Little Suzy is now 12 days old. In her short life, I have already seen miracle after miracle. Some of these miracles and blessings are personal and sacred, but I wanted to write some of them here, for her and for me to remember.
- We have had many experiences that have prepared us to deal with various aspects of Suzy's life. We had NICU experience with both TJ and Jake. We had PICU/bleeding complications with TJ. We had birth defects, surgery, and cardiology concerns with Eli. Our apartment fire in 2018 really taught me how to ask for and rely on help from others. The time we spent after law school being ridiculously poor taught us how to get through each day by relying on the goodness of God. None of this makes what is happening right now easy, but I am so glad I have had these experiences to teach me resilience, not to mention lots of the inner workings of pediatric medicine.
- Suzy and I were within an hour of being discharged from the hospital where she was born when a nurse decided to repeat her standard newborn heart screen. She failed. If Suzy had come home, I am almost certain she would have died in her sleep during her first week of life. Instead, we were sent to Spokane to get her heart checked out.
- We were able to drive Suzy to Spokane ourselves. She was almost transferred, but someone had cancelled their 4:30 echocardiogram, so Suzy was given that appointment and we were able to take her ourselves. I was able to nurse her one last time and we got to hold her and love on her just those few extra minutes before we found out how serious her heart issues were and she was admitted.
- I stocked up on groceries and froze meals. This would have been helpful for a normal new baby situation, but it is a lifesaver now. I know there is lots of food and frozen meal options for anyone who is watching the kids.
- My mom got her flight bumped up two days, even though the airlines originally told her all the flights to Spokane were full.
- Suzy had NEC, which resolved after just one day of antibiotics (the day after our friends and families fasted for her with us).
- At her 20 week anatomy scan, I watched as they did the up-close imaging on her heart and had a very distinct thought that something was not right. I asked the ultrasound tech some questions, and she told me if I was concerned, we could ask to see a specialist. I brought this up with Tyler, but ultimately decided not to take it further. Throughout the remainder of my pregnancy, I had impressions that something was different, something was not right with this baby. We never sought out special care, partially out of denial (I'm just being paranoid! I'm sure she's fine.) and partly out of pragmatism (even if something is wrong, she's fine for now, and we'll deal with it when she's born). But having those thoughts prepared me, to some extent, for Suzy to have complications.
- Not knowing was also a blessing because if we had known, Suzy would likely have been induced and admitted to the NICU immediately. Instead, I got to have a normal delivery, and then almost three beautiful, normal days with her in the hospital in Newport. During that time, I got to feed her and hold her and handle her like a normal baby and I will always be grateful for that time we had together. Also, her brother's got to meet her! No visitors under 18 are allowed in the children's hospital.
- Our NICU nurses the last week have been amazing. We had two nurses who had a child/grandchild who had open heart surgery as infants, and those two nurses were angels. It means to world to have a caregiver who actually knows what you are experiencing. Along those lines...
- We have family members who have children with medical complications. These family members are such a comfort, because we already know and love their children, and have watched them overcome challenges. It makes this road much less lonely.
- I have a Savior who knows this exact pain. I have heard testimony throughout my life of pain and sorrow being eased or taken away through His atonement. All last week, I thought of these testimonies and knew that I could have peace through him. I finally had my prayers answered and did receive peace and acceptance that I could not find on my own. I don't feel like I'm carrying this alone, and I can see God's hand in Suzy's life already.
- Being able to stay in the Ronald McDonald house. It's completely free to us, and gives us a place to stay within 5 minutes of the hospital. We have a comfortable, hotel-like room, a shared kitchen with our own pantry, fridge, and freezer space, plus access to food and meals donated by the community. They run a shuttle service to and from the hospital as well, which has been a lifesaver. Not to mention, the volunteers are the kindest, most helpful people I have ever met.
- My milk came in really quickly and I haven't had any trouble pumping. I hate pumping, and in the past it's caused some issues for me, but it's gone really well this time. I'm sure it helps that I have been able to use hospital-grade pumps in the NICU and at the Ronald McDonald house.
- I set up a summer routine for the boys right after school got out. They are already familiar with it, so it's a comforting thing that provides consistency to their days even though their primary caregiver has been changing.






















































