Older pic I know...just hate boring picture free posts, LOL!
Thank you as always for all of your kind words. I feel the need to say thank you a lot these days, but I'm feeling like a pretty lucky girl to have both a good online and IRL support system. Sorry for the boring picture free posts. Our laptop is on the fritz and all of my recent photos are on our portable hard drive AKA hard to post recent pictures. Brynn is doing okay - she'll be 7 months at the end of this week and is 11 lbs 12 oz. I'm so proud of our little girl. She continues to vomit up most formula but does great on breastmilk so I pump or feed round the clock and it's really helping her weight gain - she's up quite a bit this month I do love my sleep - but it's a small price to pay for a growing girl. Brynn looked at me the other day and said "mama." I thought it was just a joke....but she said it 3 more times that day for my mom and dad and the hubby. Melts my heart. Her big ole grin and kicking of the legs along with the excited phrase "mama." How did I get so lucky? Just praying she is okay in my thoughts and prayers.
Food and work. My main two focuses these days. Work is going so well. I spend most of my days either up in labor and delivery doing epidurals for the moms or down in the open heart room. Guess you could say I'm an anesthetist who loves pregnant bellies and open hearts, LOL! But yesterday we did a neuro case on a gentleman with a glioblastoma brain tumor - he did really well and was both moving everything and talking after surgery and it was so rewarding. I'm keeping him in my prayers for an OK recovery. Such a nice man - father of two little girls both 2 amd 4. Food- Brynn. She is loving solid foods these days. I've made her carrots, sweet potatoes, pears, apples, bananas, pears and prunes. She loves them all and I think I have about a months supply in the freezer. I'm still pumping and then feeding her 2 - 3 meals a day of food. Not sure where the kiddo packs it away to. While feeding her I still get the blueness around her lips and hands occasionally. Doesn't give me warm fuzzies - but I'm trying to stay Zen about the whole thing. I know that the central core circumoral hypoxia of the lips is worse than the extremities...but on most days she has both. So, we'll deal with it as it comes. I have a follow up echo shortly with her cardiologist so we'll see how things look at that time.
Basically if she has any increase in symptoms they're talking surgery. If things stay status quo we'll monitor for now (EKG, chest X ray, extra - monitoring for pulminary hypertension, etc.) I just wake up every morning and hope it's a good day for the little girl. She's so happy and care free - she has no idea that her heart isn't quite right. I just smile at her and flash her my best mommy grin so she has no worries. I'll leave the worrying to me and the carefree baby play to her, you know?
We're still planning a few day get away in Chicago at the end of this week. We rented a loft downtown on the Mile and are taking our nanny with us so we can have a few relaxing mom and dad dinners away. I think it's good for the marriage and both of our sanity. During the days we'll do family time with all of us and Brynn and my friend's little sister has some friends and family nearby she's going to visit. Hopefully it'll work out well. I hope everyone is having a great week and thanks again for all of your kinds words and prayers.... I'm just taking it one day at a time. That's all we can do right?
21 comments:
Have fun in Chicago! That sounds like a really fun trip. I hope things with the heart issue continue to do ok and that surgery isn't necessary. Hugs to you.
I'm so happy you guys are getting away for a little bit...you need that.
Continuing to pray for Brynn.
((hugs))
Sorry I have been such a bad commenter lately. I haven't stopped following, but I have only had time to read-I know it's a pathetic excuse, but motherhood has kept me busy! Brynn is getting so big!! I hope you have a good time in Chicago, it is one of my favorite cities. Enjoy your time with hubby, I am just starting to get to do that again. ((hugs))
Brynn is an Absolute Delight and such a Beauty!! One day at a time for sure.
(Big ((Hugs)) and Best Wishes for fun in Chicago.
Love that old pic of Brynn - she is such a cutie. I so hope surgery isn't necessary, but if it fixes the issues, it will be worth it! Hope you have a blast in Chicago!
Such an adorable picture! Enjoy your trip and get some time in with that hubby! It'll do ALL of you some good. Sending you guys lots of love and prayers.
*HUGS*
Mama already! What a smart girl!!
Thanks for the update. I do hop you get to go to Chicago. I agree...you need the time as a family and as a couple.
Have a great trip! Make sure to do lots of shopping while you are there.
The twins recently started saying mamama, too! Of course after they said dadada. I'll take it!
Wow she said Mama! How sweet. I am glad things are going well and I hope you have a great time this weekend!
Have a good time!
I hope that Brynn stays strong, too!!
She's in my prayers.
*****************
Side note...I had an u/s a few weeks ago and the doc said the doc said the cord is low. I asked if it had a name...he said Vasa Previa. It could very well move by the next visit, but after your story, I am thankful they caught it!
Thank you!
You have such a good attitude, and it sounds like you're doing a fantastic job. I hope you're able to enjoy your Chicago trip -- you deserve it.
glad things are going better. have a blast in chi-town!
I'm holding Brynn's heart in golden light. I don't know what that will do, but that's what seems to be needed in my minds eye.
Mama...such sweet sounds, no?
Glad to hear she's gaining weight, and you're going to Chicago. Have a great time.
((HUGS))
have a great holiday and I'm keeping up the paryers for Brynn. xxx
One day at a time is something I'm very familiar with.
Holler if you want any advice on awesome places to go in Chicago.
Take it one day at a time is all you can do! - Glad to hear you are leaving worries away from Brynn. My thoughts with you guys.
Enjoy Chicago !!! Shop, eat and have fun (Navy Pier is pretty cool too).
Best of luck !!!
Have a great time!! Squeeze Brynn for me! :)
Sara - sorry I haven't commented a lot - no good excuse, just not enough computer time. Brynn is constantly in my prayers however and I know she will be okay. Hugs and prayers to you.
Oh hun, sorry i've been away! Just read what you've been going through.
Am giving you a huuuuggge hug and hope things go ok.
Will catch up with you again, tomorrow.
(((hugs)))
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