Wednesday, April 9, 2008

A new chair has arrived

I have a big calender where, every night, I write down what Ada had done today that different than yesterday. A tiny step but a giant one for her. For example, on Sunday she respond by blinking her eyes when we wave our hand in front of her. Yesterday she bend her right arm more and she can get her hand almost to her chest. With fear and frustration in her eyes, I have to look away. She also starts showing some emotion through her face. We decided to cut her medication in half to see if there is something more she can do. Sure there is another factor of "pain" that we do not know of, pain medicine and anti-depression drug will be given to her.
I have to say that Ada had received the best care that the staffs at American Village can offered. All the questions, all the concerns that I have, had been answered. Everyone is working tirelessly to take care of her. Thank you, thank you.
Today we put her on the chair. It is a special recliner on wheel that can be adjusted to any position. She looks comfy in the chair and fell asleep the whole time. Adding the portable humidifier machine, we can wheel her out of the room to meet her neighbors or even go outside when it is warm. They also weight her today. The liquid, high protein, and non-fat food that she has, does not give enough calories that she needs, but they will adjust that.
Other than that, she looks good, her skin looks good, she can cough up and clear her lung very well. Also she can breath through her nose, bypassing the teach. Pretty soon they will train her to breath on her own take out the trach, then she can talk. The speech terapist has started working with her already.
So everyday she has so many people come in and out of her room. Tomorrow, the ambulance will pick us up to go to the doctor. They will look at her right ankle, the one with cast.
For me, .... hum, to tell you the truth, very fustrated by all these. I fell like having "out of body" experiences because I have neither power nor control of my life. I just get up in the morning and do what I told, I can't make any decision or too afraid to make one. Ardis is taking care of everything. Without her, I am not sure what to do.
Hugs
Ponsawan

10 comments:

Anonymous said...

Just remember--you are her mother, and you have every right to make decisions for her! Don't be afraid to stand up and speak your mind, or ask questions! It's very overwhelming, I'm sure, but you are her words right now as she cannot speak. You are her advocate! It isn't much fun to feel like you've lost control. And when you feel too overwhelmed, don't forget to take time for YOU...that is so important!

Anonymous said...

My dearest Ponsawan,
I can't tell you how much I feel for you right now. This is probably the first time you let us see your vulnerability, which is natural for all mothers, all human beings. You have been very brave going through all these, and still giving us Ada's updates with a cheerful, positive voice. Go well my dear freind. We are with you all the time.
Love
Ting

Anonymous said...

Dear P Jim,
I am glad to hear about Ada recovery condition recently. Just want you to know that all of us(796s, P Nui & P Noi etc.) here in BKK are with you.They keep watching your blog to get updated info of Ada and you everyday.
Especially, we are so sorry about what happened to your dad last night....He will be in our memory always.
Pls take care yourself na ka.
R Maew

Anonymous said...

Ponsawan,

I am very sad to hear that your father passed away last night.

I am speechless. I pray that God continues to bless you with strenght and comfort during this trial time.

Love,
Yui

Anonymous said...

My dearest Ponsawan,
I have to reiterate that I can't tell you how much I feel for you right now, when I found that you have just lost your Dad. Things seem to happen at the same time as though to prove your strength. Please don't lose your faith. Please carry on. Allow yourself to be human, but know that we are all holding your hands. We are taking each step through this hardship wih you.
My dear friend, a common belief in our country says that when a younger person untimely suffers a life-threatening danger and suddenlty an elderly in the same family passed away in a timely manner; it means the younger person will be perfectly fine. The older saved the younger, so thay say.
I pray more and more for you and your family.
Ting

Anonymous said...

I'm too very sorry for your loss. Let me know if there is anything I can do.
R-Noy & Eliana Kelly

Anonymous said...

My heart and prayers are with you and your family, Ponsawan.

*love*

Kim Cavender said...

Dear Ponsawan, I can't even express how in awe I am of you and Ada. You are both so very brave and strong.

I'm sorry to hear that your father has passed away. May you continue to keep the faith and courage in your heart and mind that will enable you to get through all of these bad times. You are in my thoughts and prayers every day.

Anonymous said...

I would just like you to know, Ponsawan, that sooo many people have you and Ada in their thoughts, more than you could ever imagine. I think of you two every single day, and I know you will be strong enough to pull through...just remember all of those who are keeping you in their thoughts!!!

Anonymous said...

We’re truly sorry to hear that your father has passed away.

Please accept our deepest sympathy for your loss, dearest Ponsawan.

Love,

Nithi & Malisa, Phuket

UPDATE ON ADA

9/20/08
Now that Ada is home. I will not be blogging as often. She is strong and healthy, not too many things, health wise, to worry about. If you want to visit her, please call me at 640-7096. We should be at home, and hopefully she will get to go to RHI for therapy soon.

6/23/08
We went to see Dr. Callahan today. He is Dr. Jude replacement. Needless to say, they are just the same. May be this is so typical for Neuro doctor to act this way. We had scheduled Ada to have her bone flap put back on Thursday, July 3rd. I was laughing because I used to metion that we will get the best view of the firework display on 4th of July from the roof top of Methodist Hospital and we will be there. Ada will love that. Some say that many patients do get better after putting the flap back on. We sure hope so.

6/8/08
Back at the nursing home now, I trying to learn the new feeding and her med schedule. Ada get a slow feeding from 8 to 8 so when she has to go somewhere, she won't miss the feeding. She actually gains 2 lbs this month. She can communicate through her eyes and she makes all kind of faces to let you know how she feels or what she wants. Can't wait to see what she can do next week.

6/1/08
I made a mistake on my airline reservation, so I will stop in Hong Kong with Yui for a couple of days. I'll be home on Thursday, I promise.

5/15/08
Here is the address for American Village
2026 East 54th Street, Indianapolis, In 46220
If you want to visit Ada, please me a call (317) 640-7096 or call Ardis at (317) 871-4800
I will be gone for 2 weeks but feel free to come by or bring lunch to Ardis

4/4/08
We settled down at American Village this afternoon. She got her private room and they rearranged the furniture just for her. She seems to be more carm and peaceful. Strang place to be for me since I have nerver been to the nursing home before. I hope they take good care of Ada.

4/1/08
Ada moved into room 4039 on the 4th floor today. It is a step down. No monitor in her room which means no more munber to worry about. She is not in critical condition any more. It is more laid back on this floor. I got a roll bed to sleep on. Slepping on the chair for a month, I'm not sure I can sleep well tonight. Tomorrow I will visit a few nursing homes to see if they will accept Ada.

4/1/08
Yesterday they told me that Ada will be moving to 5th Floor, Neuro unit, but she might go down to 4th floor today. Who knows, may be the nurses on the 4th floor heard about the candy. We have to look for the place for Ada to stay after she gets out of the hospital. She can't go to Rehab yet, a nursing home, may be. This is very fustrated and confusing process, I just want to take her home.
She is doing fine today.

3/31/08
It had been a month already and we are still waiting for Ada. She can be completely off the vent or oxygen at this point. This is good for her but we run into the problem that she won't be qualified to go to Seton. We have to find another facilities for her, may be Rehab Center. One thing is, they won't throw her out of the hospital, promise.
Ada moves her right hand and fingers more. I am working on it, she must be tried of hearing me telling her to move her fingers by now.
Various music from several IPods are playing all day. I also read out loud from Win's book, and Abby comes in the evening to read Harry Potter to her.

3/28/08
Friday afternoon and Ada is breathing on her own without the ventilator. The nurse also put her up on a chair. Kudo for Jennifer, she is brave enought to do this with the help of other nurses on 6th floor. Everyone is so happy including Ada. :)
More good news tomorrow, I hope.

3/28/08
She slept well last night, must be some medicine they gave her. This morning she moves her right arms and her right hand more. Left arm will be trapped in the splint off and on all day. She also be able to breath on her own more and more. No word of when we will be moving to Seton.

3/27/08
The brain is still swallon, so no surgery this week. Imagine having one surgery each week, I don't think people my age can handle that. She is strong and fighting. The nurse gave her a bath today, so was sleeping peacefully while I left.

3/26/08
The doctor took all of the staples out of her head today. She was pretty mad, I can tell. They took her down for c-scan, she might get her flap back on her skull on Friday. Which mean another round of staples on her head. Her left arm is getting stiff, so the adjustable cast will be put in her arm to keep it straight. We need to start excercise her arms, other than that, she is pretty much the same, may be more alert.
Seton will have a bed for her pretty soon so we can move out of the hospital. Maybe early next week.
Hugs
Ponsawan

Ada&Eliana

Ada&Eliana