This is my viewpoint on fighting not only Parkinson's Disease but Acute Arthritis and Epilepsy with My Lord on one side and Patientslikeme.com on the other....with a sense of fun and friendship all around..... Sincerely, Pokie
Showing posts with label Parkinson. Show all posts
Showing posts with label Parkinson. Show all posts
Wednesday, July 31, 2013
After all I've done for you?
How precious life is to me,yet I have no fear of dying. I hope all that know me realize my faith keeps me ever driven. God keeps me in perpetual motion. I am in constant search of something I have never seen...a new color, a new sound, a beautiful sunset or dawn. Parkinson's tries to slow me down and then I realize that I have no time for pain nor does anyone else have time to listen to me complain. My feet have never stopped in the last week and I LOVED IT. I covered miles all said I should not, overcame a new fear I have developed of driving in St.Louis by myself and most important I had conversations with people I should have talked to years ago. Surely in these conversations you take the possibility of hearing things you don't want to hear but when all is said, your life is richer by far. I would take this opportunity to thank Russ and Heidi for listening to me babble on. I have spent a week with two of my many VBF and feel the warm glow it has produced. Thank you Lord for holding my hand as I ventured on in discovering the art of being a better servant and also thank you for whispering in my ear once years ago, "After all I have done for you?" when I threatened to give up and go back to bed....love ya Pokie
Tuesday, January 5, 2010
SAVE OUR GRANDCHILDREN
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Blogger: Today With PokieToo and Parkinson's Disease - Formatting Settings
Blogger: Today With PokieToo and Parkinson's Disease - Formatting Settings
I started the New Year off right today as I visited a new Neurologist in a nearby town. After almost four years with my past one, I had more than one regret today as I entered his new office. With the new diagnosed Epilepsy, I could no longer travel to St.Louis and back in a days time from my part of the country. especially with me driving. He seems to be an excellent doctor and even let me know he was on the internet. I exchanged business cards with him and we were off. He was telling me I had too many things wrong with me and we were having to decide what to treat. There were also things he didn't treat and didn't want to waste his time on like, diabetic problems and arthritis. So seizures and Parkinson's were next. Of these two he said not everything could be grouped under Parkinson's and he had no idea why I had a seizure...he would treat it and hope it did not return ..ever. Now with the Parkinson's New meds were in order and quantities remained reduced. This will be the year I get this pill thing in order. Thirty two pills a day is ridiculous for anyone, whether they have my diseases or not. If I can some how replace most twos with ones I will be so happy.
He gave me a new guide book featuring Holly Robinson Peete from the Hands Book. Excellently put together with a tape included. It covers the medications for Parkinson's Disease, causes and effects. It is published by Teva and once again I think excellent short reading.
I think this Neuro is one of the best in the area and will do the best he can. He did say he would not give me false hope. It is aN incurable disease at the present and has been for a long time. So the best I can do is fight with all I have an do it on as little sinemet as I can because I am looking at a long fight. his is not the first time I have been referred to as a bAby with this disease. I can only pray for those who are getting diagnosed with this in their twenties. Those of us who are able to talk must fight this for those who can no longer talk. Those who can walk must walk to places those who cannot will not be able to go. And those of us who have a few extra dollars must spend them for this cause. SAVE OUR GRANDCHILDREN PLEASE.....love pokie
Wednesday, October 21, 2009
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Blogger: Today With PokieToo and Parkinson's Disease - Formatting Settings
THREE STAGES
Isn't it amazing how God leads us through?
He gives and he takes, to keep us so true.
I can only speak for this life he has given me
and it has appeared in stages of three.
First as a kid, footloose and free,
I fished with my dad not a care did I see.
I mothered my brother and tended the house,
A child in the fifties,the neighborhood mouse.
Then came the teens which went by too fast,
Young Elvis's crept in and out of my past.
Young love, old love, no day was the same.
Adventure, adventure just playing the game
.
Then came my children, the number was three.
Each so different and a delight to me.
I could have not survived had this present not been sent
To need me and want me and hold me.....
I'm Content.
Now are the adventures of Old Life and pain.
I wanted in this life to make the big gains.
But these are the Works that God put me here for.
To help my fellow man to light a new star.
To help him to smile on a bad day.
To make the pain less and maybe go away.
I feel God smiling, and listen to him say,
"Poke, the world is much better for just one day.
One on one we have slipped through the night
One on one we will be alright"
Charlene"Pokie Too"Pryor
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