Monday, July 26, 2010

Back off

We went to see Neuro Psychologist at Rehab Clinic a few weeks ago. Everyone there was so excited to see Ada. After a long conversation, I told her that Ada can express more emotion; angry, frustration and fear, and that she always look for me when she get frustrated with something, so I always get the worse of her. Dr. suggested that I "back off" and be her mom and try not to be her therapist. I should try to get out of the house more and let Ada's nurse work with her, which usually works better when I am not around anyway.
My problem is I just can't leave her alone, always thinking that there must be something else that I can do. Since she does not get therapy except with Speech Pathologist once a month, I feel like it is up to me to help her, work with her, but may be I am wrong. In order for me to be able to take care of Ada for a long, long time, we need a break from each other.
It is not as easy as it sound, but I am thinking about moving my work table which in front of her room some where else, so I can be away when I am suppose to be away. May be I can use the room up stair when Archie moves back to Bloomington.
There are a few problems that we have to deal with this past month. First, she doesn't eat that much Cheerios like she used to, so I have to replace it with something else, second, what goes in does not always comes out. Then she has the red eye that we thought from her scratching it but it went away then came back for a day, then went away again. Always something.
Other than that she continues to boss us around and we love it when she does that.
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Wednesday, July 7, 2010

Grant


Grant, I might say, is the only guy friend who still visit Ada. He visits when he comes back to town, from Afghanistan. Grant's mom is a good friend and genius hair dresser, she can cut my hair, (Seriously, it is not an easy task). Ada gives him a big smile and he makes her laugh. Grant got transfer to Japan which will make us sleep better at nite knowing that he is no longer be in the war zone.
Last week, Rachael and I took Ada to the movie theater. We are not sure how long she is going to sit there, so we picked the movie "Toy Story 3". Ada likes the preview, she laughed and smile d up until 3/4 of the movie, when it was kinna sad and not so excited, she pointed to the door. I took her out, walked around then went back in but she was not happy about it, so we went home. Not bad though, she was in there for more than an hour.
Ada starts eating more and more Cheerios, but I still have to give it to her by hand.
Early this morning, I heard Ada laughed, I turn around and she was still sleeping.
Must be a good dream.
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UPDATE ON ADA

9/20/08
Now that Ada is home. I will not be blogging as often. She is strong and healthy, not too many things, health wise, to worry about. If you want to visit her, please call me at 640-7096. We should be at home, and hopefully she will get to go to RHI for therapy soon.

6/23/08
We went to see Dr. Callahan today. He is Dr. Jude replacement. Needless to say, they are just the same. May be this is so typical for Neuro doctor to act this way. We had scheduled Ada to have her bone flap put back on Thursday, July 3rd. I was laughing because I used to metion that we will get the best view of the firework display on 4th of July from the roof top of Methodist Hospital and we will be there. Ada will love that. Some say that many patients do get better after putting the flap back on. We sure hope so.

6/8/08
Back at the nursing home now, I trying to learn the new feeding and her med schedule. Ada get a slow feeding from 8 to 8 so when she has to go somewhere, she won't miss the feeding. She actually gains 2 lbs this month. She can communicate through her eyes and she makes all kind of faces to let you know how she feels or what she wants. Can't wait to see what she can do next week.

6/1/08
I made a mistake on my airline reservation, so I will stop in Hong Kong with Yui for a couple of days. I'll be home on Thursday, I promise.

5/15/08
Here is the address for American Village
2026 East 54th Street, Indianapolis, In 46220
If you want to visit Ada, please me a call (317) 640-7096 or call Ardis at (317) 871-4800
I will be gone for 2 weeks but feel free to come by or bring lunch to Ardis

4/4/08
We settled down at American Village this afternoon. She got her private room and they rearranged the furniture just for her. She seems to be more carm and peaceful. Strang place to be for me since I have nerver been to the nursing home before. I hope they take good care of Ada.

4/1/08
Ada moved into room 4039 on the 4th floor today. It is a step down. No monitor in her room which means no more munber to worry about. She is not in critical condition any more. It is more laid back on this floor. I got a roll bed to sleep on. Slepping on the chair for a month, I'm not sure I can sleep well tonight. Tomorrow I will visit a few nursing homes to see if they will accept Ada.

4/1/08
Yesterday they told me that Ada will be moving to 5th Floor, Neuro unit, but she might go down to 4th floor today. Who knows, may be the nurses on the 4th floor heard about the candy. We have to look for the place for Ada to stay after she gets out of the hospital. She can't go to Rehab yet, a nursing home, may be. This is very fustrated and confusing process, I just want to take her home.
She is doing fine today.

3/31/08
It had been a month already and we are still waiting for Ada. She can be completely off the vent or oxygen at this point. This is good for her but we run into the problem that she won't be qualified to go to Seton. We have to find another facilities for her, may be Rehab Center. One thing is, they won't throw her out of the hospital, promise.
Ada moves her right hand and fingers more. I am working on it, she must be tried of hearing me telling her to move her fingers by now.
Various music from several IPods are playing all day. I also read out loud from Win's book, and Abby comes in the evening to read Harry Potter to her.

3/28/08
Friday afternoon and Ada is breathing on her own without the ventilator. The nurse also put her up on a chair. Kudo for Jennifer, she is brave enought to do this with the help of other nurses on 6th floor. Everyone is so happy including Ada. :)
More good news tomorrow, I hope.

3/28/08
She slept well last night, must be some medicine they gave her. This morning she moves her right arms and her right hand more. Left arm will be trapped in the splint off and on all day. She also be able to breath on her own more and more. No word of when we will be moving to Seton.

3/27/08
The brain is still swallon, so no surgery this week. Imagine having one surgery each week, I don't think people my age can handle that. She is strong and fighting. The nurse gave her a bath today, so was sleeping peacefully while I left.

3/26/08
The doctor took all of the staples out of her head today. She was pretty mad, I can tell. They took her down for c-scan, she might get her flap back on her skull on Friday. Which mean another round of staples on her head. Her left arm is getting stiff, so the adjustable cast will be put in her arm to keep it straight. We need to start excercise her arms, other than that, she is pretty much the same, may be more alert.
Seton will have a bed for her pretty soon so we can move out of the hospital. Maybe early next week.
Hugs
Ponsawan

Ada&Eliana

Ada&Eliana