycling. I thought that was a great idea because that is something he didn't do before and therefore couldn't be compared as "pre-cancer" and "post-cancer". Something to think about.
We also had a couple of visits today from different nurses. The first was one of the surgery nurses. We have only seen her one time but she said she thought about Trent all weekend and just had to bring him a bracelet that says "Sarcoma knows no borders". She was impressed with his determination and wanted to make sure she saw him again. Then we had a visit from Dr. Jones' nurse, Nancy. We have only seen her once also. She too said she couldn't get Trent out of her mind and had to slip in to see how he was doing. Her exact words were, "You have done my soul good to see you today." She had been very worried about him because of the condition he was in when she saw him. But he looks a million times better than pre surgery and is looking better every day.
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Thanks for all the updates! I think about and pray for you guys everyday!!!
ReplyDeleteThat all sounds like wonderful news! I'm so happy he is home and on the mend! :) Keep up the fight! We love you guys!
ReplyDeleteI love the cycling idea. Sometimes I'll break out my bike and go for a ride up and down the long, country roads. It's such an exhilirating and liberating feeling. I bet Trent would find it very therapeutic and satisfying. Maybe he'll be the next Lance Armstrong!
ReplyDeleteSo glad you're home, and that he's doing SO well!!
ReplyDeleteGreat nurses...you too Holly. You're pretty much a qualified nurse after all the training you've had in wound care and IV antibiotics. Just add it to the list of things you can do...starting with curing dyslexia.
ReplyDeleteWe're so glad that things are going well after surgery. He looks great! It sounds like you have been well taken care of. Keep fighting you guys are doing awesome!
ReplyDeleteMy dad took up cycling after being diagnosed with Parkinson's. It's amazing a well it has helped his physical and mental state. After Laura went through her rounds of chemo my kids thought I should become a nurse, because I knew all about the meds and medical jargon. We are so glad things are going well. Take care and God Bless.
ReplyDeleteI'm so happy Trent is doing so much better- what an incredible thing for you guys. The power of prayer and the power of the priesthood are real! Keep it up! :)
ReplyDeleteIt is so great to hear that Trent is doing better! And yeah to you too Holly!
ReplyDeleteHeidi