Monday, February 28, 2011
Our Year with Diabetes
Saturday, February 26, 2011
A day in the life.....
I really couldn't think of what I wanted to write about today. You see I'm trying to not be very emotional over the fact that Cliffy's 1 year dx date is approaching on February 28th.. The one thing I haven't done yet in writing about Cliffy and his T1 is include a little insight on what he goes through on a daily basis. In thinking about the number of fingersticks per year just to check his blood sugar that we told DD (The Diabetes Dude), it had me thinking about what he does daily, weekly, monthly, and yearly.
Friday, February 25, 2011
T1 kids in Washington need your help...
I know many, if not most, of my posts have to do with type 1 diabetes. This one is probably the most important one I have ever written. PLEASE share it as this is the fastest way I can think of to get the word out. I need your help!
The State of Washington is trying to limit the number of test strips used by diabetic children to one per day. A test strip is inserted into the blood sugar monitor each time the child needs to test his or her blood sugar. Michael tests 6 - 8 times per day - some kids test more, some kids test less. Some very young diabetics may test 15 times per day! Some children wear a CGM (continuous glucose monitor), but testing with a meter and strip is still the most common method.
Tight blood sugar control is vital to a child's health. The difficult thing with diabetes is that blood sugar that is either too high, or too low can be deadly. All type 1 families walk a tightrope of control. I would guess there isn't a type 1 mom out there that doesn't breath a sigh of relief every morning when she sees her child is OK. The daily stress can vary, but our concern for the future health of our children does not. The long term complications of the disease include blindness, amputation, kidney failure, heart disease and more. I want my son, and all children with type 1, to have a future free from these devastating effects.
I realize times are tough and that states are slashing budgets in any way they can, but this particular idea is potentially deadly! Test strips are expensive (about $1 each), but this short-sighted scheme to save money will end up costing the state much more in the long run. The state is trying to tell us that there is no correlation between frequent testing and blood sugar control...any parent of a diabetic, any child with diabetes, any endocrinologist will vehemently disagree. As a mom, I am mortified, and frankly, scared!
Please pass this along - the health of our children depends upon it. If this occurs in Washington, we will simply be the first in a line of fifty! If you are one of my "Type-1 Mom" friends that happens to have a blog, please include this in your next post. I encourage you all to at least email the state at the address I've provided below....personally, I think sending an actual letter may get more attention - perhaps include a photo of your child or a note from him or her.
Address your letters to:
Leah Hope-Curry
Program Director
Washington State Health Care Authority
Health Technology Assessment Program
676 Woodland Square, Loop SE
Lacey, WA 98503
email:
shtap@hca.wa.gov
Link to Washington State Health Care Authority
http://www.hta.hca.wa.gov/glucose.html
Please give Ms Hope-Curry a piece of your mind, so type 1 families can have peace of mind.
Friday, February 18, 2011
Sick Days
Our last sick day thankfully only lasted one day, but it was a busy day. He got sick around 8-9 times we battled keeping his blood sugar up all day, then battled bringing it down later in the evening after he felt better. But we came out the victors and I managed to keep him out of the hospital.
Now if there was a reason to, I would most definitely take him to the hospital and have them care for him. But if I know we can handle it at home, then we stay home. He is more comfy in his own bed, pjs, and watching his own movies. So far Cliffy has only gotten sick once, but his temp is up and down, but we've managed to even out the last few hours. Large ketones early which was a bit of a scare, but managed to get water and insulin in him to clear those. His nightstand in his room looks very scary with strips, hand sanitizer, alcohol, cola, pixie stix's, meters, lancets, lancing devices, napkins, you name it, it's probably on there. But in all managed to keep him home.
We shall see how the weekend goes for him as he is visiting with his dad. I just hope he starts to feel better so he may enjoy himself.
Wednesday, February 16, 2011
The downside of diabetes....
Wow I know I should be writing at least a little post everyday, but I think I have a good reason for not being able to do this all the time.. I have 5 kids!! I have twins who are teething, and I have to be a pancreas 24/7 for my son when he's home.. I think those reasons qualify. Perhaps it's just because I'm lazy and cannot find the time. A lot of the time it's because I'm at a block and have no idea what to write about.
Let's see updates..... Diabetes is kicking my hiney this week. Not so much that it's being bad, just that it's just in the way. Clifford likes chili but isn't a huge fan of it, and last night he was having a particularly crabby night. He was high at dinner time and this was a result of him overtreating himself on the bus. He carries on him a stash of emergency "treats". 2 packs of smarties, and sometimes a juice box. And all year he has not had to use any of them himself until recently. Now he carries these emergency treats in case he would feel low on the bus ride to or from school. Well he came through the door yesterday and informed me he had to use his emergency stash. Okay good he recognized his low and treated it. However there was another bag in his bookbag for the nurse, one with a very important note for her. You see his nurse recently retired and he now has a new nurse. One who has used chocolate on two occasions to treat him, and I wanted to give her a break down on how to treat him when he is low. But with this very important note was a bag of 6 packs of smarties. This was for her since she insists on using Chocolate, I wanted her to have the correct stuff. The last time she treated him she used all his glucose tabs, and glucose gel. So fast forward, Clifford says "You know that bag that was for the nurse". Me, "Yes", Cliffy: "Well I was very very very dizzy on the bus and had to use them." Me: "Okay, well how many did you eat". Cliffy, "All of them". My mouth I think instantly dropped. I then explained to him that normally I only use 1 or 2 packs at most to treat a low, that is why he had 2 emergency packs. So we tested him and he was 212, not too horrible, but I expected a high here shortly. Low and behold dinner time rolled around and he was 353. Now he is still on a sliding scale with his insulin and this means he gets the full 3.5 units, but seeing as I know he is not the biggest fan of chili, he will eat it but was more in a complaining mood last night, I decided to let him have some apple sauce. That is a big deal to him because even though I know kids with diabetes can eat pretty much whatever they want, I prefer to have him on a reduced sugar diet. Helps with unexplained highs and crashes, since we are still on MDI's and the sliding scale. Once he is on the pump and a CGM I will be a bit more flexible. So without straying too far from where I was going, this applesauce had 12 grams of sugar. To you or I that may not seem like much, but it is a lot when I try to keep him limited to foods with 6 or less grams. My point to this story is I gave him extra insulin to cover the sugar and extra carbs. He wanted to quit eating part way through his meal, he was just very crabby. And well I'm sorry he had all that insulin on board and needed to finish his meal pronto. After a battle of wits, I won, and thankfully D did not, he was 125 at bedtime, and a nice steady line of 131 and 145 through the night. That is what I refer to as one of the downsides of diabetes, when even though you try your hardest to let them feel like a normal kid, it kicks you. He can't just walk away from a meal when he's having a crabby day and not feeling like eating, he has to eat all the carbs that the insulin was used to cover, otherwise we could be dealing with a horrible low in the near future.......
Thursday, February 10, 2011
A High Morning
As any Parent of a T1 knows, it was time to test for the dreaded Ketones yet again. I test in the morning, and test again if he has a higher BG reading. We are still using the Keto strips so it was a long 15 seconds, but *sigh* I saw it change over immediately. Thankfully our Ketone reading was only "Trace". Still not good but better then Moderate or Severe. For this I had Cliffy drink some more water. I think that boy is convinced he is going to turn into Aqua man with all the water he consumes daily. Before leaving it was yet another retest and our Ketones were gone with BG down to 384. Obviously still way high but much better then our "Hi" visitor this morning.
The first time we got a "Hi " reading on our new meter (picture above) Cliffy giggled and said I'm not high, the meter is just saying "Hi" to me.... He tends to find humor in anything which is a good thing. So now it's a matter of trial and error to figure out what exactly caused him to go a bit higher this morning, or was it from overnight and does his Lantus now need increased. A call to Children's will be in order after seeing what his numbers do tonight/ tomorrow.
And to think D recently gave us a good almost 2 weeks straight of being good with numbers from 81 and nothing higher then 178 except overnight one night to which he evened out in the morning at 134.... *SIGH* We had a good run!
Tuesday, February 8, 2011
A shameless Plug
I'm going to shamelessly plug our new business (website) .. Why???? For a few reasons... 1. ) Because we are very excited and wanted to share that excitement with others.. 2.) Because we are offering an awesome raffle (contest ) right now for new customers, and most importantly 3.) Because the products are spectacular. This past weekend OUR first shipment came with the items we ordered. We decided to try out the Legacy of Clean Product Intro Bundle. The first thing I tried were the All Purpose wipes. I was previously a big user of Lysol wipes. They are great especially if you have kids or pets to clean up messes. But the ones we have are great. They smell amazing, that is the one big winner for me a nice citrus scent. Not to mention the price is just crazy, but in a good way.
For $65.00 you get the following:
Get to know the real meaning of clean! We’ve taken our top Legacy of Clean environmentally-sensitive laundry and household cleaning products and created this introductory bundle. And, as a bonus, we’re including a FREE Stain Chart. You’ll save more than $4.00 off the price of purchasing these items separately.
Intro Bundle includes:
- 33.8 fl. oz. SA8® Triple Liquid Detergent-Floral
- 33.8 fl. oz. Fabric Softener-Floral
- 32 fl. oz. Pre Wash
- 2.2 lbs. TRI-ZYME® Detergent Booster
- 32 fl. oz. All-Purpose Cleaner
- 32 fl. oz. Glass Cleaner
- 32 fl. oz. Bathroom Cleaner
- 16.9 fl. oz. Dish Drops® Dish Liquid-Citrus
- 3.08 lbs. Dishwasher Detergent
- 48-count box of All-Purpose Surface Wipes and a FREE Stain Chart.
Now taking into account our awesome raffle (contest) this would already qualify you for an entry.
Here is the raffle we are currently offering:
For our Grand Opening we have two products up for a raffle. For orders over $50 placed through our site you will be entered in a drawing to receive :
ARTISTRY® essentials Replenishing Eye Creme
0.5 fl. oz.
Value of $27.00
More info on the Replenishing Eye Creme:
Younger-looking eyes in just one day. In just 24 hours, experience a reduction in the appearance of fine lines and puffiness with this light, silky crème formula.
For any order over $100 not only do you get free shipping but you will get :
ARTISTRY® essentials Replenishing Eye Creme
0.5 fl oz
Value of $27.00
Younger-looking eyes in just one day. In just 24 hours, experience a reduction in the appearance of fine lines and puffiness with this light, silky crème formula.
AND
ARTISTRY® TIME DEFIANCE® Skin Refinishing Lotion
1 fl. oz.
Value of $48.50
More info on the Skin Refinishing Lotion.
Softens skin and improves skin texture by 52% in 12 weeks
For all skin types, including sensitive skin, feel softer smoother skin instantly with ARTISTRY TIME DEFIANCE Skin Refinishing Lotion. And improve your skin texture by 52% in 12 weeks.
When shopping online through our personal website you will get Free shipping on orders over $99 delivered within a few days right to your home!
Take a look at our site here:
http://www.amway.com/chada
It's very important to go through this link so your order can be tracked and you can then get the free shipping for orders $99 and over.
Once you have placed an order shoot me a quick message, and I will go ahead, track your order and add your name to the raffle drawing. Winner or Winners will be notified via email!
I am really excited. These products are awesome and our house has never been cleaner, we also have a bunch of clean laundry. It is just the folding part I do not like!!!
Friday, February 4, 2011
The Steelers are everywhere.....
At dinner all I heard was "Here we go.... Here we go.... Pittsburgh's going to the SuperBowl"... Over and over and over....Clifford just had to sing it for everyone! Clifford is really excited about the Steelers going to the Superbowl. He had to decorate his snowman as a Steelers player. However he refused to have him named "Ben Frosterberger, ( the snowman reference).
He insisted it was still Ben Roethlisberger. They were having Black and Gold day at school and he is super excited! Here's to hoping he has a better day then yesterday. The nurse called shortly after lunch saying Clifford tested and he was 39! A short while later after treating he went up to 327, only to drop back down when he came in the door from school to 64! The rest of the day though managed to level itself out with nothing higher then 160 and nothing lower then 85! That was however until morning when he woke up at 213!
So here's hoping he has a good day at school and D stays in check and he can enjoy showing off his Steelers snowman to all his friends.
The girls had to get in on the black and gold action.
And yes MOM even I participated :O. I actually own a Steelers sweatshirt, why? Because my mom gave this to me a few years back and well I really like hoodies, they are so comfy!
(wow no makeup- barely any caffeine, and was up most of the night, plus didn't sleep that great!!) all that equals SCARY! Happy Friday!
Thursday, February 3, 2011
Despite Diabetes.....
The most awesome thing we've done despite diabetes............ Speaking from Clifford's point of view here, there are many things despite diabetes he has done. But the most awesome would be take on a new sport, basketball!!! For the most part D hasn't affected Clifford playing basketball, except one time he kept dropping low. Despite D Clifford has put his all into learning a new sport and having fun with his friends. D didn't stop him doing what he wanted to do. And despite diabetes this Spring he wants to take on another new sport, Soccer!!
From my point of view as his mom. The most awesome thing I've done despite diabetes, is to keep him a happy, healthy, friendly child. It's been a challenge, his behavior has been a challenge, but in all we are doing good. Despite diabetes he's been a good big brother to all his siblings. (for the most part ;) ). And despite diabetes we are still living our life the way we want with a few new things.
So despite diabetes you can live a normal, healthy life. It just takes a lot of work, blood (literally), sweat and tears. But in all it's worth it to keeping yourself, and your loved ones happy and healthy.
This post is my February entry in the DSMA blog carnival. If you'd like to participate too, you can get all the information at: http://diabetessocmed.com/2011/introducing-the-dsma-blog-carnival/
Valentines Contest!
I figured since February is our D Anniversary month I would offer up a D related product for a giveaway. Up for this contest is the Contour USB Meter The Contour USB meter is one of the newer meters on the market.
Here is a bit more information on the product:
Q: What can I expect when I run GLUCOFACTS® DELUXE from my CONTOUR®USB meter for the first time?
A: CONTOUR® USB utilizes the autoplay feature in Windows to automatically start the GLUCOFACTS® DELUXE software. Click here if your GLUCOFACTS® DELUXE software does not automatically launch.
A: Your CONTOUR® USB meter contains two flash drives, “GLUCOFACTS” and “CONTOUR USB”. The “GLUCOFACTS” drive is reserved for use by GLUCOFACTS® DELUXE. Important: Do not alter or delete the files on the “GLUCOFACTS”drive.
A: GLUCOFACTS® DELUXE works with Java™ software, and will verify your version of Java. If needed, you will be directed to update your Java version. The latest version of Java can be downloaded at http://www.java.com or installed from the JAVA folder on the GLUCOFACTS drive. After updating Java, unplug your meter and reinsert it to re-start GLUCOFACTS® DELUXE .
Q: How can I get Bayer’s GLUCOFACTS® DELUXE diabetes management software to auto-play from my CONTOUR™ USB meter?
A: For XP™ users auto-play for this type of software is on by default. If it has been turned off you will need to modify your Group Policy or Registry Settings to enable auto-play. Please obtain IT support to enable auto-play. Changing Group Policy or Registry Settings should not be performed by someone without experience.
A: Vista™ users open the Start menu, choose Control Panel, select AutoPlay. Make sure the “Use AutoPlay for all media and devices” checkbox is selected and verify that the setting for software and games is “Install or run program”.
A: For Mac™ users GLUCOFACTS® DELUXE software must be launched from the computer desktop screen.
A: Windows® 7 users need to navigate to the GLUCOFACTS drive on the CONTOUR® USB meter and double click the “Glucofacts.bat” file to launch the GLUCOFACTS® DELUXE software. In order to provide you with better security and protection, Windows® 7 has changed how it auto starts applications on removable media, like your CONTOUR® USB meter.Q: Why is it taking so long to launch Bayer’s GLUCOFACTS® DELUXE diabetes management software?
A: The first time Bayer’s CONTOUR® USB meter is inserted into a USB port several programs are loaded in order to use the USB storage. The loading speed varies by computer and could take up to a few minutes. Subsequent insertions should take less time to process.
Q: Can I run the software without using autoplay?
A: CONTOUR® USB utilizes the Auto Play feature in Windows to automatically start the GLUCOFACTS® DELUXE software. If auto play does not automatically start the software the following steps can be followed to manually start the program:
• Navigate to the GLUCOFACTS drive on the CONTOUR® USB meter.
• For Mac Users, locate and double click the “Glucofacts” application to launch the GLUCOFACTS® DELUXE software.
• For Windows Users, locate and double click the “Glucofacts.bat” file to launch the GLUCOFACTS® DELUXE software.
Rules of the Contest:
Leave me a comment before midnight on Thursday, February 10th. Please include your first name. Comments left without a name will be eliminated.
● To earn extra entries (post a separate comment for each):
● Tweet about this giveaway on Twitter. Then, leave me an additional comment.
● Share a link to this contest on Facebook. Then, leave me an additional
comment to let me know.
● Blog about this contest. Then, leave me an additional comment containing
a link to your blog.
● No duplicate comments are allowed. Duplicate comments will be eliminated.
● Winners will be selected via random draw at http://www.random.org/.
● Winners' names will be posted here on this blog on Friday,February 11th.
● After winners' names are posted, winners will have 48 hours to send a message to me at bridgetw2001@gmail.com. If I do not hear from a winner within 48 hours, I will select a new winner.
Good LUCK!
Tuesday, February 1, 2011
Along Comes February...
February is supposed to be the month of "love". To me every month is a month of love. But this February brings with it a new feeling that I'm not really enjoying. Last year on February 28th, Cliffy was diagnosed with the monster I refer to as "D", Type 1 diabetes. That was the day our lives changed forever. Up until now I have been able to think "this time last year he was D free". But now that our D anniversary date is slowly sneaking up on us, everything becomes more real.
Gone are the care free days of his childhood, when a snack meant a cookie, or a juice box. Now cookies and juice boxes are our "Life savers" to bring up lows from hypoglycemia. We've seen the inside of an ambulance too many times to count this year alone from hypos. And unfortunately we've even rode on a life flight to Children's from a hypo episode where he passed out.
February is bitter sweet for me. As our date gets closer and closer the tears want to start flowing more and more. But in reality crying about what happened and what is our reality now isn't going to solve anything. I instead am trying to think of the positives that this February holds for us. Abby and Clifford are excited about sending out Valentines to their D friends and D siblings. Clifford is over joyed at the thought of handing out Valentines in school for the first time ever this year. The twins turn 4 months old tomorrow, and already are growing bigger daily. Speaking of the twins.... Sometime in the beginning of February of last year is when the twins came to be ( wink wink) so that is another positive to think about as we get through this month in one piece.
As with everything else, I take it one day at a time, but no matter how hard I try time still flies by faster then I would like it to. So here's to February, I will make it through you without too many tears!