Thirty Six

Today is my thirty sixth birthday.

A chaotic December meant I didn't do this last year, but I thought I should try to review this year, particularly as it featured such big chunks where I've been decidedly unwell, and there were so many things I wanted to do, had agreed to do or half-started that I then had to give up because of my deteriorating health. Before I started writing things down, it felt like there would be very little to say, but I did really quite a lot in the spring and haven't been completely idle since. This is going to read like a dreadful bragging Christmas Letter, but it's my birthday and this is mostly for my own sake.

• I had started doing a bit of editing for the F-Word towards the end of last year, but I think it was at the beginning of this year that I officially became Features Editor. Then my health deteriorated and I had to give it up this summer, but it was a very interesting and satisfying experience - I had previously enjoyed the mechanics of editing other people's work, but the best bit was facilitating others to say what they wanted to say to a significant audience. 

I model a winter lettuce - a woman with a lot of hair holds
a lovely green lettuce as big as her head.

• Early on in the year, I planted a load of vegetables. As the spring progressed into summer, my health meant things got a bit out of control, but those things that weren't killed off by neglect included tomatoes, lettuces, a small amount of pak choi (the caterpillars do love the stuff), radishes, baby sweetcorn (that was particularly good), peas, strawberries, French beans and runner beans. Oh and potatoes - lots of potatoes grown in sacks. I now have two table-height vegetable patches in the garden so I don't have to bend down.

• I had written this article last December but it was published this year and I'm very proud of it.

• We looked after a lovely old border collie for about a month, which was rather nice.

• I have had a lump in my armpit for the past six months. After the first two, it triggered NHS Lump Panic, eight individual strangers got to see my naked breasts in one afternoon but it was all fine. All this happened at a time when I could really have done with a break, but the care I received at the Breast Clinic was extremely good. Do get your lumps checked out.

I model the mermaid's tail - an enormous
mermaid reclines in a wicker chair with a
somewhat seasick expression on her face.

• I made a mermaid's tail sleeping bag for my niece. I scrapped an earlier attempt because it was a bit too small - at least, a four year old would grow out of it in no time. The finished version should serve her well if she is still interested in being a mermaid into middle age.

• I wrote quite a few blog posts and a couple of features for the F Word in the first half of the year. My favourite is this about women who, by virtue of being disabled, old, fat etc. are considered sexually and romantically unattractive by our culture.

• I drove a car! I have had a provisional license for a few years, but this year, on one occasion, I actually drove. It was awesome!

• It was the twentieth anniversary of my becoming sick in August, so I wrote a series of posts about chronic illness and coming to terms with loss. As, if you're reading this, you are almost certainly aware.

• I have been writing and editing fiction. Just not nearly as often or as enough as I would like.

• In the midst of everything, they happened to discover that I was very deficient in Vitamin D. I've now got an evangelical zeal about telling folks who also might not get out much that they should get their Vitamin D checked. However, I am too polite to give unsolicited health advice, so this may be the only time I ever mention it. 

• Purple Prose, a book about being bisexual in the UK was published. It includes some of my words as well as the words of far more interesting and brilliant people.

• My Dad retired, which has been absolutely great. His work was stressful and now he is not only very much more relaxed, but we see a lot more of him and have had some modest adventures together.

• I had lessons in the Alexander Technique to improve my posture, which is something I have fancied doing for years. Of course it hasn't fixed anything, but it has dramatically reduced certain kinds of pain in my back.

Snuffles the hedgehog - a fluffy brown hedgehog eats from
a dish of mealworms. She was one ill-tempered hedgehog.

• We installed a camera to watch the garden after we'd gone to sleep, to monitor the full extent of hedgehog activity. We saw a lot of hedgehogs and one night, a tawny owl landed in the garden and sat down with one of the hedgehogs to have a meal.

• Stephen acquired a tabletop game called Zombicide, where you go round killing zombies with dice rolls. This turned out to be tremendous fun and we have spent several happy evenings liberating prison blocks from the zombie hoards. 

• We saw a little more of our nephew and niece this year and had some really good times with them. They are both fantastic children and so much fun to be around. 

A young blackbird - a brown bird with pronounced beak and
speckled breast, sitting in a bush with white flowers.

• We think at least one hedgehog was born in the garden this year, as were some sparrows and a blackbird (left). This chap startled me when I was trying to see if he was still in the nest.

• Politics has been pretty grim. The world's progress towards being a more peaceful, freer, happier, healthier place - which has been considerable, even in very recent times - is in grave danger of stalling. A very great number of good folk have brought that progress about through hard work and I hope, a similar effort by very many people in both big and small ways will get us back on track. That may sound a bit crass amid all this light personal news, but like a lot of people, politics has been deeply personal this year.

• We managed to get to the theatre for the first time in a few years to see the Cambridge Greek Play do Antigone and Lysistrata. The latter was particularly brilliant, satirising the ongoing political nonsense and with songs in Ancient Greek we were all invited to sing along with. 

Two happy people at a picnic bench
with a field in the background.

• As everyone knows, Stephen is an amazing person, but he has been particularly heroic this year. We've always performed care for one another in ways which merge with everyday kindnesses and physical expressions of affection, but this year the work of keeping us going has shifted very heavily onto his shoulders. While it has been tough, we have not only survived, but we've often had a great deal of fun.

• It's been a very difficult year for several of our friends and family; other people have had major health crises, bereavement and money worries, as well as the personal effects of the year's disastrous political events. Thus I come to the end of 2016 with a heart full of love and hope that next year is much much better and brighter for those who have had to battle through to this point.

I hope that anyone who actually read down this far has a wonderful, peaceful holiday season whatever you're doing with it and a very happy New Year.

Mother's Day, 2010

I had read that you should try to write fiction with just one particular reader in mind, even if your reader is an entirely imaginary person. It’s a mistake, I read, to write for a broad audience. It’s easy, I read (and found out for myself) to get distracted by the idea of different people reading your work. You can’t please everyone. You may shock, annoy or offend some of them. And you don’t want to write the book that wouldn't shock, annoy or offend anyone at all. 

Instead, I read, you should identify someone who you think will really enjoy what you’re trying to do. If you don’t know anyone like this, invent them. Make them up and keep them in mind.

I didn't know anyone like that, so I made them up; my imaginary ideal reader. Not someone who would unquestioningly adore every word I wrote, but someone who would love what I wanted to achieve. I made them up and kept them in my mind. They were quite appealing to me so they became a secondary character in my novel, a love interest in a rather unromantic book.

I made them up. Then a friend sent me to their blog.

………..

My novel was near completion when 2010 came around. I had worked so hard, for so long, with so many damn set-backs. There had been periods of months where I couldn't write, because I was too sick or because all my energy was otherwise spoken for.  There had been periods of months where I couldn't write because my confidence had been comprehensively flattened. And now, finally, I was nearly there.

A satellite image of the UK in January 2010.

This was a long, hard winter, the coldest in my life time. There was snow about for weeks. My then husband had had an argument with his family at Christmas and was spiraling into depression. In January, my friend Jack died suddenly – the third friend who, having enthused about my writing and looking forward to my completed novel, had died before I was done (I’m putting this in the context of my novel-writing; this was not my first, second or third thought on hearing of Jack’s untimely death). This was the year I would turn thirty and I started doing a Project 365, taking a photograph every day. 

There was something else going on. I would like to say that a rational calculation was taking place, but it wasn't. I would like to say that I was beginning to stand up for myself, but I wasn't. I often say, of this time, that my marriage was falling apart, but I didn't know that. Not yet.

I was very happy. I was not happy. I felt extraordinary well-loved; for much of my adult life, I’d been lonely, believing I was little more than a convenience or a useful ear to my friends, but that had all changed. Despite pessimism from my then husband (nobody will turn up and I’ll have to pick up the pieces!), I was planning a thirtieth birthday party with my three close friends. Two of them were old friends by then, but I’d only recently realised what that meant.

And thus, I felt full of love, but a love like molten lead; I was weighed down by it, burning up with it, in danger of starting a fire if I stood too close to the curtains. Sometimes I basked in the warmth and light of it all. Other times, I wanted to open a window and scream for help. That last sentence isn't a metaphor.

The last two blog posts I wrote before I finished my novel were On Not Being Beautiful #1 and #2. These are strange to me now, because what I wrote is perfectly valid, but I know they are written by someone who is regularly being told that she has the face of a Klingon, the skin texture of a pizza, her arse takes up all three lanes of the motorway or some variation of the above. At the same time, she has friends who casually tell her how good she looks, who greet her “Hello gorgeous!” or sign off e-mails, “Keep smiling, beautiful.” She's trying to navigate the dissonance.

Everything was rather like this. My friends were excited as I moved towards the end of my book, while my then husband said I wasn't going to make it and mocked every error or slur in my speech with, “I thought you were supposed to be good with words.”

………………

During the last month of novel writing, I went a little mad and this madness was that bloody novel. It sounds dreadfully pretentious - suffering for my art - and I do know it was completely unnecessary. If my life had been better, it would have not made me sick and, crucially, my work could have improved.  I didn't have to bleed all over the page (metaphor), I didn't have to go into hell and back just to get the words down (not sure). These days I can write with greater power and much less pain and mess. Back then, I was in pain. I was a mess. 

This is the sort of thing I got up to at this time.
(A sort of pyramid made up of white blister
packs on top of a wall socket against a red
wall. A tiny metal angel looks on.)

I couldn't work all day long, but it became very much harder to shut down my mind or escape into other things. I couldn't sleep when I tried and fell asleep with my fingers on the keyboard. I lost interest in food. I was sometimes confused about whether I was living in the story of my life or the story I was writing.  

I listened to music of flight and music of falling. I did a little yoga every day and always finished playing Otis Redding's cover of (Can't get no) Satisfaction. I played the Cranberries’ No Need To Argue album an awful lot, just as the daffodils came into bloom. 

Other things too, I would understand differently later on; my long exaggerated startle reflex was now ridiculous. Someone could casually approach me, no loud noise, no sudden movement and I would cry out in alarm. Then there were moments of high drama, threats and shouting where I noticed I felt nothing - worse, I was thinking about some trivial aspect of my novel, as if what was happening in the room was some unfathomable soap opera on the TV in the background.

I was also trying to help my then husband, because he was really very unwell. Every day I spend time looking for jokes or funny stories to provide a moment's relief. I rented movies I thought he'd like and watched every one by myself first, in case there was something that would upset or annoy him. At one point, I bought him smiley potato faces in a desperate childish attempt to put a smile on his face.  

The night before I finished the novel, I told him that I was starting to panic about the deadline I had set. He responded, “I don’t care.”

The next moment, an e-mail from Stephen; How It Ends by Devotchka. I began to listen, thinking, Oh god, this is long and I have no time, it’s got accordians in it and I’m going to have to say something polite about it! but then the piano started. It was oddly perfect. I listened to it on repeat as I worked. In the morning, I played it again four or five times until I got up the courage to send the long rambling e-mail I’d been writing, complete with a 144,000 word file attached.

In this e-mail, I tried to tactfully address the fact that Stephen might recognise himself in one of the characters, but he mustn't read anything into it. After all, Stephen has a different reason to walk with a stick and references Dawn of the Dead rather than Chopper Chicks in Zombie Town as an allegory for human endurance. The personalities may be identical, but I wrote all that before I knew him. I made him up! I don't want Stephen to think I am secretly in love with him or anything. 

I couldn't say all that. So I wrote around it. At a great length. 

 ..................

(The bottom of an unsent e-mail, reading
"Got to... click... send... button..")

It is Sunday morning; Mother’s Day 2010. I take this screen grab and put it on Flickr. Only one other person, apart from Stephen and I will see it and know what it means. But I am compelled to make some public record.

Then I click send.

Everything has changed. I've written a novel. I am not the same person I was yesterday, when I hadn't written a novel.

Stephen e-mails me with photographic evidence of my novel safely on his e-reader. He then sends the Thomas Truax cover of I’m Deranged in response to that weird rambling e-mail.  Half an hour later, he e-mails to tell me he’s read the first chapter. He's loving it so far.

(An e-reader held in a hand.)

I haven’t mentioned the fact that I've finished my novel to the man I am inexplicably still married to; I really hoped he would ask. But I tell him that Stephen's read the first chapter. No congratulations. He says, “Sure he’s not on top of a tall building, about to throw himself off to avoid reading the rest?”

My then husband is thinking about death a lot and imagines I have the same effect on everyone.

It’s Mothers Day. I must spend time with my mother.  

My parents and I go to my cousin’s house, where we have a meal with two cousins and an aunt (we’re supposed to be eating with my Granny, since it’s Mother’s Day, but we've managed to mislay her). We catch up with what was happening with everyone’s life, apart from mine. We talk about my sister, brother-in-law and nephew, we talk about other cousins, their partners, aunts and uncles, we talk about Granny and the great uncles and aunts. Even a couple of second cousins are mentioned at one point. Nobody asks me a damn thing.

I notice this - I do notice it, from time to time, the way my family believes I have absolutely no life to speak of - but I especially notice today because I’m thinking, 

This is the most important day of my life!

This really is. I consider blurting out, “I just written my first novel!” but I don’t. And to be honest, it’s just good to be out of the house and away from everything, to hear about other people's lives and dramas. People write books; it's not all that extraordinary. It's just extraordinary that I should.

It’s also good to have some time away from my laptop where I might anxiously await e-mails from Stephen. When I get back, he's e-mailing to complain that he had a sleep during the day and my book gave him nightmares.

The produce of my imagination has entered another person's subconscious. 

…………

On the Monday, while Stephen is still reading my novel, my then husband and I have a big talk. He tells me that he doesn't love me anymore. I am boring, unattractive and very difficult to live with. He knows he’s depressed and things may well change in time, so there's no point doing anything about it right now.

I have heard something like this before, several times. The routine is that I go on a sort of probation; try harder, avoid pissing him off so much and after a while, I will say I love you and I’ll get it back: “I love you too.”

But this time, I take it badly. A big chunk of the lovely awful molten lead inside me breaks off, leaving a deep physical pain, a gaping aching space in my chest where there should be no space. I weep. It is like witnessing a death, the totality of loss I feel.

Yet, straight away, I feel lighter. Lighter in a lost and listless way, but definitely lighter.

A friend and I have talked about me staying with her in Wales for a week sometime. I call her and we make a proper plan.

…………

On the Tuesday, Stephen finishes reading my novel. We talk on Skype for about two hours. He loves it. He is brimming with praise and talk of the bits that scared, moved or amused him. He is so proud of me, he gets a little choked up saying so. There are issues with pacing. There are a shameful number of typos. There are a few points of slight confusion. But he loves it. 

When we've finished talking, the man who doesn't love me anymore warns me, quite seriously, that I mustn't trust Stephen. He’s too nice. He couldn't possibly be being honest about it.  

I believe otherwise.

The 10th Bloggerversary Post

This morning I thought, "It must be about ten years since I started Diary of a Goldfish." and indeed it is - Sunday was the tenth anniversary of my very first post. I started on the casual suggestion of my brother-in-law, before I ever really read a blog. I feel quite lucky that I plunged into it without much thought - if I had had a particular agenda or theme, it might not have proved so useful.

A lot has happened in ten years. I wrote a novel and am almost done with my second. I got married to the wrong person for the wrong reasons, met Stephen, divorced and married the right person for the right reasons. I learned to paint. I've seen a fair amount of bereavement but I've gained a nephew, niece and a new extended family. I moved home four or five times, depending on how you count it.

As a result of blogging, my words have ended up all over the place; The Guardian, the BBC, education resources, disability studies periodicals. I got my face on the front cover of The Cambridge City News (along with some rescued kittens - it was a real slow news day). I've been invited to join Where's the Benefit? and the F-Word. I never had any ambition to do any kind of non-fiction writing, so it's been great.

I've also made some very good friends and had some very interesting and important conversations. I founded Blogging Against Disablism Day, which I know has come to mean a lot to many people.

However, this blog is really a gift you give to me, dear reader. I don't imagine I'm providing any kind of public service or useful function - it's really nice when something I write is useful or interesting to someone. But the person who has benefited the most from Diary of a Goldfish is me. It's given me lots of writing practice and helped my writing to improve. It has given me a place to express myself, vent and lecture people on subjects that matter to me without awkward social consequences. And I know you're there, in varying numbers, so I can pretend you're hanging on my every word. I sometimes get lovely comments, here and elsewhere and that stuff is huge to me. At a particularly difficult point in my life, I had an A4 print out of the nicest things people had said about my writing.

My blogging has changed a lot in ten years (as the world of blogging has). Earlier on, I was more or less keeping a diary, which was useful because, at the age of twenty-four, I was still struggling to be the protagonist in my own life story. Later on, some of these posts became downright disturbing. While it was going on, nobody knew about the violence in my first marriage and I rarely had to explain anything - my face was never bruised, I never sought medical attention. However, after my divorce, when I went through my archive in order to completely anonymise my first husband, I found that it was as if I had been compelled to write on days where there'd been violence and instead tell a funny or sweet story where no-one got hurt. I was spinning stories to myself, in public. Sometimes I told abject lies - entirely unnecessarily lies.

I find that baffling and weird, even now. I took all these posts down, by the way. There are plenty of posts where I express ideas or opinions I no longer agree with, but I took down anything I found where I actually lied.

There have been a few points where I thought about ditching the blog, possibly starting afresh, but I'm really very attached to it. If I had thought more about my 10th Bloggerversary coming up, I would have prepared a better post.

Stephen suggested that I should post links to my "Top Ten Posts". I don't know if these are my favourites - there's almost a thousand to choose from and I'm not going to spend the next week reading through my entire archive. However as a fairly evenly spread selection (2005 was just too weak):

1. Love is real, Real is love (2006)
2. Above and Beyond: Butch's Diary (2006)
3. Propaganda (2007)
4. I thought I was someone else, someone good (2008)
5. How to be a Disabled Villain (2009)
6. It Was Thirty Years Ago Today (2010)
7. Looking After Yourself as Radical Political Activism (2011)
8. Domestic Violence: Why Zero-Tolerance is So Tough (2012)
9. How Marriage Became More Meaningful (2013)
10. The History of My Adult Life in About 100 Objects (2014)

And now, having skimmed the archive to retrieve these links, I realise I really ought to organise some pages of links to the three or four subjects I keep coming back to.

Thank you all very much for this. Where on Earth are we going to be in another ten years time? 

The Potato Harvest

Stephen and I finally moved into our own place.  It's weirdly blissful. Weirdly because there's a lot going on and we've still got a huge amount to organise and work out. But it's so peaceful. We're very busy and very peaceful; quietly productive.

We live opposite a junction and watch a lot of agricultural traffic passing through; enormous slow but very deadly looking farm machinery, mud-splattered jeeps, the occasional horse. Every now and again, we'll be sitting quietly in our living room (our living room) and Stephen will exclaim, "Potatoes!" as a truck, bearing enough spuds to feed the village for a year, goes by.


For almost two weeks, I couldn't believe we'd really done it. We've talked about a home of our own for four and a half years. We've talked so much and planned and schemed, so that actually moving in felt like a further exercise in fantasy, as if we'd been allowed to play house for a few days before having to go home. Home - I was finally given my own key to my parents' house on the day I moved out.

This spell was broken by a new washing machine - strictly speaking, a washer-dryer. Turns out, when the machines achieve singularity, they won't take over and enslave us, they'll simply humiliate us by undermining all logical steps we might take to wash our clothes. We could have fantasised about the peace and quiet, the freedom and the flat-pack furniture (it's so satisfying). I wouldn't have fantasised about spending the best part of a day trying to get one load clean and dry(ish). So it had to be real.  It's real.

When he was a boy, Stephen heard the Strangler's Golden Brown and understood perfectly; Golden brown, texture like sun - Hugh Cornwell was quite obviously singing about his love for potatoes, a love that young Stephen could relate to.

This is one reason why I love him. I've known a few people who have survived periods of adversity by holding fast to some positive in their life; a dream for the future, a passion in the present, a pet cat. At some point, Stephen learned to find joy in the minutia; the pattern of veins on a leaf, the comfort of woolen socks or the glorious versatility of the humble spud. He's carried me through difficult times this way. Bad morning? Then let's make lunch an event. To say every day is special sounds both corny and slightly nauseating, but the truth is occasionally like that.

Manna From Potato Heaven; a large, still rather dirty
potato embraced by a pair of manly white hands.

As the potato-laden lorries turn the corner, they lose a little of their load. You often see this in the countryside, at this time of year; mostly root veg and sugar beet, scattered along the outside of sharp corners, usually cracked by the fall and crushed by the proceeding traffic. The gutter outside our house is strewn with spuds, partially-mashed.

A large specimen lands in our garden, perfectly intact. We'll have that. Vegetarian roadkill.


We've always lived in other people's homes, one way or another. Stephen has always lived with his parents. I've lived with my parents, my ex-husband and briefly, a friend, but I've always had to fit myself to other people's routines and rituals, the way other people want to do things, sometimes infuriating in their futility, sometimes just impossible to abide by fully. When I first left my ex-husband, the relative freedom was overwhelming; when you've had someone else dictating everything from what you wear to how you make a cup of tea, it's hard to know where to begin.

Something similar is happening now, although it's shared between us. We need to work out how to manage our energy, now that we can do pretty much what we like, whenever we like. Fending for ourselves, we need to use a lot of energy on the basics, but those basics don't need to accommodate anyone else, whether in terms of space or timing or anxiety that if there's food on every shelf of the fridge, it may stop working altogether.


It's a long time since I lived in a town; I've never lived in the city.  But I don't know what comes next, once all the potatoes are gathered in.  I'm sure onions came earlier - late August, early September. You could smell them, even if you couldn't see them.  Once the potato lorries drive away (Potato Merchant, one of them declares on the side), is that it, for the winter?

I'm so tremendously happy right now.

The History of My Adult Life In About 100 Objects.

I am eighteen and I am leaving home. I take what I can fit into a suitcase and a shoulder bag and carry on and off a series of trains. Seven or eight months later, my parents deliver what I couldn't carry, namely Ho Chi Minh (my hamster), his cage, my lava lamp, a considerable collection of artificial flowers and a few books. A lot of my old stuff stays with my parents. Some of it will be given away over the years. 

In the brief tense mistral before we moved in together, my boyfriend presented himself as an anti-materialist, aspiring to having no more personal possessions than would fit into a backpack. I soon realise why he would have such an aspiration; at thirty-four, this man cannot fit his cuddly toy collection into a single suitcase. 

We arrive together, open a joint bank account and share the rent, but I live like a guest in my boyfriend's flat. When we argue, he threatens to send me home. He chooses all the furniture, all the stuff. Things we share are sometimes given away or sold without my knowing. Even my own things are sometimes half-offered to other people before I, cornered, am asked whether I'm happy to let them go. I usually am. It's only stuff. 

My possessions are referred to as my shit. Anything of mine; clothes (now bought to his taste), my computer, art materials, stationary is shit. At the same time, I am constantly berated for not taking care of things - if an item of clothing gains a hole, a paintbrush loses bristles with use or an old computer has hardware problems, it is because I've been mistreating my shit.

Making cups of tea and cooking, I dirty too many teaspoons in one day. We have twelve, so he hides nine of them. A few years later, I find the other nine by accident, but they are more trouble than they are worth. They remain in their hiding place.

A spherical paper lampshade reflected by two opposing
mirrors, ad infinitum.

I am not a materialist. What do things matter? Objects are about status and insecurity; people want stuff to show other people what they have, to seem important, individual or fashionable, because acquisition becomes a hobby and stuff is mistaken for love or achievement.

I'm not like that. I am cool, easy-going. I can believe this while being fascinated by aesthetics, reading art and design books and blogs, making art, crafting all the damn time. But that's different; I make stuff, I give it away and leave others to make of it what they will. I paint but none of my pictures remain in our home (not like my partner's paint-by-numbers effort, that is mounted, framed and hung on our living room wall.).



There are things I would like to have to make my life more comfortable and pleasant, but I know the objections it will meet: it will be a waste of space, it will be a waste of money, it will gather dust, it will generate condensation, its presence will cause accidents, I will use it wrong and break it, I won't use it at all, it will create work for other people and it isn't worth having. Often, on top of all this, my motivations for having a thing are wrong and misguided; I am naive, I don't know what I really want or need, and I am too easily influenced by others.

That one is true actually - during this period in my life. I am way too easily influenced by others.



I am twenty-three. After eighteen months of barely leaving the flat and never alone, my friend is selling off her old electric wheelchair and my Granny offers to buy it for me. Everyone thinks this is a really good idea. I get the electric wheelchair. Weeks later, I persuade my partner that I am safe to go out alone.

There are periods when I can get out alone. There are periods when I'm too ill and genuinely unsafe. During such periods, I am reminded of the poor wisdom of having an electric wheelchair.

I am twenty-six. We move. It becomes impossible for me to take my powerchair out at all without help and, although there is an able-bodied person in the house all day long, there is no help available. Not that, I am reminded, there is anywhere worth going. Now it really does take up space. Now it does gather dust. I offer it as a long term loan to a friend. I consider selling it to replace my failing laptop.

Later I will think, What on earth was I thinking? The chair is not quite my legs - I can manage in the house okay without it. But it is my outdoor shoes.

I think they call this pattern "Damask"; a black and white
vaguely floral pattern on a plastic surface.

I am twenty-eight. Always in trouble for being clumsy, I buy a plastic tray to place under the kettle and tea-making area to reduce spills on the worktop. It is black and white and boldly patterned. This is the first and last object of visual interest that I ever impose on our shared environment. When the house is tidy, the only signs of my presence are the spines of books, CDs and DVDs. Even my shoes are hidden under the bed.

We live in a two bedroom bungalow, using the box room as a living room and the living room - the biggest room in the house - to store my husband's piano, guitars, keyboards, synthesizers, drum-kit, dolls house, swords, computer equipment, exercise bike, lazer-cutter, a plastic model kit collection which dates back to before my birth and two full size manikins.

Off to the goth festival, my husband says he needs some new plain black t-shirts. I check around and find 17 spares; 17 completely unworn plain black t-shirts in addition to the ones he wears every day.

During later pleas for my return, he will cite this physical dominance of our space as a behaviour he's prepared to change, as if that's why I left. At the time, it really doesn't bother me - I don't really notice, to be honest - and even with hindsight, it is the very least of my concerns. I can manage with little space, but I have no peace; no peace, no basic respect, nothing that would look like love to someone who has known love.

That particular year, he smashes three things in violence; a tray (though not my nice new one), my laptop and a bathroom door I was leaning against. The broken tray and the door - now little more than a frame with cardboard taped over the middle - will still be on display when I go. He still intends to fix them.

I am not a materialist. What do things matter? If I have not worn an item of clothing or listened to a CD during the previous year, I put it on eBay. Books, I often give away if they can't be sold. Art and craft materials are trickier, as they are not easily resold and little bits and bobs do come in handy later on.

A heart-shaped cherry quartz (red) bead with other
round beads, including opals if I remember correctly.

Somewhere in my head, I have confused two ideas. One is that it is morally wrong to buy things we don't want or need, which are often produced unethically and at great environmental cost, and may well end up being thrown away without use. The other is that it is morally wrong to have stuff. To even hold onto stuff - to take up space. At least for me.

Thus, I regard my bead habit as a vice. I buy interesting beads. Not very expensive beads (I know they exist; I window shop) but fancy glass or semi-precious stone beads, mostly from eBay. I do make jewellery sometimes, but I have a stock I will probably never use; a collection of small and beautiful things I can bring out to look at then store away out of sight.

My Gran gives me her old dressmaker's dummy. I am delighted, as I am an odd shape, have little money and dabble in making and adapting my own clothes. But I have no room for it. It sits at my parents' house for a few months and then they take it to a charity shop. A dressmaker's dummy costs about £100. Because it is not an essential item, even for making clothes, I can't imagine a time when I will be able to afford to replace it.

A great collection of purple clothing and fabric.

I am twenty-nine. I am leaving my husband and must sort out my stuff. I have to throw some things away. I try to sell decent clothes and give away some of my books but there isn't much time. I am sleeping on the sofa and, together with the physical effort of all this single-handed sorting out and the tension of living in this house, sleeping with the door barricaded and my walking stick beside my pillow, my spine is suffering. It feels as if the weight of all this stuff is bearing down on me.

The last day - the last morning, before I set off to Wales, is a nightmare. I can't stop finding bits and pieces that I need to make a decision about; a CD, a hair accessory, a pen. I have to leave the house in a mess, which I know will invite complaints. I have had ten years of such complaints, often with fists. Once I'm in the car, I couldn't really give a fuck.

My Mum has been listening to a Dubliners tape and when she starts the engine up, it automatically plays Don't Get Married. Later, this will seem funny. At the time, it is not even slightly funny.


My worldly possessions now consists of a stream-lined quantity of clothes, art and craft materials including my beads, paints, fabric and two easels (one freestanding, one tabletop), a ukulele, a guitar, a manual wheelchair, a powerchair, a camera, an Asus EEE-PC (the original - it will give up the ghost in exactly two weeks time), a Mac Mini computer (no TV or monitor), an ancient sewing machine, a great quantity of books, a box of CDs, a dozen DVDs and a further box of miscellaneous bits and bobs, including the lava lamp mentioned ten years earlier, now minus its cap.

We carry it in my parents' two cars. We stop off in Bristol overnight and part of me wishes my folks' cars would be stolen from outside the hotel. I am a problem and my stuff is part of that problem; I can't lift and carry it, I can't even drive it about. There's too much of it and yet, this is all I have.

A double-string of literally jet black multi-faceted beads. 

My ex asks for his wedding present back. It's an antique jet necklace and despite appearances at the time, he wasn't thinking of me when he bought it - he wanted it for himself and merely gave it to me to wear rather than keeping it in a drawer. I try to work out how much it is worth, although it would be practically impossible for me to sell at value. So I sell it back to him. I need the money and negotiate the return of The Wire and Battlestar Gallactica boxsets, which I originally bought anyway, not expecting him to like them. I'm not even all that keen on Battlestar, to be honest. 




I am lodging with a friend, who is having a very hard time and has particular anxieties about stuff and clutter; my landlady has too much of it and doesn't want any more in the house. This is fair enough. I count 27 tins of rice pudding, distributed randomly around a pantry serving a household where nobody eats rice pudding. There may be more, tucked out of sight.

Of course, my stuff isn't any problem. Only, you know, it's a bit of a problem. No, it's no problem. But, you know, it is taking up space. Only, it's not any real problem at all. My friend and landlady is, she reassures me, always true to her word and I believe her.  But that word changes a lot.

A collection of pillows and cushions.

I continue to sort through my stuff, looking again at the things I already chose to keep and choosing to let some of it go. There are some basic things I need to buy and frankly, that's exciting. I buy a v-shaped pillow and extra regular pillows. I buy a waste paper basket. I buy my own towels, which are floral and cheerful and alarm my landlady. I have never had such choices before. I was sometimes consulted, but I didn't buy things myself, spontaneously, not things for living with every day.

There's no chair in my room and the bed moves away from the wall when I lean on it. My back pain is getting worse because of this and the physical tension of living with flashbacks, panic attacks and nightmares which intersperse a period where I am now happier than I have ever been. I decide to buy a deck chair - a fairly posh one, for comfort - as I can lean back in it and it can be folded away and take up almost no space at all. I shouldn't speak to my landlady about this, because it makes her nervous. She'll hardly ever see it, but I am bringing more stuff into the house.



I am not a materialist. I'm vaguely aware that as a divorcee, I am entitled to the value of half the stuff that my ex-husband and I had between us, but initiating a straight-forward no-property-involved divorce from a safe distance of three hundred miles is difficult enough. That's the truth of the matter. There are times when I get angry about it, feel a coward or irresponsible for letting all that go, but honestly?  It's okay. I am breaking free.

A wooden picture frame with a curly swirly
tree pattern. 

In Tregaron with Stephen, I see a beautiful picture frame. It is about £16, which is an awful lot to pay for a picture frame, but Stephen buys it for me - for us, for our eventual home. It is the single most beautiful thing I have ever possessed up to that point. It might be months before I see him again (in fact it will be three weeks but we don't know that), so our photo in that frame mean the world to me.

A few years later, we will watch horrified as a very similar frame is featured in this monstrosity. Fortunately, if inexplicably, it is featured on its side. Like an inverted crucifix.



As I travel back across to England to visit family, my friend and landlady's tune-changing and with it, the spectre of homelessness, weigh heavy on my mind.  While I'm away, despite reassurances that it wouldn't happen, someone else is invited to stay in my room. My friend and landlady complains about having to move all my stuff around - I've got so much of it - in order to prepare the room I rent for her guest.

I'm not really well enough to travel back, anyway. I ask my parents if I can live with them for a bit.

Having helped me carry my worldly possessions back and forth between East Anglia and West Wales, my folks feel able to remark about what an enormous amount of stuff I have. I'm thinking that when they were my age, they had a three bedroom house, a garden shed and a garage full of stuff, whereas all mine fits in one room, along with my borrowed furniture. But this is not my house, I wasn't sure they'd cope with my return and I am extremely grateful.

My Mum offers to help me go through everything and throw out the things I don't need. This offer is repeated, in various forms, such as, "I'm about to put these two boxes in the attic. Shall we just go through them? We might only need one box."

I now have four very beautiful ceramic spoons with goldfish
on them in my bedroom.

I am living in a room with no shelves, so I look at my books again. Of course, I have books which I may never read. I have books I have read but will not read again. What is a reasonable number of books for a person to keep? There must be a number, depending on circumstances, just like there's a reasonable amount of money to spend on a winter coat, according to one's income. Only books are not a winter coat. I mean, stories are important, reading is important, but the possession of physical books? They are not a winter coat. I have no winter coat.

My folks' house is probably about middling on the clutter front. But both my parents despair of the habits of the other and thus, both my parents believe their house to be cluttered. Mum is sentimental and has trouble letting go of trinkets and objects, even quite ugly things, inherited or received as gifts. My Dad has a collection of wire, along with phone chargers and sundry defunct or dysfunctional tech. They'd both like to have a good clear-out but they never have time. In truth, each would like to clear out each other's things.

Now they both want to clear out my things.


At some point, I have acquired some tea-towels. They are stored with other things in a box in my parents' garage. A mouse (or possibly a gang of mice) eat them.

I keep a scrapbook of cards these days, and favourite ones
get put in frames (a framed greetings card on a bookshelf)

My parents were once poor but they're now quite well-off. They don't feel well-off and so don't expect that even I, homeless by some definitions, should see things and money differently. It is inconceivable to them to fix or make do with something if a new one can be bought, because obviously, everything is so cheap.

When I was a child, my Mum made or altered most of our clothes. My Dad and I made a guinea pig hutch and a garden bench for my grandparents. My grandparents made stuff for us; furniture, curtains, toys. We all made stuff and, because perhaps I got sick so had the time plus very little money, that carried on for me.

Now they mock me for patching things up, making do with old stuff or making new items as if it is all a false economy; way too much trouble when I could just go out and buy things. As if I could, just go out and buy things.

My Mum observes I have a hole in my skirt; I should throw it away and buy a new one - she will buy me a new one, as a present, such is her enthusiasm for the disposal of the first. All my clothes are in a poor state of disrepair but this skirt is thinning fast, practically opaque in places. Still, I don't let it go.

A great amount of paperwork. Fortunately, I don't possess
this volume of paperwork any more.

In fact, I find myself incapable of throwing anything away; blister packs, broken pencils, torn and useless scraps of bubblewrap. My room becomes a tremendous mess - it looks like the room of someone with a serious mental health problem. It is a shocking sight, especially given that my presence is almost undetectable in the rest of the house; I pick up after myself, wash my dishes, tidy the cushions when I get up from the sofa. Part of me believes, because I have been told it over and over and over and over, that I am simply a slob and that this is what happens in a room occupied by a slob with no-one to shout at her about it. But another part of me looks at the room with barely a patch of carpet in sight and wonders whether the flashbacks and panic attacks might be worth mentioning to the doctor.

Also my back, which is getting worse and worse.

It is my thirtieth birthday. Stephen gives me a photo album containing the story of my year. There are hardly any photographs anywhere, print or digital, of me during my twenties. It is almost as if I have started existing again after a period of non-existence.

My Extensive Mug Collection, 1980-1999 and 2010-2014
(Four different mugs in muted colours)

I am thirty. Stephen and I begin collecting for our
bottom drawer. Mum calls it this; back in the day when almost everyone lived with their parents before and sometimes after getting married, young couples would begin to collect bits and pieces for their future home in a literal or metaphorical bottom drawer. Some of our things for our future life are stored, quite literally, in our bottom drawer.

Stephen and I begin to live together in two places, relying on our parents to transport us between Surrey and Suffolk every two or three months. We try not to carry too much stuff on these journeys and thus we end up buying more things. The first extra thing is a camera tripod. The second thing - after much discussion, because it feels like pure excess - is an extra pair of ukuleles. We don't double our clothes, but once we live in one place, we will probably have enough to cope without a washing machine for two or three weeks. We end up with duplicates of other things by accident, because we forget what we've got and where.

Our bedroom wall: A pale-coloured wall with a collection of
paintings, prints and photographs in a variety of frames.

We sort out our bedroom at my parents' house. We erect shelves, during which I have my final really powerful flashback.

My parents cope badly with us changing things in their spare room, putting pictures on the wall, changing the agony-making mattress for a memory foam one, installing a linen basket. It's not a problem, of course - we are welcome here; it is our home. Yet there is tension. I imagine it feels like the occupying forces are taking down their tents and establishing their own bricks and mortar. I imagine this but I don't know what else we can do. I have lost patience with mixed messages.



There are many things which I have wanted for a long long time, but which I could not justify before. Not because I couldn't afford them (although sometimes I couldn't), but because I couldn't present a case that they were absolutely essential, they wouldn't take up space, they wouldn't cause additional problems and I wouldn't waste them, break them or forget to use them.

Most of these things are presents from other people. But I am allowed to express my desire for them, accept them and keep them. They include:

My notebooks. Some of these are full already.
(A collection of notebooks of different sizes with
various patterns).

1. An MP3 player. Now I even have blue tooth "sleep phones" - a headband with earphones inside it so I can listen to music, podcasts and audiobooks in bed. 
2. A shower seat. So, you know, I can have a shower. 
3. A kettle in my bedroom.
4. Houseplants.
5. Doc Martin boots. 
6. Multiple and variously-shaped pillows and cushions.
7. A king-size duvet on a standard double bed. 
8. A special table for painting in bed. I am allowed to paint in bed. 
9. Notebooks - not just one notebook, which I must fill cover to cover before starting on another - but multiple notebooks I can use for different purposes.  
10. After my second EEE-PC dies, a laptop computer that is neither second-hand nor the very cheapest one on the market. 

Surrounded by pillows, my back improves.

Two red "Le Creuset" soup pots. They are super cute.

Despite their remarks about over-crowded living conditions, my parents often buy us presents when they're out and about; a cushion with a fox's face on it, a plastic saucepan for the microwave. At Christmas, birthdays and on the occasion of our two weddings, we receive many lovely presents; things we would never have thought to buy if we were stocking up from scratch ourselves. We have a few super cute pots for soup and miniature casseroles. Stephen's parents save up their Tesco vouchers and buy us Alessi cutlery, which is extraordinarily posh. My sister-in-law brings back beautifully ornate hand-painted bowls from Istanbul. We have a collection of decent cookware and utensils, even cake tins in our bottom drawer.

Our future home will be filled with beautiful things we couldn't possibly afford ourselves. We often get things out to admire them and fantasize about using them every day.

This is now and I am thirty-three. We hope to have a place of our own within the next six months. We're going to need a lot of stuff we don't have now. We have use of two beds but we don't currently own one. We do own a chest of drawers and have inherited a rocking chair but the latter needs reupholstering. Mice are beginning to eat it.

I'm looking around and thinking, do I want to take everything with me?  Because honestly, I still have things I don't really want, things I don't really need but which look like they might be useful, or valuable in some way. We are going to need more stuff, so I'd like to have less of the stuff I don't need.

I own a vase. A white vase the shape of a Florence flask
with peach-coloured lilies on, on my bookshelf.

I am not a materialist. Things matter because they are useful, they bring us pleasure and they can be infused with meaning.  Having beautiful things and useful things that I could live without but which bring me immense pleasure (like my MP3 player) makes me feel very fortunate and very free. Having beautiful things is like being able to eat delicious food or listen to fantastic music (on my MP3 player). There's a big difference between taking pleasure in objects and connecting their value with personal worth (did I mention that my MP3 player is an iPod?).

There is no moral to my story. It is just about bad luck, good luck, mixed luck, a bad back and stuff.



Mum isn't in a great mood. I bring two A4 sheets of cardboard - the sort from the inside of reinforced envelopes or the back of paper pads - into the kitchen.

"Can I throw that out?" asks Mum.

"I was just about to," I reply.

"Good," she says, grumpily. "We don't have room to keep stuff like that here. When you have a place of your own, you can have as many old sheets of cardboard as you like." 

A rag rug to a bull

A rag rug: A squarish rough-textured rug with a four-petaled
flower pattern in blues, greens, purples and pinks.

Craft is one of the most universal and least manageable symptoms of chronic illness. Stephen and I have been quite unwell throughout much of January and thus have had enough time when we weren't able to do anything more useful, in which to produce a rag rug.

There were many scraps of nice fabric left over from my wedding dress and other sewing projects, plus I had a small collection of old clothes which were too worn out for selling or donating - jersey tops which were stretched, had holes in or splodges of paint on them. Naturally, we had to accept that any rug we made was coloured in the the same palette as my wardrobe. 

The back of the rug: hessian with
loops of fabric sticking through.

To make a rag rug, you need some hessian sacking (£2.50 a metre, including postage) and a load of waste fabric, cut into small strips. You force the strips through the weave of the hessian, then back up again, and secure with a knot. Granny says the knots are unnecessary, but I imagine she may have done a neater job in wartime than we could manage.  

Close up of the rug texture.

I bought a cheap wooden tool called a proddy from eBay but we gave it up pretty quickly for an ordinary pencil. A pencil does just fine and if you're sat in bed and lose it until the covers, you can always find another pencil. Our bed is generally full of pens and pencils.

Rag-rugging uses a lot of fabric; there are six jersey tops in this, as well as significant remnants of similar fabric. Jersey, or t-shirt fabric, is particularly good for rag-rugging because (a) most of us wear a lot of it and these garments do wear out and (b) there's stretch in the fabric, so while it can be a bugger to sew with, it's easy to pull about and tie knots in. There are all kinds of fabrics in this rug, including stretch velvet, flannel from some old pyjamas and silk from some of the ties, but most of it is cotton jersey. 

There's absolutely no skill to rag-rugging at all and the only point you need to concentrate is to avoid cutting off your fingers when using scissors. It is, however, a very compelling activity, so anyone has to be careful with doing too much of it in one stretch, especially while listening to a really good audiobook (mostly Under The Dome by Stephen King).

It's not really going to live in front of my folks'
woodburner, but it does look nice there...

The Cult of Self-Improvement

It's that time of year; adverts for new diet regimes, articles about makeovers (houses, wardrobes, faces, lives) and on-line dating (I did enjoy the BBC's two offerings on what not to put in a profile). This year, the Guardian is offering an entire weekend supplement every month to help enable its readers to live more intensely. I panicked - this directly clashes with my personal ambition, which is to live a little less intensely; to lay back and consider the lilies rather than wake up and smell the coffee.

But I can keep breathing, because the Guardian's campaign to intensify your life includes instructions for knitting a scarf. The Do Something Manifesto explains the urgency in their woolly-minded project:

"As a society, we've long championed sober diligence over the quest for thrills. But the tide of research is turning. Recent years have established that a liking for novelty, neophilia, is a reliable predictor of wellbeing, provided you've got a certain capacity for perseverance, too. Couples bond more, it's been shown, when they pursue unfamiliar activities together, rather than the comforts of movies and meals out ("Marriage," as Balzac wrote, "must fight constantly against a monster that devours everything: routine.")"

Knitwear has a place in marriage: We model
our Smitten & Mittens, a wedding present
 knitted by idlevic.
(A white man and woman huddle together,
there hands held in a red heart-shaped
double woolen mitten in front of them.)

Of course, we only got married last year and I reckon we need to tire of that thing with the hedgehog costume before we bring knitting needles into the bedroom (there's a movie about that). The Guardian also suggest starting a Supper Club which strikes me as a great idea - I know so few people who call their evening meal supper, they should definitely get together and re-enact scenes from P G Woodhouse.

However, in line with all our culture's self-improvement narratives, the Do Something supplement is about doing more work and spending money in order to improve one's social status; to gain more whimsical anecdotes ("I was once a gorilla keeper for a day"), add upholstery skills to your CV, to make more of the right kind of friends, invite them round for tea and charge them £15 for the privilege.

This is the capitalist model of self-improvement. You buy an experience; an upgrade on yourself and your life. Even if there's no monetary transaction involved (although there almost always is), it's still about labour and acquisition; regardless of whether you enjoy knitting or want a scarf, we're told that knitting a scarf

"even makes watching telly feel productive". 

The pressure to reinvent ourselves is a very profitable one. As well as the spend required to coax them into being, the new you will require new trappings of identity - a new look, new surroundings, new accessories. After a short while, you are likely to see similarities between the new you and the old you, tempting you to seek out yet another newer shinier you. Self-help is like pornography; if it truly fulfilled rather than exciting then frustrating, the consumer would not keep coming back for new variations on the theme.

I've always been attracted to people who see themselves as works in progress. As I've grown older, I have become wise to those who have found the answer, usually unexpected (vigorous wishful thinking, doga), which is going to change everything.

Diane doesn't know it, but she is one of the wisest people I know when it comes to personal change:

"It’s taken me over a decade (I am not good at life) to realise that feeling turned upside down and like you’re about to hyperventilate is just… how it feels. Even when you’re moving towards something positive, change does not feel good. It’s so much easier to resist, to give in to the magnetic pull of I can’t do this. But it turns out that resistance and all those crappy feelings are part of the process. When you don’t recognise your life and nothing feels safe, it probably means you’re moving forward. 

"The other messed up, un-movie-montage-like thing I’ve learned is that change can be slow. Sometimes it’s so slow that it doesn’t seem like change at all."

I don't believe Diane is not good at life. Many people get through their whole lives without making any dynamic changes at all - many are lucky enough not to need to, others don't bother to try. Outright panic may not be inevitable, but meaningful change is always hard and often slow. It almost always involves either removing oneself from a warm, familiar and often comfortable source of misery (a place, relationship, job, personal habit) or else embarking on a terrifying adventure that should lead to somewhere good. If significant change was ever easy, we'd never find ourselves in positions when it needed to be thought about in any depth..

Meanwhile, when I first saw the phrase Do Something on the Guardian website, I had a naive expectation. I thought, since the Guardian is into hand-wringing about the injustices of the world (and they sometimes publish genuinely good social justice writing), a Do Something Manifesto might be about, you know, doing something to making the world a better place; helping out in one's community, supporting one's friends and family, giving time and energy to causes that make a difference. Especially as the tide of research would suggest that this, far more than neophilia (with all due respect to Keanu), is what makes people feel good.

All The Books We Read In 2013

We turned our notebook upside down and back to front and used the other end to record all the fiction books we read in 2013. We didn't read all books together, but negotiated a running order. Some of the books we read together, one of us had read before. Some were audiobooks, some paper books and some e-books.

We also read some non-fiction books  but they're not so easy to rate or compare and Stephen read a lot of short stories.

So, the book-shaped works of fiction we read in 2013, worst to best:

Cross and Burn - Val McDermid - 4/10 (read by The Goldfish)
Dolly - Susan Hill - 5/10 (The Goldfish)
Blacklands - Belinda Bauer - 6/10 (The Goldfish)

The Hunger Games: Catching Fire - Susanne Collins - 7/10 (read by Mr Goldfish)

One Fine Day in the Middle of the Night - 7/10 (read together)
The Accusers - Lindsay Davis  - 7/10 (together)
Guns in the Gallery - Simon Brett - 7/10 (The Goldfish)
A Darker Domain - Val McDermid - 7/10 (The Goldfish)
Squirrel seeks Chipmunk - David Sedaris - 7/10 (together)
Reaper Man - Terry Pratchett - 7/10 (together)
World War Z - Max Brooks - 7.5/10 (Mr Goldfish)
The Broken Shore - Peter Temple - 7/5/10 (The Goldfish)
The Dark Adapted Eye - Barbara Vine - 7.5/10 (The Goldfish)

The Ides of April - Lindsay Davis - 8/10 (together)

Our Top Ten Books We Read In 2013

10. The Hunger Games - Susanne Collins - 8/10 (Mr Goldfish)

9. Bring Out The Bodies - Hilary Mantel - 8/5/10 (The Goldfish)

8. The Eye In the Door - Pat Barker - 9/10 (The Goldfish, on recommendation from Mr Goldfish)

7. Jagannath - Karin Tidbeck - 9/10 (Mr Goldfish)
6. Complicity - Iain Banks - 9/10 (The Goldfish)
5. The Cutting Room - Louise Welsh (The Goldfish - amazing audiobook read by Robert Carlyle) - 9/10

4. Watership Down - Richard Adams - 9/10 (together)
3. Regeneration - Pat Barker - 9.5/10 (the Goldfish, on recommendation from Mr Goldfish)

2. The Little Friend - Donna Tartt - 9.5/10 (together)
1. Oh Dear Silvia! - Dawn French - 10ish/10 (together - this was a particularly incredible audiobook production - it may not have been quite so amazing on the page.)

Thirty-Three

Ten days ago, my old friend Emma died. She was one of the most passionate and courageous people I have ever known, one of the very best friends I've ever had. Without her, I may not have survived the first years of illness. She had a brain aneurysm, then a stroke and died at the age of 32. 

Today is my thirty-third birthday. I had decided against posting my usual review of the year, but then it would be wrong to behave as if this has ruined the year. Emma was around for most of 2013. She won't be around at all in 2014, which makes 2013 an altogether better year in this respect. Death is a permanent absence, not a dark blot on a timeline, even if there is a particular point when it is more painful than it will be in the future.

In the end, I decided that the thing I can't do is write about the lows of the year, which have been numerous and some remain ongoing, but since none of them involve the death of someone I really love, they're all pale and pathetic just now. Meanwhile, I am very lucky and an awful lot of good things have happened for me this year.

Thus, the positive aspects of my year, in bullet points:

• From the middle of February to the middle of March, we rented a cottage on the Norfolk Broads with a friend, to see how we got on living together. We got on very well. It was a beautiful place and there were several days when we watched a Barn Owl hunting up and down the adjacent field. It wasn't meant to be a holiday - we tried to carry on as normal - but it was as good as a holiday and a very nice one it was too.

• In April, Mr Goldfish and I got legally married, amid an unseasonable blizzard. This was supposed to be a very quiet bureaucratic affair but, with the help of a small invading army of only-vaguely-invited family, ended up being really rather special. We became demi-husband and demi-wife.

• On May 1st, we held the eighth Blogging Against Disablism Day. 

• Throughout the summer this year especially, we were lucky enough to see a lot of niblings Sophie and Alex. They're wonderful kids, if in completely different ways.

• In June and early July, Stephen and I made my wedding dress from scratch, from used neck ties.

• In July, we had our wedding in my parents' back garden. This was extremely special. We were quite nervous about doing everything differently and effectively leading the service ourselves, but apart from a slight panic the night before about whether it would be possible to broadcast on-line, it was everything we had hoped for and more besides. Thanks to all of you that helped make it so special.

• In early August, we celebrated my Granny's 90th birthday. Granny is an amazing woman and we all feel extraordinary lucky to have her around. 

• About a week later, we embarked on what turned out to be a six week honeymoon in Ceredigion. This was blissful. I swam in the sea. I wrote and wrote. Stephen did some woodcarving. We both painted a little. It was wonderfully peaceful after months of stress and excitement.

• During our honeymoon, we became a media sensation after Suffolk Police issued a press release about my pencil. At one point, my face appeared on the front page of Cambridge News. We were discussed on Heart FM. Google suffolk police pencil - it got all over East Anglia. Charting the progress of our media fame through a intermittent mobile connection was both surreal and hilarious. Especially as, when I told my folks about the first newspaper we were in, they wouldn't believe it.

• I have done a hell of a lot of writing this year and have been generally feeling very good about it. If I hadn't been so ill in the last few months, I would have almost certainly finished my second novel. As it is, it's coming along very well.

• My favourite cousin had a baby and quite unexpectedly, we got to spend an afternoon with them both soon after. New babies are always fascinating.

• I guest-blogged for the F-Word during October. 

• In mid-October, we celebrated my Mum's 60th birthday. She was terrified that we were planning a surprise party with all her friends and family there, despite explicit instructions not to and our reassurances that we wouldn't. So, as it was, the quiet gathering was a little like a surprise party, in that Mum had convinced herself she was in for something much worse.

• Early in December, we learned that there's a good chance that we should be able to move out from our parents' houses into a place of our own at some point in the new year. This is very exciting news, only slightly complicated by the various and significant complications life holds at the minute.

Next year will be completely different. Right now I have many many feelings. They're not all bad, by any means; I count my considerable blessings. It is also impossible to lose someone so brilliant without reflecting on your tremendous fortune for ever having them in your life, for their good example and all the lessons they taught you. 

I hope you all have a super Christmas if you celebrate it, a lovely break if you don't and an extremely happy New Year. Thanks for reading, commenting and generally being around in 2013.