Last Post for a little while..........

This will be my last post on our family blog page for a while. Please scroll down and see the quick updates I posted about the girls. Since Major's kidney transplant is only 16 days away, I will start blogging on his COTA website so that family and friends will not have to go back and forth between sites. I will journal about Major and Karroll and try to keep you all updated routinely. Thank you to all our family and friends who have been so supportive of our family. We love you all very much. Please feel free to pass Major's website information to other friends. The more love, prayers, and support we have will help our family during this exciting adventure. I ask for special prayers for not only Major and KK(who will graciously give one of his kidneys) but also for our girls who will be away from us until August. A special thanks to Teresa and Jack for caring for the girls over the next few weeks and my parents who will have them until school starts in August. We will pray for you all too!!!!I believe we all have a purpose in life but I know that God sent Major to this world to have a drastic and everlasting effect on each and every person that hears his testimony. Let the games begin........

First Day of 1st grade
Last Day of 1st grade

Taylor gad a great 1st grade year and we loved her teacher. She has lost 6 teeth this year and her looks are definitley changing. She looks more and more like her father every day. She held a student-parent conference with me on the last day of school to share what she has learned and I am truly amazed. I do not remember learning that much until at least second or third grade. The girls will attend a brand new school in our district and neighborhood in the Fall. We are excited to be a part of creating new traditions at Parkside.

Sydney's recital

Sydney had a tap recital a few weeks ago and did absolutely wonderful. She has natural rhythm unlike her mother. Kari knows what I mean!!! Her dance was called "Banana Phone" and she performed in front of hundreds of people. She is the third girl from the right on stage. Good job Sydney. We are so proud of you!

Surprise

Surprise!!!! Major's labs look much better. The dialysis fluid is normal, all blood cultures are normal, CBC normal, CRP normal, and ESR is going down(this can take a week or so to go back to normal). He also has a normal temperature for the past 36 hours and he is very happy. Except for the fact that he wants to be home so I will work on that request today! Prayers are continually answered by our almighty Father. Thank you for the continued love and support. If you did not receive an email from June, please check out Major's new website for the Childrens Organ Tranplant Association-----

www.cotaformajork.com

We are starting our official fundraising campaign to help defer some of the expenses of his transplant and being out of work for months. Donations are tax deductible as COTA is a not-for-profit 501(c)(3)tax exempt organization. Donations are made to COTA in honor of Major Key. All proceeds raised will go to Major for transplant related expenses for the rest of his life.

June is having a volunteer meeting with a COTA representative at her house on Monday June 23, 2008 at 6:30pm. Please let us know if you are interested in attending and I will give you more specific information.

Love to all our family and friends!!!!!!
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On the roller coaster

Okay, the past 20 hours Major has had a normal temperature on 3 antibiotics. Two of the antibiotics are in his dialysis and one is through the IV. I really appreciate that the health care team listened to my concerns yesterday. Major had an ultrasound of his abdomen and today he had a CT of his abdomen and sinus cavities. Everything looks normal and all of the blood cultures are negative at 24 hours. So he is showing improvement but there is not a definitive cause of his prolonged fever. Everyone is a little puzzled. The true test will be if Major stays fever free when off antibiotics in the next 7-10 days. I am believing that Major's labs will look better and once again surprise the medical world! Praying for God's will to be done. On the roller coaster again!!!!!

Another Roadblock

Major was admitted to the hospital yesterday for a fever that has lasted for 10 days as of Tuesday morning. He was seen twice last week at the pediatrician's office and was put on two different antibiotics after cultures were taken from his few drops of urine and his blood work showed a bacterial infection.

When we arrived to the hospital, the Nephrologist on call and the Infectitious Disease doctors came to see Major and ordered more labs and cultures. So far the only growth of bacteria is in his peritoneum-where dialysis takes place. It is very unusual to me because Major has had clear dialysis fluid over the past 10 days and he has not had abdominal pain which always goes along with peritonitis, so I am not sure I will be complacent with that as his diagnosis. I will make my concerns known today---parents must always advocate for their child's health! I have certainly learned this lesson the hard way over the past two years.

I'll update more later when I find out more about his condition. Please pray for God's healing power because this illness could potentially affect transplant if it is not resolved completely!!!

July 7, 2008------------"T" Day

Major at 1 week of age......... and now Major at 2 years of age


Well it is official.....finally. Major will have his kidney transplant on Monday July 7, 2008 at Lucile Packard Children's Hospital at Stanford. KK is very excited and in awe that he will be able to save our son's life and give him a fresh new start by donating his left kidney. Thank you all for your love and support and we ask for continued prayers as our family embarks on another adventure. The plan will be that either KK or I will stay with Major in California for 100 days post transplant so there are still details that we will have to work out but it is all good!!!!!!God provides for all our needs in His time and place.