People have been asking us lately what it means exactly when we say we need to do about an hour of therapy with Cpc each day....
I don't always know how to explain it. Usually as I attempt to explain it, I feel like it just sounds like normal childhood things and I start to wonder, so what's the big deal? And then I do these things with Cpc and see how it affects him, and speak with the Occupational Therapist and realize it's so much more.
There are a few important factors to his therapy. 1- It has to include heavy work and deep pressure. 2- It has to include some cool down/calm down time. 3- It MUST be directed and focused.
So here are some examples:

This swing is great because he has to hold up his body weight. We have it hung over our ABC play mat and he tries to land on certain letters. This helps to give direction and focus. We usually have him spell out certain things like his name.

Sometimes he holds something between his feet and tries to make it land in something (like the wheelbarrow) as he swings. If you look close there's a little beanie baby between his feet.

Jumping on the tramp is great, but it's even better if he does it while holding a 6-pound medicine ball. Also, the little trampoline is way better than a big backyard one - it takes much more work to bounce on. Also, it doesn't really help if I just let him jump on the tramp. He needs specific directions and focus - like "jump 10 times with the ball," otherwise somehow it just doesn't help him.

Climbing up this ladder is AWESOME work for him. The focus and direction are easy because he has the top to get to and back down. We use velcro to attach puzzle pieces to the top and he can get one piece at a time and put the puzzle together.

Pmc still has some work to do on this swing, the handle isn't very secure yet, but it is still great work for Cpc. We tell him a certain number of swings to do on it or something.

The swing he's in here is his cuddle swing. It's made out of lycra and it gives him great deep pressure. Also, climbing into it is great heavy work. It has multiple purposes - he lays in it and uses his hands to walk around the mat to move things around, like a puzzle or putting beanie babies in his wheelbarrow.

He also likes to just wiggle around in it, and that is fantastic deep pressure for him. This is also where he gets a lot of his cool down time. When he's overstimulated or having a meltdown, climbing in the cuddle swing really helps him calm down - hugging him usually just aggravates him.

We also have him carry our water storage up the stairs to "stop the monster." We tell him there's an 8-jug monster or something coming and he has a certain amount of time to stop the monster by putting the jugs in front of the door.
If he's not doing a puzzle or stopping a monster, usually we have to give him some sort of obstacle course and tell him each step and how many times he has to do the whole course. That could go something like: Climb through your cuddle swing, then bounce a medicine ball 10 times, then climb up the ladder, then spell your name using the swing. And we'll do it 3 times.
He needs cool down time interspersed in there all over, without it he zones out and it's almost like he's gone deaf - he literally doesn't hear. The same goes for not having the directions of what to do. We've got lots of really fun things for him to do, but if we just tell him to go play, it doesn't improve his ability to self-regulate at all.
Essentially the point of all of this is to help him self-regulate. Without the therapy he needs, he seems like a pretty hyperactive kid with ADD or something. He is also very emotionally volatile. Cpc rarely throws tantrums - instead he has meltdowns. For most people it's pretty tough to tell the difference. We've learned that tantrums are an attempt to manipulate situations, whereas a meltdown is caused by sensory overload. For example - most kids have meltdowns when they're tired or hungry. Well, Cpc does too - but it also happens when he hasn't had enough input, or if he's had too much. Sometimes instead of melting down, he zones out - and it's really not under his control. He's not trying to zone out, he just can't handle things. When Cpc is well-regulated - he is a quick learner. He is starting to read a little, and is writing much more than just his name now too. His musical skills, rhythm and imaginative play are improving. He is learning awesome social skills. But when he's not well-regulated - his ability to learn anything is halted, and sometimes it even digresses quite a bit. Things that we know he can pick up or that he has previously learned - he just can't seem to get. He gets frustrated easily and can quickly meltdown. He can quickly become the obnoxious kid in class that nobody wants to be around. And THAT is the most heartbreaking thing of all - because he is such a sweet kid. It's also pretty heartbreaking when he's learned something and then can't do it. When he was just barely 2 years old he learned how to put together 24-28 piece puzzles. Then, about 2 months later he literally couldn't figure them out anymore. Trying to put a puzzle together would make him cry with frustration. He also learned to climb the little climbing walls on playgrounds, and then couldn't do it anymore a couple months later.
Some of you may remember way back when we very first discovered SPD that we started taking him to the playground each night. At first it seemed to help, and this was because he was getting a lot of the input his body was craving. However, over time it stopped helping because of the lack of direction. We love the playground, and Cpc craves the playground. However we have learned that it's usually best if we can find a playground with very few other children, and set up an obstacle course of some sort. This way he's not overstimulated by other kids, and he's getting some direction in his play.
Learning to understand the need for direction has probably been the hardest thing to figure out, but we think we finally have a good handle on that. The best thing about the Occupational Therapy we take him to each week is that the goal is to learn what we need to do at home so that we don't need to go to therapy each week. We're excited that we're about ready to take a break from therapy for a while. We are feeling like we've got lots of tools in our toolbox and know how to help Cpc. Cpc is a little sad about that, because he definitely likes his therapist more than us when it comes to these things, but alas, that's what parents are for right?

At therapy last week, Cpc sat down in the little desk they have and asked to make a picture. So his therapist got some markers and a paper and told him to draw himself. The drawing on the left is the one he drew of himself. I love the arms coming out of his head - such perspective! Then he wanted her to draw herself, so she did. Then she told him to draw me, so he did - and he copied the way she drew herself instead of his original drawing - so the blue one is me! I love how he insisted that a nose is an "A."
I'm so grateful for the understanding of how Cpc is different, and how to help him to still be able to learn just like other children.