Wednesday, March 28, 2007

Discrimation

So, here it is.
For the last several years I'll attempted to conceal the nature of my GS and the impact that it has in my daily life.
Due to the stress of medical school, insecurity regarding my future (where the next four years will find me), and the weight gain that has accompanied this whole mess, my gilbert's is really, REALLY bad right now.
So, here I was, sitting in class, next to someone that I once considered a "friend." So you know, today has been a bit of a "yellow" day and I'm sure that I've been a bit touchy. I turn to my "friend" in hope of moral support and tell him that my GS has really been bad lately. I've only eaten chocolate and carbs today and feel like garbage.
His only response was to laugh and discount my feelings. It's going to be a long time before I talk about my GS outside the anonymity of this blog.
Thanks for listening,
Freddy

Tuesday, February 01, 2005

Your Survival Story

When I was diagnosed with Gilbert's Syndrome I was overcome with two diametrically opposed emotions. On one hand, I was overcome with grief, knowing that GS could hold me back from everything that I want to do with my life. I thought, "Gilbert's has come to steal my life from me." As soon as this thought entered my mind I was drawn by an opposing emotion. I was lifted with hope and understanding. Suddenly my life made so much sense - this is why I have difficulty dealing with stressful situations, this is why my wife won't look into my yellowed eyes, this is why I developed so differently from the other boys . . .
This understanding has brought me to a higher level of self-awareness and has given me the hope to overcome all of my Gilbert's associated shortcomings. I want to hear your story. Tell us how you've pushed your way through the yellowed haze of dispair. Teach us what has lifted you up so that we too may be lifted.
Thanks, Joe

Saturday, January 15, 2005

An Anonymous Confession

Yea, so I'm a survivor. That's to say, I barely survived. I don't think I'm familiar with a nastier disorder that causes such debilitating symptoms. I knew something was wrong when my pubic hair started to turn yellow, it wasn’t even from my dye. Adam, maybe you had a similar experience. Anywho, I went straight to the ED and showed them the new surprise I found. Well, they all laughed at me and sent me home with the implication that I was some stupid guy. Yea, that hurt.
Well, I put my tail between my legs and went home (so to speak - no Dusty, I really don’t have a tail). That was the MISTAKE of my life because about 30 min later, I experienced the most incredible shrinkage of my life, my fingers had become yellow and so necrosed that they began to diminish. Well, I thought to myself, “there’s no way those guys at the ED will turn me away now.” So, I went back to the ED, and sure enough, they let me stay. To make a long story short, they biopsied my liver and did whatever they do with it. An hour later they came back to me and told me that I had Gilbert’s syndrome. I said, “I don’t know anybody named Gilbert.” They then explained that it was a disorder of abnormally high billirubinemia. –whatever that means. Well they did their thingy and I walked away a whole man or was it a woman (they did say something about gynecomastia). Anyway, my fingers experienced unshrinkage and all was WELL.

I hope this story inspires all.

With great love and lots of hope for all you Gilbert lovers.

--Anonymous

Wednesday, January 12, 2005

Your Gilbert's Symptoms

Tell us about what symptoms / disorders that you have that are associated with GS. Please share!