Today is the first day of my new blog... I intend on learning more about blogging, I must admit, I do not have a clue what I am doing! I hope it will get better as I go, and am open for any suggestions from those who blog or know computers better than myself (that will not be hard to find)! It is very important to me, that there is a place for families to meet... who have experienced the journey, of the combination of :
CHD'S AND STROKES. I currently know, about 10 families, with these circumstances and have recently met some families, who know NO others... I believe we can learn from each other's experiences/journeys... and I hope that anyone interested, will join together! Thank you for visiting JILLY'S CHD/STROKE JOURNEY! Heart and Stroke Hugs!!!
I CAN DO ALL THINGS THROUGH CHRIST WHO STRENGTHENS ME!
THE PATCHWORK OF JILLY'S JOURNEY
PRAY FOR JILLY
I started this blog, in honor of my little girl...
JILLYANNA ROSEMARIE
JILLY, is not only a CHD WARRIOR,
but is also a STROKE SURVIVOR.
Jillyanna RoseMarie was born January 5th, 2007,
with a complex congenital heart defect "CHD" called
Hypoplastic Left Heart Syndrome (HLHS)
On March 1st, 2008 (at 14mo. old), Jilly suffered
a STROKE to the right side of her brain.
On November 4th, 2010, Jilly again, suffered
injury to her brain. Both times,
Jilly had to relearn EVERYTHING!
And both times, that is exactly what Jilly did!!!
Although from birth, Jillyanna was on a difficult journey
with HLHS... the STROKES took her on a far,
more difficult path!
We have experienced great sorrow and great joy,
but the most important part of our experiences...
is that with God's Love and Strength,
we learned how to FIGHT even harder than
we ever thought possible!
We thank God, for this journey
he has chosen for us!!!
JILLY AND I, WOULD LIKE TO LEND
OUR SUPPORT TO OTHER FAMILIES,
WHO ALSO TRAVEL THIS PATH!
1 comment:
Hi - I live in Ithaca and my son Byron had a large stroke before he was born. Our blog -byronswonderfulworld@blogspot.com. He's going to be three next month. SInce we are so close in location, if you ever want to get together let me know! Denise 607-768-6820.
Post a Comment