So, its that time of the year again... We are spending most of our lives in various doctors offices across the Wasatch Front... How did this happen? How do we go a WHOLE YEAR without seeing any of her doctors, and then BOOM! spend a whole month, running from one to the other?!?! Luckily, most of her appointments are for prescription refills, and nothing serious.
As most of you already know, Mikayla has been going to play therapy to help her deal with some of her fear, anxiety and anger issues that she has developed from all her surgeries and medical tests she has had since she was a newborn. The good news is, she REALLY loves going. She is always asking if today is JP day... Well, a few days ago, Brian and I had a session with her therapist and just sat down and talked about Mikayla and what he was observing and what he thought. And he told us (basically things we know and have observed ourselves) that she is very hard to diagnose. She is really scattered one day so it looks like ADD, but then the next day she is totally focused so maybe its not... He says her moods change SO FAST that he thinks maybe it is bipolar... but we don't have any history of bipolar disorder in either Brian's or my families (apparently it is inherited)... so that left him with
childhood depression, and he asked us to go see our pediatrician so she could prescribe some antidepressants for her. OK, I am not happy in the least that my 6 year old needs to be on antidepressants!! But we want so much to help Mikayla, that if that is what she needs, that is what we will do for her! SO... we took her to the pediatrician and did a whole medical evaluation and physical, and sat and talked with her for OVER AN HOUR! (how often does a doctor sit and talk with a patient for that long?!?!? never in my experience!) and she (the pediatrician) said she is not convinced that Mikayla has childhood depression. She says there are MANY different things it can be, like her diet, her sleep patterns even the seizures she has could be responsible for what is happening... and it still might be depression, she is just not sure! (which is good, I am glad she is being cautious... I don't want her on antidepressants if she needs meds for ADD! and I don't want her on any more meds if it is just her diet and sleep that need to be changed!) SO... she told us we need to take Mikayla to a child psychiatrist so that THEY can diagnose her... so now on top of her having a cranio-facial surgeon, a neurosurgeon, a neurologist, an occuloplastic surgeon, a pediatric ophthalmologist and a play therapist, she apparently needs to have a child psychiatrist too! so we are on the hunt for a good psychiatrist, that hopefully can diagnose her and just get her the help she needs!!
Also, last year at her MRI, her neurosurgeon told us that she would most likely need to have brain surgery this year again. Her brain is hemorrhaging too much and there is too much pressure on her brain again. So we will be taking her back in to the hospital in SLC to have another MRI done so they can measure how much the hemorrhage has grown and see how soon they need to do surgery again... we will keep you updated on how she is doing and whether or not she needs surgery this summer / fall...
Does it ever end?!?!?