Takeda’s Post

People with MMN who experience muscle weakness often don’t have issues with their sense of touch. Most people begin noticing weakness in one hand or foot, and usually only on one side of the body. Elevating awareness of these symptoms can help distinguish MMN from similar neurological diseases during diagnosis. This MMN Awareness Month, join us in amplifying the signs and symptoms of this rare #autoimmune disease so that more patients can be diagnosed with speed and accuracy. #MultifocalMotorNeuropathy #RareDisease 

Yesterday was Rare Disease Day. To me, the day means not only recognising and raising awareness of rare diagnosed conditions but also encouraging an open mind when listening to stories of symptoms that don't quite 'add up'. In 2018, I had a tumour removed from my brain. It turned out to be one of the rarest in the world, first documented in 2005 with only two case reports and then entered into the WHO classification of CNS tumours in 2007. This means that until 2007, that distinct diagnosis didn't exist. But the patient experience did, and their stories were real. In 2019, still only 100 cases had been reported - including me. I'll need someone else to crunch the probability on that one! A specialist once said to me that there can still be a pattern in what a doctor is seeing, even if medicine doesn't know how to recognise it yet. So, in the presence of high discomfort and atypical symptoms, they can choose to try and make sense of things using only what they already know. Or remember how much they still don't know, and do what they can to support their patient anyway. That stuck with me. It's difficult being the riddle in the room. The waiting room Rubik's Cube. Let Rare Disease Day also be an opportunity to listen deeply to patient stories, sit with uncertain, and do what you can with what you have. #PatientAdvocacy #rarediseaseday2024 #DisabilityRights #NarrativeMedicine

Research shows the average time to diagnosis of MMN is about six years. As the early symptoms can be confused for ALS or other similar neurological disorders, delays in diagnosis can result in continued disease progression while MMN is left unmanaged. This #MMN Awareness Month, join us in amplifying MMN signs and symptoms with the aim to improve awareness and reduce delays in diagnosis. Learn more on GBS|CIDP Foundation International’s website: https://lnkd.in/ejbmKx6W #MultifocalMotorNeuropathy #RareDisease #Autoimmune

🌟#MSawarenessweek: Understanding Multiple Sclerosis What are Disease Modifying Therapies (DMTs)?🔎 These medications play a crucial role in the management of MS because they are designed to modify the underlying disease process, targeting the immune system and reducing inflammation. DMTs also aim to reduce relapse rates. 📢Stay tuned for more insight about the MS world - next time we will talk about Symptoms Management! Last year, some DMTs have been included in the WHO Essential Medicine List - a huge step for MS patients worldwide. Check it out: https://lnkd.in/gWC9jtMQ ⏩ Share and join the global campaign to raise awareness about MS: https://lnkd.in/dMP7nR7i. #MultipleSclerosis #MSAwareness #globalcampaign #Research #MSsociety

Today, on this exceptional day that only graces our calendars once every four years, we commemorate Rare Disease Day. It's a day to shine a light on the challenges faced by those living with rare diseases, their families, and caregivers.   One of the challenges faced by those with rare diseases is the difficulty in obtaining a timely and accurate diagnosis. Due to the scarcity of information and expertise surrounding these conditions, diagnosis can be delayed or missed altogether. This delay not only prolongs suffering but also hinders access to appropriate treatments and support services. #RareDiseaseDay #Amgen #myCompany Indeed, even the most effective treatments are rendered ineffective without proper diagnosis. The example of Neuromyelitis Optica Spectrum Disorder (NMOSD) shows that the delay in diagnosis may range from five to seven years. It is important to educate patients and doctors as much as possible about diagnostic and therapeutic options. Together, let us strive to ensure that no one facing a rare disease feels alone or forgotten. 

April is Parkinson's Disease Awareness Month. Did you know that there's a significant link between traumatic brain injury (TBI) and Parkinson's disease (PD)? Studies have found that elderly adults with a history of TBI have a higher risk of developing PD. Learn more about TBI and PD from The Michael J. Fox Foundation for Parkinson's Research: bit.ly/4bakJsK At the TBI Action Alliance, we're dedicated to accelerating research and development focused on diagnosing and treating TBIs to reduce TBI-related symptoms, such as PD. Join us in spreading awareness about Parkinson's Disease and TBI this month. #ParkinsonsAwareness #TBIActionAlliance #TBI

Parkinson's Disease Symptoms Improved With the Modification of Advanced Therapies Modification of advanced therapies for Parkinson's disease offers substantial improvements in both motor and subjective symptoms. The study highlights the importance of considering combination therapies, either simultaneous or sequential when addressing insufficient symptom control or adverse effects. Investigators emphasize the need for further large-scale studies to develop evidence-based clinical decision pathways and a recommendation to consider a change in treatment if advanced therapy fails to produce the desired effects. #parkinsons #parkinsonsdisease #parkinsonssupport #parkinsonsawareness #parkinsonsresearch

Today, on International Nystagmus Awareness Day, we would like to shed light on this condition, which affects millions worldwide but remains largely unknown.  Nystagmus, whether congenital or acquired due to factors like albinism, retinal diseases, or neurological disorders, presents daily challenges. From blurry vision to light sensitivity, the impacts can be profound, affecting various aspects of life.  However, there is hope. Early diagnosis and treatment can significantly improve quality of life. Visit Nethradhama and get diagnosed. You can also contact our experts by calling 080-48339999. #Nethradhama #InternationalNystagmusAwarenessDay #EyeHealth

🌷 April is Parkinson's Awareness Month! 💠𝐃𝐢𝐝 𝐲𝐨𝐮 𝐤𝐧𝐨𝐰? #Parkinson’s disease (PD) is the most common neurodegenerative movement disorder, affecting around 10 million people worldwide. A figure expected to nearly double by 2040. And, currently, there is no cure. 💠𝐄𝐚𝐫𝐥𝐲 𝐬𝐢𝐠𝐧𝐬 𝐚𝐧𝐝 𝐜𝐡𝐚𝐥𝐥𝐞𝐧𝐠𝐞𝐬 PD is often missed or misdiagnosed, as early symptoms are subtle and common with other diseases. Moreover, selecting the optimal medication regimen is usually a lengthy, “trial and error” process, leading to unnecessary suffering. 💠𝐖𝐡𝐲 𝐀𝐩𝐫𝐢𝐥 𝐦𝐚𝐭𝐭𝐞𝐫𝐬? Parkinson's Awareness Month is an important calendar event for those living with, caring for, or supporting someone with Parkinson’s disease. It provides an opportunity for the Parkinson’s community to come together and raise awareness for this disease. 💠AI-PROGNOSIS Read more about AI-PROGNOSIS, Horizon Europe research and innovation project aiming to advance #Parkinson’s disease diagnosis and care through novel predictive models combined with digital biomarkers from everyday devices ➡ https://lnkd.in/eVUySYPZ #Parkinsons #ParkinsonsAwarenessMonth #Parkinsonsdisease

🎗️Today is World Multiple Sclerosis Day🌍 𝟐.𝟗 𝐦𝐢𝐥𝐥𝐢𝐨𝐧 𝐩𝐞𝐨𝐩𝐥𝐞 𝐚𝐫𝐨𝐮𝐧𝐝 𝐭𝐡𝐞 𝐰𝐨𝐫𝐥𝐝 𝐡𝐚𝐯𝐞 𝐌𝐮𝐥𝐭𝐢𝐩𝐥𝐞 𝐒𝐜𝐥𝐞𝐫𝐨𝐬𝐢𝐬 (𝐌𝐒), 𝐨𝐧𝐞 𝐨𝐟 𝐭𝐡𝐞 𝐦𝐨𝐬𝐭 𝐜𝐨𝐦𝐦𝐨𝐧 𝐝𝐢𝐬𝐞𝐚𝐬𝐞𝐬 𝐨𝐟 𝐭𝐡𝐞 𝐜𝐞𝐧𝐭𝐫𝐚𝐥 𝐧𝐞𝐫𝐯𝐨𝐮𝐬 𝐬𝐲𝐬𝐭𝐞𝐦. 🔍 𝐖𝐡𝐲 𝐄𝐚𝐫𝐥𝐲 𝐃𝐢𝐚𝐠𝐧𝐨𝐬𝐢𝐬 𝐌𝐚𝐭𝐭𝐞𝐫𝐬: - Enables timely intervention and treatment - Improves patient outcomes and quality of life - Provides a clearer understanding of disease progression 👉 Discover our innovative MS diagnostic products and learn how they can make a difference in your laboratory and for patients: https://lnkd.in/dkk_N5Xz The gold standard assay to objectively detect CNS local IgG synthesis in MS, part of the 2017 McDonald criteria. Together let's raise awareness for everyone affected by Multiple Sclerosis! #WorldMSDay #MultipleSclerosis #EarlyDiagnosis #HealthcareInnovation #MSDay