I'm starting to think that Gluten is the new four letter word in our house. It has been 5 months since I was diagnosed with Celiac Disease. It has absolutely NOT been an easy road, but I think I'm finally starting to get the hang of certain aspects of my new life. Initially I dropped 17 pounds in three weeks because I was so terrified to eat anything for fear that it would make me sick. Though even after I quit eating wheat- I was still getting stomachaches and it took me a while to locate the reason for still feeling crummy... Eventually I was able to pinpoint the reason for my continued intestinal distress... DAIRY! Apparently I am also now lactose intolerant. It was kind of like hitting a brick wall. It seemed like everything that I had been doing for years was exactly what was hurting my body. How do you change so many habits and foods? And how do you do that when you have a family to feed and take care of too?
I was coming up blank. And really, really struggling. Sometimes I would try to cheat- almost like I was trying to prove to myself that the diagnosis was wrong and that I really could still eat my favorite foods. Every time I ended up on the bathroom floor, holding onto my stomach and waiting for the cramps to pass. Every single time. I was so miserable. I told everyone that I was handling the situation fine and that it wasn't such a big deal... I was totally lying.
Thankfully though- I have the world's most incredible husband. And I'm not talking about a cutesy husband- you know the one you read about on your friend's blog- the guy that is SUPER amazing because he cleans the house and takes the kids on long walks so you can take a nap or even the one that brings home flowers. Nope. I have a better husband. Mine stood by me while I cried about missing pizza (of all the stupid things to cry about right?) and he ate crappy meal after crappy meal- he'd even ask for seconds. He helped me find local cooking classes that offered courses in Gluten Free baking and cooking... and he ate crummy brownies, leaden rolls and cookies that turned to dust after you bit into them. He praised me when I did get a recipe right and offered suggestions when they didn't. He has trailed behind me in health food stores, helping me look for new and strange ingredients to add to our growingy Gluten Free pantry. He has even stood up for me and my diagnoses when others didn't understand what it has truly meant for us. In short- he has been the most patient and understanding man- and I love him dearly.
My mom and my dad have also been instrumental in helping me figure this all out. My mom has attended almost every single one of my cooking classes with me. She has helped me find stores that carried things like Sorghum Flour and Xanthan Gum. She too has helped offer suggestions for fixing meals that don't hurt me and still feed my family. Though- we would be lost without the help of a wonderful baker here in the area- Trish Withus has been an inspiration to me and has helped me master G-Free Chocolate Chip cookies!
It seems that even though we've gotten over a couple of bumps in the road since I was diagnosed- we aren't set for smooth sailing just yet. You see- Ty has been getting migraine headaches since school started back in September. When he first started getting them- I kind of blew it off and blamed it on the fact that he probably would rather stay home and watch movies than go to school- even though I knew how much he looked forward to school each day. But the headaches seemed to get worse and more frequent as the school year went on. He missed days at a time and would spent them down in his room in the dark. He wouldn't eat anything and he didn't want to do anything. I finally brought it up with his Doctor and we tried a few different things before she had him (and the other two kids) brought down to the lab to have blood tested for certain antibodies.
When she called me with the results she told me that she had some "interesting" results to the tests. My heart dropped- "interesting" is not boring- and boring would have been that all the tests came back normal and that would be it. But no. "Interesting." She told me that the antibody count in a normal, healthy person is 4. Ty's antibody count was over 100. The lab stopped counting at 100. He really was a sick little boy- I couldn't help but wonder how long I had actually missed this...
Ryan's labs came back perfect and Kate's were "inconclusive" and she'll be tested again in about 6 months, but the chances are very good that she also has Celiac.
Before the Dr can actually officially diagnose someone with Celiac- you have to go in to a gastroenterologist and have an endoscopy. This is where they put a tube down your throat,take a few pictures and take a biopsy to be tested in the lab. They take the biopsy to rule out cancers and other internal problems that could be the cause of the high antibody count- but because of the family history including Celiac, the Dr thinks that Ty most likely has it as well.
We go in on Wednesday for Ty's endoscopy.
I have mixed emotions on all of this. Do I want Ty to get better? Without question. But a life of Celiac when you start so young? It will be so hard on him. While knowledge is slowly seeping into the general public about people with wheat intolerance- it's not like there are always two birthday cakes at a party- one that is G-Free and one that is full wheat. And it breaks my heart to think about Ty eating a sucker at school while everyone else eats donuts. Is this a healthier way of life? Absolutely. Is it harder? Without question. But how crappy is that to throw on a 6 year old? I have to take away his most favorite food in the world... what is he going to do without a bean and cheese burrito!?!? I know this is taking the "glass half empty" position- which I generally try to stay away from. The pragmatic side of me is saying how much better his quality of life will be when he isn't plagued with tummy troubles and migraines. But it's still so hard to take away things that your child loves. Think about it- what is something your little ones love- can you imagine taking it away and saying you can never have it again? It's hard. I know it's for the best, and the reality is that there are so much bigger problems out there for a kid to have. But it's hard.
Anyway- I don't know if this is exactly the right forum to write all this down in, but I figure if I ever get all of these posts printed out into a book- maybe we'll want to look back at where it all began so we can see how far we've come. Maybe in 15 years when we read it, Ty and I will laugh at how silly it all was to worry so much. And maybe I'll have learned how stupid it is to sabotage my body for the sake of a french fry.
Tuesday, March 6, 2012
Gluten Again...
Posted by The Kidds at 12:48 AM 4 comments
Labels: GFree
President's Day Weekend
Cam...
Kate...
Ty... Ty actually was really pretty crazy out sledding. My parents' cabin is on a pretty big hill and Ty climbed higher and higher each time he went!
Me and my kiddos...
Grandpa and Ryan... Ryan was a little leery (as he always is) and had to have some help at first.
But once he got the hang of it- no one could stop him. And he just looked so stinkin' cute on his little green sled. The green ones spun circles as you went down- so they were totally nutso- can you guess which ones the boys liked the best???
Kate did not like sledding. But I talked her into it for about three runs. Then she was done and only wanted to hang out with Grandpa.
Naturally Grandpa humored her!
Posted by The Kidds at 12:07 AM 0 comments
Monday, March 5, 2012
Ballet Shoes
Posted by The Kidds at 11:53 PM 0 comments
Friday, March 2, 2012
Junior Jazz
Posted by The Kidds at 1:28 AM 2 comments
It's Finally Here! Christmas 2011!
Cousin Deja got a small 4 wheeler that both of the girls liked to sit in. It was cute!
And Christmas fell on a Sunday this year- which I LOVE! I love having the morning with your family and then the afternoon in worship. I love that you are almost instantly reminded of what the season is about and why we celebrate Christmas. I am so grateful for my family and the chance that I have to live with them forever. I am so grateful for my Saviour, and for the fact that He made it possible for us always to be together. I know that He is always watching out for us and that He loves us.
Posted by The Kidds at 1:22 AM 0 comments
Christmas Eve
We made Christmas trees, circles and stars and lots of frosting!
And... were they good!? Ty thought so! Me too actually. These particular cookies were the result of a lot of trial and error in the kitchen during the month of December. I threw away more batches than I care to admit. When baking G-Free, you can't just substitute one cup of rice flour for one cup of wheat flour- you have to mix different types of flour in order to get the taste and texture that you want. I have been taking a lot of classes on re-learning how to cook and bake so that I am not getting sick any more- and it's been rough. But like I said- I finally found a recipe that didn't fall apart in my mouth and actually tasted like a cookie. My family thought they were good and that's good enough for me!
Posted by The Kidds at 1:15 AM 0 comments
Christmas Traditions
I'm getting a little better at taking pictures at night... I wish I could capture how beautiful it is to look across the pond at the Nativity with the lights in the background and as a reflection... but you'll just have to kind of imagine it from the picture I took. I also love that my boys ask a zillion questions about Christ's birth when we are down here. Ty wanted to know EVERYTHING about it. I was grateful to have Shaun's help to field some of the questions since they came about every two seconds. Shaun and Ty have a relationship that struggles sometimes, but when Ty has a lot of questions about something he always goes to his dad.
Kate was just happy to be out of the house. She loves to "go go" anywhere!
After we saw the lights, we went to read the Christmas story. Every year there is a cul de sac/ circle over by Westminster College that puts up lights and huge posters of the Christmas story in their front yards. So cars line up at the beginning of the circle and can read the story from their cars. I remember doing this as a kid- we'd all take turns reading a board- and I can remember Dave and I trying to skip Melissa. She'd scream and my mom and dad would get mad at us- and Dave and I would just laugh. It's funny what you remember.
I was so impressed that Ty could read right along with us this year. These signs are written with the actual Biblical text- which isn't easy reading for a lot of adults- but he read like he was 12.
Posted by The Kidds at 1:04 AM 0 comments
The Big Man Himself
Kate hated Santa and only sat on his lap long enough for me to snap a picture. She ran back to Grandpa and sat with him until the bearded man had left the building. She wouldn't even go near him to get her present.
Ryan was a little leery- but still proceeded to sit on Santa's lap. He very quietly asked for a Star Wars Spaceship and a helicopter. Yeah. That's right. A helicopter. Why did he change his mind two days before Christmas? Because he's Ryan.
Ty was the very last one to sit on Santa's lap this year. He waited very patiently (and let's be truthful here- I think he was a little afraid- not getting presents when everyone else does is like fear in it's most primal form), and was very polite when talking to Santa.
In all, we had a great time. It was the first one with out my grandpa, but I knew he was there in spirit.
Posted by The Kidds at 12:52 AM 0 comments
The Elf Returns...
Posted by The Kidds at 12:47 AM 0 comments
Ryan's Christmas Program
Posted by The Kidds at 12:44 AM 0 comments
Letters to Santa
Posted by The Kidds at 12:41 AM 0 comments
It's Beginning to Look a Lot Like Christmas
Posted by The Kidds at 12:36 AM 0 comments