It is year 2015 now.. But in the year 2014, many things happened. It has been kept sort of a secret and only my close friends knew about it. To track back, I remembering Caitlyn has tummy discomfort and a so called episode of diahorrea but it couldn't get well and two months passed. I am still breastfeeding her and as days passed, she actually get more tired and swollen. A few days after Christmas I decided to send her to Kkh to have her thoroughly checked up. We wasted one week admitted in the hospital as the doctor refused to let her see the gastro doctor, they only do so when her condition worsen. And by the time it is, she is too swollen to have any plug inserted and need to be send to NICU. She is as swollen as a pig and her eyes couldn't open. My heart aches and I need to set up a brave front while all the doctors asked me questions. They found out her protein is low and thus the water retention. And due to the serious delay in treatment, her electrolytes are seriously off
Balance. The gastro team are in to treat her and the whole journey begins. They tube feed her, gave her albumin infusion, hook her up on TPN drop and even considered to tranfuse blood to her. Yes, that is how sick my little one is. And when she is about to discharge, she caught a flu bug. We went back home and failed to nurse her back to health and therefore she couldn't passed her first review after admission and is admitted into hospital again. This time round, we put her into isolation room and they did a more thorough checkup and she is hooked up back on TPN drip. The drip is the one that nurse her back to health but the side effect is that it will affect the kidney. The days in hospital is HELL to me. Everyday is spent trying to feed her the smelly milk while she ate her food unwillingly. And we tested every kind of food in hospital to see if she has reaction to it. The gastro doctor think it is a case of food allergy and still rope in the immunologist to do a thorough checkup. Results came back that her white blood cells is abnormally low, and she is being suspected of having immune defiency. My whole world seems to collapse on me as I see this poor little baby suffer all these.
Long story short, she is receiving regular checkup with Kkh and has successfully grow up well and meeting all her milestones. She is starting on fish now after being on her hypoallergenic diet for months. Nobody know the reason why she is so sick. They need time to tell what is her condition. The gastro team thinks it is food allergic. The immunologist thinkS Otherwise. He suspected it is a rare gut disease. Only time will tell but seriously I know is something not serious.
Takin care of her is stressful. I need to cook every meal for her and make sure her health is good so that her white blood cells will be back to normal. Now it is but it is just back to normal so she is still considered as having low immune. I couldn't go out and have fun as usual. I couldn't bring her along. My hands are suffering ecezma due to frequent washing of hands. My house is clean, and that is the price to pay.
My hubby and I are always quarreling. About money. Well, Caitlyn is a PRADA baby. Her milk powder alone cost a bomb. We gave her the best. I am too tired to go
Into details. Just hope 2015 will be better.
It better be.