Kenzens first day of preschool

Kenzen was able to start school today. He was very excited and I was very nervous. It was a big day one I wasn't sure we would get to have. He did really well and had a lot of fun. 

Kenzens heart cath

Kenzen did really well today during his heart cath so good that the doctor let him come home. We were discharged at 4:30and went and surprised our kids that he came home. He is already back to his happy self. He had a really good experience they did all the poking and hurtful things while he was asleep so he won't be scared to have to go back in fact he didn't want to leave right away because he wanted to go on a wagon ride. We took him on a pretty long wagon ride before we came home. As far as the results he hasn't changed much since his last cath. We were hoping he would be better but he's not. He still can't have the third surgery or a transplant so pretty much are only option if he were to go into heart failure would be a long and heart transplant which isn't a good option most people don't survive that. The plan is to just keep letting him grow and leaving him a lone we are hoping we get quit a few more years before he starts to decline and we are hoping by then either he has gotten better or there is new technology that can help him.

Upcoming heart cath

Kenzen is going if for a heart cath again on August 26. This is a very big deal for him he hasn't had anything like this done for over two years now. The last two he has had didn't go well. They are the procedure that has put him in the icu for a couple of weeks. Also the results haven't been that great either. His last one we were told he was no longer a candidate for the third surgery he needs and he also wasn't a candidate for a heart transplant anymore. Which means if he went into heart failure there really isn't much they can do to help him. Since then he has done so much better then any of the doctors have expected him to do. We are really hoping and praying that things are different this time and his body has gotten better to where he would be able to have those things when the need arises for them. Please send a few extra prays his way that he will be able to respond better this time and have a good outcome. I am very nervous and so are all my other kids. I will update how things go as we get more information.

Our make a wish trip

Kenzen had his wish granted and we were able to go with our whole family the end of May. It was so much fun and everyone enjoyed every second of it. The kids didn't want to come home. We were able to stay at a place called give kids the world. It's this place set up like a little village community with villas. The one we stayed at had two bedrooms, two bathrooms, a full kitchen, and a nice family room. They had two swimming pools, a restaurant on site, and an ice cream shop on site. All the food was included free of charge from make a wish. We got to go to disneyworld three days, seaworld a day, and universal studios one day. I think one of our favorite places was universal studio. They had the new harry potter land that was open and that was so cool and Dave's favorite place. Kenzen also got a special star he was able to draw whatever he wanted on it was really just all scribbles but they put it up in one of the towers in the village and it will always be there. We can go back anytime for day visits and see his star and volunteer our time. Most of the staff is all volunteers. It is a very awesome place set up for kids with life threatening illnesses. We want to go back one day when he is older and take him to see his star and just relieve the experiences we had. We are very grateful to be able to have received this gift for our family and admire everyone who is willing to give their time and resources to help families like ours.

Kenzen makeing his wish

These are pictures of Kenzen up at the make a wish building where he made his wish for Disneyworld. I just heard today that we will be going to Disneyworld in May for his wish. We are all very excited to be able to do this as a family.

Make a wish

Because Kenzen has his heart defect he qualifies for a program called make a wish. We had his doctor turn his papers in back in December. We just heard that he has been accepted and we go on Tuesday night for him to make his wish. They sent us a key in the mail that opens a special room up in salt lake where he will make his wish. We are all really excited about this he is going to wish for a trip to disneyworld. If the wish is granted we will all get to go in a few months for a week to disneyworld. All of our kids are very excited about this it will be a very fun week. I get asked a lot about how he is doing and what the plan is for his future. As of right now we don't really have Alan his last heart cath didn't show good results for his future and as have just kept praying that things would get better as he got bigger and stronger. I do believe that he is doing so much better then any of the doctors thought he would after his last cath it will be two years in May since he had that done and he has made a lot of good progress which I don't think they thought he would do. He has since then gotten off of oxygen and has almost caught up development wise to kids his own age. If you see him now you wouldn't know there was anything wrong with him. We are now faced with a really rough decision we need to do another heart cath to see if things have changed and if there is anything we can do to improve his outcome as he gets older. We have been putting it off because he doesn't usually do well with the surgery of a heart cath but he has started to show is signs that he needs us to look into it further and see what are options are. He has started waking up in the middle of the night screaming about once a week I don't know if it's because of nightmares or if it has something to do with his heart. He has also starting throwing up at least once a week if not more frequently at random places it usually happens when we are in public at eating places let me tell you it's really embarrassing to have him throw up everywhere and having to clean it up in front of people and trying to explain that he's not sick. Because of those things we have decided to go a head and do a heart cath in either May or June once the cold and flu season is over. We are really hoping to do his make a wish trip before that just in case it doesn't go we'll. On a lighter note we have been in our new house back in Saratoga springs for 7 months now and we love it. We have awesome neighbors and an awesome ward. Are children are very happy and Kenzen is one of the happiest little boys I know.