Welcome to CHD Babies!

My only hope with creating this blog is to help families of a loved one affected by a Congenital Heart Defect (CHD). I am blessed to have an amazing CHD Baby (Chloe) who has inspired me to help make a difference! This blog is one of MANY wonderful resources out there, raising awareness and fighting for all of our CHD Babies!

Below is a short video with CHD Statistics and a recap of Chloe's first year.

Since 2009, I've been advocating for mandatory Pulse Oximetry Screening of all babies born in Missouri. Visit my Pulse Oximetry page to see why this fast, easy and painless screening saves lives.

2013 is the beginning of my new journey - racing for CHD. My goal is to swim, bike or run my way to the finish line as much as possible this year, while raising CHD Awareness at the same time. For more details, check out the latest & greatest!

To have a photo of a CHD Baby, Adult or Angel added to my Heart Babies page, please email me your name, birthdate or angel date, CHD type and photo.

As a heart mommy, I know what many other heart families are going through. Please feel free to email me or post comments on the blog with any questions, thoughts or feelings you may have.

Would love to hear from you! Thank you to everyone for your support!

 

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Photo and video editing at www.OneTrueMedia.com

Please Help Fund CHD Research By Donating!

The Children's Heart Foundation relies on the support of individuals, corporations and foundations to fund vital, life-saving research. We are extremely grateful to the many generous donors that have made it possible for us to fund more than $3 million in research specifically targeting congenital heart defects since our inception in 1996.

We strive to be fiscally responsible with your donations, with over 75% of CHF expenditures directly supporting research and research-related education.

Thank you for helping to save children's lives – one heart at a time. To donate, click here.

The Saving tiny Hearts Society is the only organization in the country that was formed for the sole purpose of raising funds for congenital heart defect research with 100% of general donations going directly to funding this research. There are no paid employees. To donate, click here.

CHD Families Association is a not-for-profit organization working to bring comfort and support to local families affected by congenital heart defects. To donate, click here.

I Heart CHD Babies!

Jace Alan Hall, Born 12/08/2012, Tetralogy of Fallot and Pulmonary Atresia

Stella, Born 02-02-07, Coarctation of the Aorta Kaylin, VSD & ASD Bryson, Born 09-17-09, Coarctation of the Aorta, Transposition of the Great Arteries, VSD & ASD

Briston, Born 10-21-04, Truncus Arteriosis & DiGeorge Syndrome


Tyler Matthew Anderson, Born 01-11-07, TGA & COA & VSD

Logan Stone Schulz, Born 03-30-10, Tetralogy of Fallot & VSD

Charlotte Kowanetz, Born 09-29-10, Interrupted Aortic Arch, VSD and DiGeorge Syndrome


Austin James, Born 04-10-07, HLHS, Pulmonary Atresia & VSD

Oliver, Born 08-14-08, HLHS

Margaret Blakeney Farr, Born 12-04-09, Transposition of the Great Arteries

Audrina Soleil, Born 10-3-10, Truncus Arteriosus (type 1)

Macie Bridges, Born 01-20-2010, ASD & VSD & PDA

Amelia Isabel Hine, Born 09-29-06
HRHS, Tricuspid Atresia, ASD, VSD, Pulmonary stenosis, Pulmonary obstruction, Mitral regurgitation & Aortic regurgitation

Emy Mayes, Born 03-12-08, HLHS

Asher Sloan Griffin, Born 10-27-10, Tetralogy of Fallot with Pulmonary Atresia

Ashton Thomas Roessler, Born 03-09-10, Pulmonary Atresia with VSD

Kinley Tyler, Born 12-29-08, Left Ventricular Fibroma and VSD

Zoe Madison Lihn, Born 05-11-10, HLHS

Liam Sebastian Burns, Born 08-05-10, Earned angel wings 08-17-10, HRHS with Tricuspid Atresia and an absent Pulmonary Valve

Karly Boyda, Born 07-29-04, Aortic Stenosis, Bicuspid Aortic Valve, Subaortic Stenosis, Coarctation for the Aorta

Serena Lesley Cisneros, Born 08-25-09, Earned angel wings 03-15-10, Hypertrophy Cardiomyopathy
Emma Haeley G., Born 02-22-10, Tetralogy of Fallot

Gracie Renee Tice Mcnally, Born 03-30-10, ASD, VSD (alot of swiss cheese holes), Unbalanced ASVD, severe Tricuspid Valve Insufficiency & Pulmonary Stenosis

Jayden Chase Taylor, Born 01-21-10, HLHS

Luke, Born 01-25-10, Transposition of the Great Arteries, Pulmonary Stenosis, Ventricular Septal Defect, and a G6PD deficiency

Sutton Kole, Born 04-12-10, Hypoplastic Aortic Arch

Marlee Claire Hardman, Born 08-11-08, Interrupted Aortic Arch and VSD

Bailey Fay, Born 03-09-06, L-TGA, VSD, Pulmonary Atresia and MAPCAs

Deaken Scot Wright, Born 03-17-10, Earned angel wings 04-12-10, Heterotaxy, AV canal deficit, total anomalous pulmonary venous return, dextrocardia w/ left SVC, & pulmonary atresia

Claire Capri Goode, Born 08-30-08, Shone's Complex

Charlie Elizabeth Collado, Born 12/05/08, Earned angel wings 02/16/09, Truncus Arteriosus

Brooklyn Anne McGough, Born 12-09-02, Shone's Complex

Braden, Born 12-17-09,
Coarctation of Aorta, Hypoplastic Aortic Arch, ASD, Multiple pinhole VSDs, fluid on brain, cystic hygroma, probable noonans syndrome and lung damage due to aspiration

Nathan Thomas Buck, Born 11-09-07, Hypoplastic Right Heart, Pulmonary Stenosis, VSD, single ventricle

Madalyn, Born 05-06-09, Double Outlet Right Ventricle, Large VSD, common AV valve, mitral atresia and hypoplastic aortic arch

Melissa, Born 1981, Diagnosed with bicuspid aortic valve, aortic stenosis, and aortic regurgitation in 2001

Gabriella, Born 01-14-05, Restrictive Cardiomyopathy, Myocardial Bridging, PFO, Leaky Mitral Valve

Zoe Heyding, Born 12-28-10, Multiple VSDs and an ASD

Gunner Wesley, Born 08-31-09, Truncus Arteriosus with ASD/VSD

Sophia Walsh, Born 05-03-09, Tetralogy of Fallot, Double Outlet Right Ventricle & Pulmonary Stenosis

William, Born 11-22-04, Pulmonary Atresia, major VSD and MAPCAs

Madelyn Angel Louise, Born 08-06-09, HLHS & TAPVR

Jace Rylan Cecil, Born 08-14-09, Tetralogy of Fallot with Pulmonary Atresia

Michelle has four kids, 3 of which have hereditary heart defects, including her husband. Her 14yr old son has a VSD, ASD, BAV, 2nd and 3rd degree progressive heartblock and pacemaker. Her 11yr old daughter has 2nd degree progressive heartblock, but no pacer yet. Her 3yr old has BAV and 1st degree progressive heartblock, but no pacer yet.

Lillian Grace, Born 01-18-08. Small ASD, 8mm VSD, PDA

Simon Lev Fitch-Jenett, Born 04-09-08, Idiopathic Dilated Cardiomyopathy

Aharon Marcus, Born 02-13-10, DILV, Dextrocardia, PS, TGA (congenitally corrected) and Right Hypoplastic Ventricle

Ellie, Born 04-22-01, Transposition of the Great Arteries

Nevaeh, Born 09-17-06, Tetralogy of Fallot with Pulmonary Atresia, PFO, Right Aortic Arch and Pulmonary Arterial Hypertension

Ava Cook, Born 02-01-10, Transposition of the Great Arteries

Jake Waddle, Born 10-13-05, TAPVR

Olive Jai, Born 05-05-09, Tetralogy of Fallot and Pulmonary Atresia

Mary Clare, Born 06-27-07, HLHS

Riley Nicole Brock, Born 12-30-08, Transposition of the Great Arteries

Andrew Christian Sondgeroth, Born 05-08-08, HLHS

Reese Lara Griffith, Born 07-24-08, Williams Syndrome and Supravalvar PS

Cora, Born 11-30-09, Earned angel wings 12-06-09, undiagnosed CHD

Madelyn, Born 08-18-06, Infracardiac TAPVR/ASD/PDA and LV Dialation

Emily, Born 06-20-05, Mitral Valve Prolapse, Mitral/Aortic/Pulmonic Valve Regurgitation, PFO still open

Brayden O'Malley, Born 10-02-08, TGA, VSD, ASD and Pulmonary Stenosis

Kaia Belle Urban, Born 05-30-09, Earned angel wings 07-02-09, Severe HLHS

After Kaia passed, her Mom Stephanie lost her job. She is now making a living doing children's (and some adult) fabric art in honor of Kaia and CHD Awareness. http://littleliondesigns.etsy.com/

Elizabeth Anne Wilson, Born 08-27-09, Tetralogy of Fallot and Trisomy 21

Tanesha Mae Ives, Born 05-31-09, Complete AVSD

Christopher Haddix, Born 07-18-08, HLHS

Rylee Kristen Konrad, Born 02-07-07, Tetralogy of Fallot, Coarctation of the Aorta, DORV, and Pacemaker. Rylee also had lung disease that required a
tracheostomy, which was removed 09/2008

Stephen Eric Bowman, Born 10-15-09, Earned angel wings 11-27-09, Pulmonary Atresia, DORV and Large VSD

Matthew Lee, Born 12-16-02, Aortic Stenosis, Mitral Valve tissue blockage in front of Aortic Valve, Valve leakage and calcification of Aortic Valve

Rachael Faught, 27 years old, TGA and VSD

Ava, Born 05-23-06, DiGeorge Syndrome, VSD, ASD, LVOTO, Interrupted Aortic Arch and Pacemaker - Stroke Survivor

Maverick, Born 09-12-08, Earned angel wings 02-24-09, TGA (Taussig-Bing variant), VSD, ASD

Hunter Drake Lubitz, Born 01-25-08, Vascular Ring, Right Aortic Arch, with anomalous origin of the left subclavian artery and the left-sided ligamentum arteriosum completed the full ring

Alyssa Roze, Born 11-13-09, Tetralogy of Fallot

Grace, Born 07-31-06, PDA, SV ASD, Secundum ASD and PAPVR

Ronnie Harper Spencer, Born 04-26-09, Interrupted Aortic Arch (type B), Aortic Stenosis, VSD, DiGeorge Syndrome

Eve Isley, Severe Mitral Valve Defect, Regurgitation, SVT, Enlarged Heart.

Her mommy Annamarie is a HUGE voice for CHD. Her website is http://1in100.org/

Maddie, Born 03-13-08, HRHS, Pulmonary Atresia w/IVS and Ebstein's Anomaly

Kylee, Born 06-18-09, Tetralogy of Fallot, Complete Common AV Canal Defect and Down Syndrome

Anika, Born 4-17-07, Single Ventricle, Dextrocardia, ASD, Pulmonary Valve Atresia, MAPCAs

Derrick Carter, Born 4-20-09, Single Ventricle, Dextrocardia, Pulmonary Atresia, Mitral Valve Stenosis, and Transposition of the Great Arteries

Tanner, Born 12-18-00, 2 VSDs, PDA, PFO and Club Foot

Lauren, 22yrs old, Tricuspid Atresia (aka HRHS/Single Ventricle)

Lilah Rae, Born 12-08-08, Tetralogy of Fallot with Pulmonary Atresia

Elijah "Eli" Schaffer, Born 12-06-05, L-TGA, PS, VSD, ASD, HRH

Sariah, Born 10-23-03, Mitral Valve Stenosis & artificial Mitral Valve

Lily, Born 07-15-07 and earned angel wings 08-21-08, HLHS, unbalanced translocation of chromosome 10 & 12, Dandy-Walker Syndrome, Mitrochondrial Disease

Abi Clayton, Born 12-13-02, Williams Syndrome-Supravalvular Aortic Stenosis, Mitral and Tricuspid Valve Insufficiency

Mackenzie, Born 02-19-09, Dilated Cardiomyopathy, Transplant 7-7-09

Sawyer "Zeb" Lyle, Born 03-02-07, Aortic Stenosis/Bicuspid Aortic Valve

Chloe Vanderlaan, Born February 2000, Partial A/V Canal Defect

Drew Brown, Born 05-30-08, Pulmonary Stenosis (Supravalvar and Valvar)

Olivia Spencer, Born 09-20-07, HLHS and Leaky Tricuspid Valve

Alex Miller, 18 years old, Single Ventricle, TGA and Pulmonary Stenosis

Tristan Micah Johnson, Born 01-21-08, ASD ostium primum w/cleft mitral valve

Jet Thompson, Born 08-26-08, Coarctation of the Aorta

Adam Matthew Stoddard, Born 06-27-05, TGA, VSD, PFO & Pulmonary Stenosis

Landon James Hoekstra, Born 02-20-09, Coarctation of the Aorta, TGA, VSD, ASD

Abigail McKenzie Swindell, Born 04-28-08, Coarctation of the Aorta & VSD

Dylon Smith, Born 09-14-05, Circumflex Aorta & Vascular Ring

Joshua Adamson, 5 years old,

Tricuspid Atresia, Pulmonary Atresia, and Hypoplastic Right Ventricle

Trista Faith DeBruler, Born 02-27-09, Tetralogy of Fallot

Bentley, Born 08-20-08, Tetralogy of Fallot

Hamilton Jordan Hammons
Born 11-18-02, Earned angel wings 11-08-08, Dextracardia and Single Ventricle

Logan Jacks, DORV, d-TGA, VSD, PS & Right Aortic Arch

Marcus Christopher Henry, Born 06-02-04, HLHS

Lenora Ahart, Born 10-02-03, Aortic Stenosis

Jack Fitzpatrick, Born 11-23-08, COA/PFO/VSD/ASD

Faith Janene, Born 04-14-07, Multiple VSDs & non-compaction of left ventricle

Corbin James Mellick, Born 06-06-08, Earned angel wings 07-27-08,

Transposition of the Great Arteries

Henry Bridges-Simpson, Born 12-05-08, TOF, Pulmonary Atresia & DiGeorge Syndrome


Memphis Wulfekahl, Born 06-13-07, Truncus Arteriosus


Phillip Smith, Born 11-15-06, Scimitar Syndrome

My CHD baby Chloe June, Born 11/04/08, Taussig-Bing (DORV, dTGA, VSD, ASD)

Regan Getman, Born 10-14-01, TGA

Noah Paul Tyson, Born 03-06-09, HLHS

Jordan Snyder, 3 yrs old, AV transitional canal, cleft mitral valve, and currently subaortic stenosis

Jack Robertson, Born 09-08-05, Earned angel wings 12-26-09, HLHS

Ethin RaiLuc Twigg, Born 01-09-09

Earned angel wings 06-27-09

HLHS

To purchase $2 Remember Ethin Raise Awareness Spread Hope Bracelets

email Jessica Twigg at chdhlhs09@yahoo.com

Keegan L., Born 09-26-96, TGA

His mom Ruth writes "His cardiologist claims that he now has the heart of an athlete, but we know as CHD mothers that there is always the possibility of that changing. I have raised Keegan in an unlimiting manner, not making his disability hinder him from trying any sport or physical activity that interests him. He is brave and strong, and truly a little fighter; thus the reason why I named him Keegan. He is well aware of his limitations and of his condition, but refuses to let it stop him from being a great and accomplished kid. May this give hope to those that have TGA babies, there is quality life after CHD."