Migraine not just headache

Wednesday, 18 November 2009

Morning (overnight) migraines.

If, like me your migraines usually hit in the early hours.
Please get in touch.
I have been given some information on stopping these from a very good source.,

medication over use

I would like to collate info and opinions on this please.
DO comment.

Saturday, 31 October 2009

Mallware

I have found that accessing this blog via Google gives a spurious warning regarding a site called Word of Blog and malware.
However through Internet Explorer there is no problem
Please be kind enough to tell me if you encounter a problem.
I dont want to not deal with it if there is one, but I cant locate anything.
~thanks.

Wednesday, 7 October 2009

7 days

I just managed 7 days without a Triptan.
First time for months.
Was still in pain with the myo pain, but really lifted my spirits.


Its back of course, now on day 3.
I wish I knew why it stayed away, and why it returned.

Monday, 31 August 2009

|Another follower

Excellent thanks for joining Amy. I must try to post more, but you know how it is, or can be....
Just had a weird week end.
Migraine Saturday...day 4...Triptan
Waited Sunday, and sure enough ,a day off...
So I figured today would be the day 2.
BUT it didnt happen.
This is great because Got to spend more time with my grand daughter.
BUT.....tomorrow.....Well we'll see.
Be great if things are changing again.
Might actually make it to see my friend up north.
Watch this space..

Saturday, 22 August 2009

A follower

Wow am I excited. I have a follower on this blog.
Thank you....I hope I get more.
I truly hope we can all be involved in blogging and following each others blogs.
Let's show the world how many of us there are, and help each other along the way.
Thank you...

Please don't be shy....

Saturday, 15 August 2009

All for one, one for all.

Together we are stronger.
There are so many of us miggies. All over the world.
That is the joy of the internet, we can share and learn from each other.
I am in England. Where are you?
What form does your migraine take....does it disable you, or can you cope?
Do you like me have co morbid conditions...I have IBS and FMS.
Do you know your triggers?
Have you had any success treating the migraines?
Can you recommend anything, including medics...
Lots of questions, but who is prepared to answer...

I really really struggle, these things have robbed me of my life.
But I still might have something to share...
As may you. We can share recourse's
Hundreds of people post on Facebook and Twitter about their migraines.
Why don't we try to link our blogs and maybe have a central website.
Together, we are stronger...
It might help us find an answer.
It certainly should help us help ourselves and each other.

Monday, 13 July 2009

Swine Flu

I am sick of hearing about his with the half information they give us.
I think it might be better if they told people to be worried, then they might take better hygiene precautions.

People are dying from this thing and there is a wonderful idea to have Swine Flu parities, to get it over with. That's fine for the really healthy people, but who might you pass it on to. AND do you know if you have an underlying health problem??

I am desperate not to get it. I just don't need any more migraines.
when I had the flu at Christmas i had a terrible head for days.
Also I have FMS so I might get it worse with a lowered immune system....
Will somebody please level with us all....

Friday, 10 July 2009

MOH/Rebound. I dont think so.

Because of a really nasty stomache bug over Easter, I have had to be very careful what I take for my pain.
Whilst waiting for a blood test result re an ulcer (seems I dont have one), I tried to manage on no over the counter pain killers, and just Triptans for the migraines.

I went 15 days and only had 2 Excedrin/Anadin.
8 days and then 7 days.
This is much less than normal for me.

It was hard to cope but it showed me one thing.
How on earth can I have MOH?

They tell you that the drugs you take are the only thing that helps the pain and it comes back when the medication wears off. It seems that you take more and more, as the efficacy diminishes.

During this 2 week period, I had just as much head pain as ever, and wasn't taking the drugs.

I dont think I will give much thought in future to MOH. If I can go all that time without the drugs and not get any relief from the pain. I think that lets me off the hook.

GOOD!! There is enough anxiety with migraine without having to worry about how to get out of pain. None of us want to feel we might be making ourselves worse.

What do you think??

Monday, 8 June 2009

Butterbur/petasites/Petadolex

I am going to try Butterbur as a preventative.
I have been waiting for my gut to settle since the bug, but it is taking so long, I think I will just go for it and hope it doesn't upset my tender tum.

Its a toss up between Butterbur and Q10 at the moment.
After some Kinesiology which gave me a recommendaitn for Q10 i am unsure.
But I think on the whole the Butterbur is a bit more hopeful.

Managed 8 days without Triptan so that's an improvement on every other day.

So anyway if you have tried either and have some feedback....please don't be shy...

Thursday, 2 April 2009

Reiki

Has anyone tried Reiki for migraines?
I am taking part in a case study with a Reiki master.
We both want to see what if anything occurs.
Like to offer feedback from anyone else as well.

Thanks.

Rebound/MOH/CDH

Who has MOH please?
How do you know?
What did you take that caused this?
Did it turn out to be daily headache but not caused by medication?
How did you deal with it?
If you stopped or cut back medication.
Did your head improve?
Has is sustained or did the pain return?

PLEASE comment. We all need to get our "heads" around this one.

Wednesday, 25 February 2009

Migraine Action, Migraine Day

Well I made this. I was 90 minutes late, but I managed to go and stayed until the end. That was a mistake because it wrecked my head.
the venue was not the best, rooms stuffy and when they opened the windows lot of noise in from the street below.
The lunch was lousy. Tofu sandwiches and some with cheese...for migraineurs!!!
For me it was too long at 6 hours, and they should have started later, 10am the earliest. I spoke to others there, and they all concurred with these points.
Lastly the hotel needs to get a toilet cleaner!!!

Talks were good. Nice to speak to Drs Andy Dowson, and Paul Davies in a more relaxed atmosphere.
Also met a couple of local people and some others I may keep in touch with.
Did I learn anything....not really.
But it was good to share experiences.

If you are reading this, so far. Please comment. Migraine is such a complicated problem and the more we all band together the further we will get with a remedy, hopefully some day a cure.
Don't be shy, i don't care if it isn't a positive comment, but I cant really see the point in reading this if you never say anything, so please do.
thanks.

Friday, 13 February 2009

Keeler Method

I have bought a book which comes recommended on a forum I use.
It is written by a Neuro who has migraines.
I haven't managed to read much yet because of my silly head
BUT, what I have dipped into looks good.
I hope it will help me.
Will keep you posted, whoever you are...Ha!!