Saturday, February 26, 2011

A Bit of Inspiration

Some of you may remember the post about Zach Anner that I posted a while back. Zach was in the running to get his own show on Oprah's new network. He has CP and is in a wheelchair and is oh-so-funny. He also won! Well, Oprah decided to give the two finalist's (him and another contestant) their own shows. I can really see him being a huge inspiration to people with disabilities and also for those without. Way to go Zach, can't wait to watch! Here's a quick clip of him explaining what he hopes to accomplish:

Thursday, February 24, 2011

She's Music to Me

I haven't updated about how Romy's doing in school since she started so I thought that I'd better before I forget. She's been in preschool for about 6 weeks now and luckily Romy is doing AMAZINGLY well. She's learning new stuff everyday and it's so exciting to see what she's capable of. It took her a while to get used to being there and she would cry whenever I left but I would wait just outside of the door and listen in. Sure enough the second I was out of eyesight she would stop. She just liked to make me feel a little guilty, I guess, and she hasn't done it for the past few days so I think we're over that hurdle. When I pick her up she's always all smiles and says in her sweet little voice "Hi, Mama! Up?"

Her teachers say she participates well in everything they do and interacts wonderfully with her classmates especially a sweet little boy who follows her around everywhere. So far she can count to 3, sometimes 4, and a few times she even kind of counted to ten but it sounded like this: "One, doo, bee, foe, I, aye, die, nen!" Yes, she incorporates the word 'die' in her counting. Crazy girl. She sings some of the letters in the ABC's mainly a-d, p, r, m, n and y. She's also working on spelling her name and has done it a few times but it hasn't been super consistent. She sings along to all of the songs during circle time and knows many of the words and short phrases. She can identify a few colors and at least 10 body parts.

Also, she is getting mighty fast in her gait trainer. Her teachers put her in one several times a day and have reported the same thing. She still needs some help pushing along sometimes due to her weak muscles but she's getting there. She's been trying to cruise more and is pretty successful some of the time. However, just recently, she started army crawling like crazy. She's been able to for a long time but never really relied on it for mobility. I left her alone in her room to play and came back 5 minutes later to find her GONE. She was all the way down the hall in my room where she dumped out the contents of my purse and was playing with it. It was such a normal toddler thing to do and I couldn't do anything but smile and laugh.  I hope she can learn to 4-point crawl this year. That would be so exciting.

Her g-tube surgery is in about a week and it's really starting to wreck my nerves. I'm just so nervous about the whole thing. The surgery, the hospital stay, the recovery, and learning how to be comfortable using that thing. I decided against the fundoplication surgery that her gastroenterologist recommended and luckily the surgeon agreed with me. She just doesn't have the symptoms that would justify one right now. I hope I'm not wrong. I just don't want any unnecessary surgeries, especially one that has higher risks. For the past few weeks I've been staring at Romy's belly and just taking mental pictures of her smooth unscathed skin because soon there's gonna be a rubber button there and even after she no longer needs it and it's removed, the scar will still remain. Even though I'm pretty bummed and nervous, I know it's really going to help Romy thrive.

Okay, well now that the update is done it's picture time! Romy and I, my sister and her family, as well as my brother spent a relaxing day at the beach this past weekend. We hadn't been in a while so it was very much needed.



 She's a bit obsessed with sunglasses. I think she has around 7 pairs.


I can't believe how grown up she looks here.


 Uncle Kane got pinched by this crab. Don't worry PETA, we let him go.


 She loves playing in the sand and still continues to love to eat it as well.


 Little yellow polka dot bikini.


The beach we went to is where they're filming the next Pirates of the Caribbean so we got to nose around the Black Pearl.