From little acorns..........

There has been a lot happening in the project since my last update and I apologise for the lack of entries here.  Time has flown by and much of it has been spent focusing on establishing working relationships with other dementia-related organisations (more on that soon) and starting some dementia-friendly activities to support people in their own communities. 

So let me introduce you to the Clays walking group; here they are.......

.......enjoying various walks, tea stops and each other's company

It all began with Stephen and his wife Teresa who came along to one of our coffee mornings (a social activity we used to raise awareness of the project in the china clay area around St. Austell).  His frustration with his diagnosis was obvious.  Having been a farm worker all his life he suddenly found himself with no purpose and no bike license. His social life and mode of transport had gone but his determination to do as much as possible whilst he still could was very present.  So we organised a walk, just a short one and local to the area and then we followed that with another one and another and slowly others contacted us and joined in.

There are now 10 regulars in the group, including partners and other community members.  They laugh together, accommodate each others walking paces, share home-made 'goodies' and are disappointed if they have to miss a walk.  Stephen has even presented at a recent conference - his first time ever! (again, more on that soon).

You know the old saying "from little acorns big oaks grow"? combine that with a saying by JF Kennedy: "We must use time as a tool, not as a crutch" and I believe that's a good foundation for building sustainability into our project. We take our time to plant the 'acorns'; whether that's establishing working relationships, developing new activities or getting to know our beneficiaries. It's about appreciating and taking time to do all those things so that we create a solid foundation for sustainable outcomes.  We learn more about our beneficiaries and we develop activities that provide the right support and creativity for them.  

The Clays walking group provides us with wonderful images and anecdotes that we can use to encourage other communities and organisations to work with us.  Soon we'll be starting activities in Bodmin and Liskeard and later in the year - Wadebridge.  

There are exciting times ahead, if our 'acorns' are anything to go by!

p.s. don't go too far, there'll be more coming up shortly about our working partnerships and a 'first' for a conference in Cornwall.




Wendy
Creative Spaces Project Manager

The Fear of Dementia

I recently read an article on the nursingtimes.net website, headlined Dementia 'more feared than cancer' by older patients.  

The article was about a recent poll in which 100 patients over 50 were asked which they feared the most: dementia, cancer, heart disease or diabetes.  The results suggested that two thirds of them were more frightened of dementia.

Could this be something to do with the fact that a cure still seems to be a long way off and we lack the 'we can beat this' attitude that is now more common with a cancer diagnosis?  Or perhaps because the media tends to focus on the negative aspects of dementia, which makes for more sensational headlines, or maybe that many people in society still don't know much about this disease and therefore fear what they do not know? Perhaps it's a little bit of everything.

Whilst  research into a cure continues and early diagnosis is actively promoted, we still have a responsibility to make life as great as possible for people currently living with dementia.  I believe that it's only by creating social opportunities for people with dementia, with their neighbours, young people, shop staff - basically anybody else living and working in their community - that we help to break down social and emotional barriers.  The more people communicate with each other, the more they learn and understand each other and the better and stronger their connections are.  Fear is replaced with acceptance and ignorance with knowledge.

So let's not forget the importance of supporting people affected by dementia using social and creative approaches.  It is in these situations that people are able to communicate with each other through shared experiences and where they feel valued and accepted by others and where others are able to gain greater insight into the impact of dementia on those it affects.

A community trip to Eden Project; participants created
Nature Palettes, tasted food in the Mediterranean Biome
& got to know each other a little better

Wendy

Creative Spaces Project Manager

Drop-ins, Memory Cafes and the start of something new!

June and July have been  busy months for Creative Spaces in the Community.

Our drop-in sessions in St. Austell, St. Dennis and Roche created useful links with people living in those communities; not just dementia carers but people in the community that I call 'connectors'. You know, those people who know almost everybody.  Through them we are connecting with local schools, health centres, NEET groups (young people not in education, employment or training), libraries (including community libraries and mobile library services) and community cafes.

our drop-in sessions in ClayTAWC, St. Dennis (top left), Rest & Play cafe, Roche
(top and bottom right) and St.Austell Library (bottom left)

Meanwhile our work with Cornwall's Memory Cafes continues; last month it was Saltash and Penzance (not on the same day thankfully........that would be some travel!).  This month I've been to Redruth and St. Ives and shortly Downderry. Memory Cafes are fun and taxing at the same time.  We've made Memory Postcards, Nature Scrapbooks, woven hazel baskets and hanging decorations (both part of our Weaving Tales activity).

top left: Nature Scrapbooks;  Top right: Memory Postcards;
bottom left and right: Weaving Tales

You concentrate on ensuring that people are getting the most out of the activity, supporting them when needed but at the same time it's just so enjoyable chatting with everyone and watching people engage with each other.  I always leave feeling shattered but with a smile on my face!

So what is there to look forward to next?  Well, following on from the drop-in sessions we'll be developing one or two small projects in St. Dennis and Roche, involving people with dementia, carers and community members.  The aim is to start these projects soon, run them for a couple of months and then review their level of effectiveness in helping people to feel healthy and happy.  More about those later.

We've also recently formed a group of dementia support providers with Age UK, Memory Matters South West, Alzheimer's Society and United Response, amongst others.  Our aim is to share our work together, find ways of working together and promote the benefits of creative social support for people affected by dementia through the health and social care sector in Cornwall.  Not much to say on that at the moment but I'm hopeful it will develop into a strong network of organisations.

Wendy
Creative Spaces Project Manager