I Love this Picture (Ryan and his Mommy )
This Sweet little boy's name is Ryan White. Unfortunately he passed away on August 9th, 2010 from Spinal Muscular Atrophy. Ryan was such a fighter !!! He had to endure many trials in his short life but especially the last few months as his little body was shutting down.
We met Ryan when Karson was in PICU and Ryan had to come in to have his G-tube placed. As we talked to Jerrell and Michele (Ryan's parents) they told us that their first little boy had passed away from SMA , then they had Josh (healthy boy) , and then Ryan . I am so amazed with these families that have the faith to have more children knowing there is a 25% chance they will have another SMA child. There are many families that have two or maybe even three SMA children. I can't say enough how AMAZING these people are!!
One thing is for sure Ryan's is free of this HORRIBLE disease. He can Breathe, Run, Jump, Swallow, and so much more. I know Ryan is happy but his family is in need so all of you that read this please keep them in your prayers!
P.S.
If you haven't ever looked at the little video clip to the left please do. It's of a bunch of special little SMA kids. Karson's baby picture is in it.
