Therapy Update

Hello!  First I want to post a comment to my friend, Anna---happy due date day!  I hope Walker decides to come soon so he can meet his future wife!  :)  I can't wait to meet and hold him very soon!

Ok, I just wanted to write a new post to update you on Grace's progress with speech and physical therapy.  We have been seeing the speech therapist for a while now, and she taught me how to feed Grace and do some exercises with her mouth.  We went back today just to follow up and she said Grace is doing great!  Although she is not 100% where she should be, she's close!  The ST will continue to see Grace as we start rice cereal soon, just to make sure we don't have any problems.  We will see her again in three weeks.  As far as physical therapy goes, we officially started last week.  The PT taught me how to do different exercises with Grace to help with her hypertonia.  Basically, Grace likes to stay flexed, so we have been working on extension.  The PT was pleased that Grace has made progress in only a week!  We will see her again in two weeks.

I am one proud momma!  We have been working so hard with all our exercises, and we are making lots of progress!

And of course, here are some cute pics of my cute girl!

Restoration Hope, Easter, & Update

I had several things I wanted to blog about, so I decided to write about them in the same post.  :)

First of all, one of my dear friend's brother Jason and his family (wife Brandy and three children) will soon be leaving to minister to the poor and fatherless in South Africa.  They founded a non profit organization, called Restoration Hope.  Jason and Brandy write about their calling and work on their website, http://restorationhope.org/.  One thing that stood out to me was what Brandy wrote in a post about starting Restoration Hope.  They had visited South Africa, and while there, God spoke to them.  She wrote: "Our hearts were full, not of pity, but of a deep sense of responsibility to be better stewards of the life God had entrusted us.  God led us to a place where we could no longer sit in the comfort of our normal life while the cries of this people echoed in the darkness."  Anyway, their writing and vision for this organization and their love for the people of South Africa has touched my heart.  Please support them through prayer, and possibly financially as they serve Him and others in South Africa. 


On to Easter...Grace went to church for the first time Easter Sunday!  We were so excited!  She was so beautiful I almost cried when I dressed her!  We also went to PawPaw and Nanny's house after for lunch.  It was so good to have the family all together again after so long of being apart.  One of my favorite Easter songs this year was by Casting Crowns...I love this part: Living He loved me, dying He saved me, buried He carried my sins far away, rising He justified freely forever, and one day He's coming, oh glorious day!!!  Here are some pictures from our Easter.

 Beautiful, smiling baby girl!

 The Golden family

Family of three

Grace updates...

We had an appointment with Dr. P, Grace's neurosurgeon, Monday, and after her CT, he said Grace has hydrocephalus and needs a shunt.  She will have shunt surgery May 18.  Even though this means another surgery, we are thankful that it happened in a non-emergent way, and that I'll still be home on maternity leave.  If she was going to have hydrocephalus, this is the best way it could happen.  

Also, First Steps came to evaluate her on Tuesday.  They were really nice!  A PT and a ST, along with our case manager, came to evaluate her.  They determined that she needs PT once a week, OT once a month, and another ST evaluation.  They were mostly concerned with her motor development (she scored 0-1 month in her motor development).  She had the highest score in her social development (2-4 months)!  They also are referring her to have her vision tested.  Basically, their concerns are: Grace favors turning her head to the left side (they want her to be able to turn it 180 degrees), she cannot track an object well especially to the right side (they want her to be able to track objects 180 degrees), she has her hands in a closed fists position most of the time (they want her to have them open more), she can't really hold objects (they want her to actively hold objects and look/attend to the objects), she has head lag (they want her be able to be pulled to a sitting position without head lag), she doesn't have great head control (they want her to have better head control and to look at us during tummy time), she rarely puts her hands to her mouth (they want her to have more hand to mouth motions), and her leg muscles are tight (they want us to stretch her legs out daily).  It may take up to 30 days for her to receive these services, so they taught me how to work with her until she starts PT/OT.  I was honestly surprised that they had so many concerns, but I am thankful for the First Steps program!  Our goal is early intervention, and over time, hopefully Grace can overcome these things...she's certainly overcome so much already!