Sunday, September 30, 2007

Update

Yes, I know it has been awhile since my first posting. that is probably why I have not done anything like this before so chill.

GOOOOD NEWS! They have found three good bone marrow matches at DUKE so I am on track to start the process in the next two weeks. I will have several rounds of tests, EKG, CAT scans, CXR (??), meeting with radiation team and what ever is left, including my personal favorite, a bone marrow biopsy. This is a pleasent experience in the doctors examining room under local anesthesia of DRILLING into your hip bone and removing fluids for testing. Now I have never had a baby so I, as a male, and can not know discomfort and pain but OUCH. Let's just say that the first time I had it my wife said I looked like I had a seizure and was in the hospital for a week. My last two were lest eventful but hurt also. The process will start with 4 days of radiation and three of Chemo. A day of rest and I get my new stem cells. Then we start the wait and see process. I will try to update as I go and feel up to it. My wife will also be on-line so I will turn it over to her at that time.

That's enough for now and thanks for all your prayers and thoughts. A hug, no kisses yet, to each and everyone of you. Thanks.

Monday, September 17, 2007

Why the name?

This is the first time I have attempted to do anything like this. My daughter suggested it as a means of letting everyone I know of my status. Why is that important? Well, I was diagnosed with CLL, Chronic Lymphocytic Leukemia, in March of 2006. I have completed treatment but have developed a blood disorder that has affected my Bone Marrow. I am awaiting a stem cell transplant and need to get blood transfusions weekly until a suitable donor is found.

Why peter-vampire? Well I really feel better after my weekly sessions so I guess I must be part vampire. Just kidding but i do feel better after each session and my counts are back up for a few days. The problem I must face is that I can not go into any crowded places like malls, restaurants or even work since my immune system is compromised. My employer, General Electric has ben extermly co-operative and I am allowed to work at home. This, you might think is great, but you see I love people and this is very difficult for me. I will be OK but the lack of multiple human contact is hard for me. My wife has been my anchor through this so I have someone to complain to daily. I do not get much sympathy from her, but I think she knows I would just complain more if she didn't push back.

Well enough for today. For those of you that can give blood every chance you can. YOU ARE SAVING A LIFE!!!