Ten years ago, there were no iPhones and no electric cars. A cheap flat screen TV cost around $3000. iPods had only been out for a year, and most people didn't have one yet. The US was still recovering from 9/11, and flags and patriotism still flew high. Not only did we not have an African-American president, but most people ten years ago would have never guessed it could happen within a decade. And our family only knew of childhood cancer as something bad that happened to other kids. We just couldn't imagine how much our world view would change in just a few short words. "Well, I am 99.9% sure he has leukemia."
October 31, 2012 will mark the ten year anniversary of Josh's leukemia diagnosis. It's not a statistical big deal (five years off treatment a few years ago was the big one) but it seems like a big deal to me. Maybe because I like nice round numbers? Maybe because ten years is so long that it gets to have its own name? I don't know why exactly.
I can remember that day so clearly still, like it's actually on a video I am watching. The smells and sounds and shock. I'm not the same person I was on October 30, 2002, and it seems odd to be able to pinpoint the hour, the minute, the second that it happened. That it's been ten years? Unbelievable.
Our lives have changed in the normal way: We live at a different address. There are two more children at our house. There have been job changes, deaths, births, new friends, and new experiences. But the change from people who didn't "know" cancer to people who know more than we ever wanted to? It's the anniversary of that change this week.
After successful treatment, hard work at school, and lots of counseling, Josh seems to be solidly on the other side of cancer. He is changed too, both in ways that break my heart a little and ways that I think will serve him well in life. He is just a little less trusting, just a little more anxious than he was before that day. He has some residual emotional and physical effects of treatment still. But he's here, and he's strong, and he is healthy. He has broad shoulders, and he'll be taller than me very soon, and he runs across that soccer field on legs that he couldn't even bear to stand on ten years ago this week. He reads above grade level and takes high school math in seventh grade and basically laughs in the face of the vials and vials of poison that were injected directly into his spinal fluid. He became a survivor, and he knows as well as we do that he was one of the lucky ones.
Ten years ago this Wednesday, we entered into a dark time for our family, but it was a dark time with a million rays of sunshine to cut through the darkness. We learned about the beauty of a "hospital family" and the even deeper beauty of an actual family and strong network of friends to carry us through. Josh, taking the rest of us along for the ride, got to have amazing experiences (thanks to Make a Wish and Miles from Molly and Relay for Life and Child Life and so many individuals that I could never name them all.) I could write a book filled with the little things that people did for him, for us, that changed me forever, for the better.
For many years, we had Josh sleep with us on Halloween night, a warm and tangible reminder that he was with us. It's been a few years since we did that, but please don't tell him that on Wednesday night, I'll sneak into his room and shed some tears of gratitude that I get to watch him breathe and feel so very thankful that he's too big to fit in my bed.
life is hard and weird (in 3 stories)
10 years ago




















