My mountains are big. They are towering, glorious things in which I feel so small next to. Sometimes climbing them leaves me refreshed and accomplished and sometimes they beat me down to pulp and teach me who's my daddy. Those day suck. Sooooo much. But, these mountains of mine are not so unique as I once thought they were. They are not as individually designed just for me as I once assumed. They are mountains that I believe I climb alongside so many others, but am too tunnel visioned to see. I have co-climbers and my mountains are not mine at all, they are
ours.
Mountain number one giving me grief is being a divorcee. I am on a very crowed mountain there, but we are all so quiet about our climb on that steep wall. The grief we carry within is so deep, so real, so powerful, and so private. But I am going to shout from this mountain-side right now: I am with you! I hurt too! I survived that death just like you did and I carry such similar battle scars as you do! You are NOT alone. I understand your aching hearts, your wounded dreams, your sorrow when you have to sleep in your home with children gone to the other parent and feel partially dead until they return to you. I know loneliness and guilt, shame and failure. I know
freedom after escaping a prison cell that was once a castle. I am with you. I am climbing right next to you. It stops hurting with time and with love from God and those close to you. You still have ghosts within and around you that you will deal with, but the hole punched through you does recede somehow. Hang in there and keep climbing.
Mountain number two belongs to VCFS/DiGeorge Syndrome. This mountain was a nasty, sneaky little bugger. It played hide with and seek with everyone like a friggen possessed mirage from Hades for E's first 16 months. Made me look clinically insane at times and made me learn to be as aggressive as necessary in fighting for my voiceless baby. Made me learn when to
trust myself and my instincts as a mother. It also forced me to understand that I am quite powerless, but that God is omnipotent. Until the day I surrendered to my Father in Heaven and gave my will over to him as a mother and promised to simply act out of love of my child and her best interests instead of being relentless at any and everyone to find the problem, I was nowhere closer to knowing anything. But the moment I gave it over to Him, He was ready to open up the minds and hearts of those who could help her to figuring it all out. I learned that sometimes, the climb is not mine, it is His. He wants us to climb
together as a team. He needs us to be brought to our knees so that we can see that he is right there fighting the good fight by our side or for us completely.
VCFS is so vast. It is so unique to each of the babies born with it. One, teeny, tiny, little missing piece in one, teeny, tiny, little section of your 22nd chromosome can change a baby's course in the most immense and shocking ways. It can whisk their lives away before a year old or it can be a part of who they are from birth until they meet great-great-grandchildren. It is a custom job having this syndrome and not in a fun and happy new car kind of way. You have to learn the exact formula of VCFS your child has through myriads of tests, both invasive and not. You have to take them to teams of up to or more than nine doctors that coordinate global treatment plans to give your child a fighting chance at a healthy and happy life. You have to sit in waiting rooms during therapies and while your love goes under the knife for the first, fifth, tenth... time. You learn faith when you watch your child get put under anesthesia and realize how powerless you really are really quick. You learn signs of distress in your child so subtle that no one but you can see it, but you are the one that saves their life over and over with your fast response. You are a hero to your VCFS child. And God is your hero. You are a TEAM.
He is in the surgery rooms, the waiting rooms, the therapy sessions, the IEP meetings, the doctor's offices, the emergency rooms, the hospital rooms. He is giving you courage when you watch your child fight for their life doing all you can to help them heal and he is how they fight for their life and win. You are not alone because aside from all the other families climbing this mountain, our Father, our Creator, and our Best Friend is pushing, pulling, or even carrying us all up that steep incline. This mountain sometimes makes me feels so beaten down, so scraped up, so TIRED, so overwhelmed. But then I can look at her face, feel her head on my shoulder, see her laugh or dance or play joyously and I can see all that I give is nothing compared to all I would be willing to give just to see her keep living so brilliantly. She is radiant and strong and brave and pure and loving. Boundaries do not exist in what I would go through to help her share that light for as long as God will allow.
Mountain number three is the freshest of the batch. Autism. Pervasive Developmental Disorder. Aspergers. G has shown signs for quite some time dating back to talking later than was "normal" while excelling at other motor skills and going full-speed without regard of boundaries. With signs of something being significantly distressed within her a year and a half ago, I sought out therapy for her and all avenues of help and support I could manage. With road blocks and dead-ends being a constant uphill battle in trying to narrow down what to make of her oddities and struggles, this mountain felt like it was just made of mazes. It still does to be honest. It feels like the strangest sensation of going nowhere while never stopping your feet. Where the heck am I
now? I thought we made it over there, but we are back to this same stick on the ground or rock we saw last week! What the heck is
that animal supposed to be? Does that thing even exist?! It is a disorienting mountain. You never know where you stand, where you are supposed to be, or where exactly it is you are supposed to arrive at the end of it all.
With much more in-depth testing about to take place, all I can do is let God run the show because I am all tuned around backwards... forwards?... wait, left?... aw crap, still have no clue where we are. G and I have come so, soooo far through her therapy and yet we still feel oddly adrift. Some issues have been so well managed while others take their place and we have to somehow find a new approach in coping with that new exciting development (facetiousness alert!). She is brilliantly intelligent. I am talking an I.Q. high enough to make you whistle. Her vocabulary shames adults. She is a math whiz. She is beautiful and gifted. She need ear muffs so that sounds don't send her off a cliff of the mountain. She has boundaries about touch. She needs patience when her brain feels like she is losing control and she works feverishly to reestablish it no matter what that takes or who is standing her in path. She is a big person stuck in a little body. Oh how I love her. Her mountain is not so much
new as it is just now
labeled. Dealing with the deeper meaning behind that label is what we are now working on. That is okay though because we are not going to give up or give out. We are in this together. We are a family.
You have mountains. Some of mine I have already climbed, danced is jig on the top, mooned anyone looking, and skidded my way down the other side. Others I had to lean on those stronger than myself, hugged them once we reach the top, and held hands as we descended to level ground for a while. I hope that knowing about mine helps you know that we all have them, we are FAR from alone on them, and to never ever give up. You've got this.