Tuesday, May 19, 2009

Auntie Intermission

Alexander in the paddling poolI am sleeping a lot at the moment and working on my book when I'm awake - which isn't for very much of the day at all. So here's a brief update on Alexander, who I saw the weekend before last. As you can see, the child gets no less beautiful.

His vocabulary is very slowly building up and he can say all the numbers, though thankfully never in the right order (he's not yet three! - I keep having to say this, especially to his grandmother, who takes everything he says to heart - if she starts this now, she will be completely broken-hearted before he's ten).

He demanded to know what a Dalek was (Mum has Dalek coasters - she likes Daleks) and I explained about The Doctor and Davros and everything. "What are the buttons for?" he asked. I didn't know. What are all those lumpy bits for? I suggested sound-proofing, as the Daleks have very noisy digestive systems. He seemed happy with that and made a comment about "Windypops." which I thought was rather crude.

I also learnt that Alexander's favourite animal is a lion because it says "Roar!".

Incidentally, the instructions for the inflatable paddling pool my parents got for him included the warning "Do not place on top of sharp objects." Hmm.

Thursday, May 14, 2009

On Elected Crooks and Other Options

Liberal democracy is still at an early experimental stage. We have to remember this. It's less than a hundred years since we got anywhere close to universal suffrage and less than ten since we've had the Human Rights Act in British law. Much of the world isn't there yet and we may be wrong to assume that it's a matter of yet at all. Just because it's a really good idea - one of our best - doesn't mean that it'll catch on any more than it has, doesn't mean that we won't throw it away.

There are lots of other ways of running things – we've done this in lots of other ways in the past. Or at least, we've had it done to us. That's the thing. Liberal democracy provides us all with a chance to live the kind of lives we'd like and to have our voices heard. All other systems give all the power to just a few people, for fairly arbitrary reasons and usually for very short precarious periods. Liberal democracy is the best system for everyone. Even if, right now, you feel that things should be done very differently, you have a chance to change your country. You are free to make your argument, and if it's any good, others may be persuaded.

This is also the inevitable weakness in the system. You have to allow very mistaken people the same opportunities as the rest of us. You can't ban political parties or stop anyone from speaking out. You can only force people to act within the law and to keep those laws as liberal as possible. It is reasonable to stop some people doing certain jobs which involve upholding the law – members of the BNP aren't allowed to be police officers because under our system, police officers have to sign up to the idea that every one of us has an equal right to peace and justice. I don't suppose you could be a history teacher either, and the CofE has banned BNP membership among the Clergy on account of the fact that Jesus was a decent kind of chap (despite this compelling poster). But they can still speak and run for government office. And that's a good thing.

We're in a bit of a state just now. Not much of a state, but a bit of one. We're in a recession. We have an unelected Prime Minister who well, Charlie Brooker put it rather prettily. And we've had thirteen years of possibly the most cynical government in British history. Not necessarily the worst, but the most cynical. They act like they don't really care what we think - or maybe they do care, they just assume that we're all utterly gullible. We feel we are not listened to. And when we feel we are not listened to at, we begin to suspect that no-one in politics will listen to us.

The scandal over MPs expenses is nothing next to taking us into an illegal war, colluding with torturers and attacking our civil liberties. One or two heads will rightly roll (we'll have paid for the hats on them) but lots of people exploit expenses claims. The real galling thing here is that once again, it seems to have taken an age for anyone to admit that they had done something wrong. Oh and the fact that both the main parties have been so obsessed with us useless eaters and cracking down on benefit fraud (hat-tip to BendyGirl).

But perhaps the most dangerous thing is that they're all in on it. The main political parties haven't been attacking each other on the issue because none of them have clean linen. And so it seems that all politicians are bastards. There have been jokes (at least I hope they're jokes) about how the Queen should dissolve parliament and appoint someone of her own choosing.

It doesn't have to be like this. In other countries in Europe, politians are seen more like public servants. The population of any healthy democracy will engage in both criticism and piss-taking of its elected representatives, power and corruption are never far apart, but other populations are less demoralised than we are just now. Of course some have things much worse than we do - like Italy, who still have this man running both the government and half the media.

Anyway, we have a European Election coming up on the 4th June. At the last European Elections in 2004, there was a less than 40% turnout and 5% of the votes were for the BNP. That's one in twenty of the people who voted, but only one in fifty of the electorate and presumably several people who crossed that particular box had simply missed the one they wanted to cross (let's give them the benefit of the doubt). Okay, so it's Europe, we don't see a lot of what MEPs do, but it's still about power. And maybe, given these scandals, the increase in poverty and hardship over the last five years and the growing sense that some radical change must take place, they'll get even more votes this time. These people could wind up having a tiny bit of power over our lives. And their voices get louder. And like I say, we can't ban them, we can't shut them up. All we can do is keeping winning the argument and vote.

I think it would be good to vote for just about anyone else this coming 4th June. Personally, I think you ought to vote for the Liberal Democrats, but if you strongly disagree with them, there's probably someone else you can vote for in good conscience. If you want out of Europe, there's always UKIP who are at least a liberal bunch. And then hopefully we get to do the same in a General Election sometime in the next year - goodness knows we're overdue one.

We can all vote for flawed people who nevertheless subscribe to the principles of freedom, equality and democracy. At least when they mess up, we can still hold them to account. And then we can continue with the experiment.

Friday, May 01, 2009

Blogging Against Disablism Day 2009

Blogging Against Disablism Day, May 1st 2009Welcome to Blogging Against Disablism Day 2009!

Thanks very much to everyone who helped to spread the word and to everyone posting about disability discrimination today. About 200 people have contributed some excellent work, making this by far the biggest BADD ever.

I've been collecting reviews of BADD from JackP, Incurable Hippie, Lilwatchgirl, NeverThatEasy, The Mornig Star, Mary, What Sorts of People, Lisy Babe, Wheelie Catholic, Seahorse and Peter Fremlin have written posts about or featuring their favourites BADD posts.

Blogging Against Disablism 2009

Employment
(Disability discrimination in the workplace, recruitment issues and unemployment).

Dechant: Equal work, sure...
JadeLennox: Workplace Gadflies
The Perorations of Lady Bracknell: The Unbearable Slowness of Being
Undercover Punk: Social Security benefits & women, working whilst disabled, and stigmatizing mental health terminology
Yet Another Never Updated Blog: Hooray for the evil side
Your subtext is showing: (awkward silence)



Education
(Attitudes and practical issues effecting disabled people and the discussion of disability in education, from preschool to university and workplace training.)

Anthro, Etc: (Dis)ablism in Archaelogy/ Anthropology
Avendya: On decisions
The Black Telephone: Siobhan, the Soundbeam and Disablism
Brimstone & Treacle: BADD Wolf
Dirty Socks and Pizza: Navigating the Gray Area
Gin & Comment: "Mainstream" schooling and disablism.
Maternal Instincts: Action speaks louder than words (HB 119 update)
Now, what was I doing?: A secret thing
Same Difference: One Look At the Chair
Tunnelling: Flexibility
Textual Fur: Blogging Against Disablism
Theorize me: Invisible Disabilities and University
Thinking UDL: Ableism: My thoughts 1 year later
Twilight Garden: One Size Does Not Fit All


Other Access Issues
(Posts about any kind of access issue in the built environment, shops, services and various organisations. By "access issues" I mean anything which enables or disenables a person from doing what everyone else is able to do.)

Brilliant Mind, Broken Body: Trapped!
A Crippled Carnival: An Open Letter To People On The Bus
The Dog''s Blog: Lose the Mouse for BADD 2009
Even Grounds: Sound is Not Always Helpful for People Who Are Blind
goldjjadeocean: Why I will not be participating in Blogging Against Disablism Day this year
The Iron Chicken: A Convenient Myth
Hoyden About Town: Can I have a seat?
Naughty or nice..?: Ticketing Policies - B.A.D.D.
Riparians at the Gate: When Even the Buildings are In Denial
Rolling Round Life: The Perils of Looking for Housing
Wallaby: Accessibility, choice, accomodation and equality


Definition and Analysis of Disablism/ Ableism

32 Days Remaining: Web Development and Aversive Disablism
The Acrimonious One: The harm disablism does
Curvature: On Depression
Disability Prejudice and Civil Rights Watch: Psychophobia 201
Education on the Plate: Word of the Day: Disablism
Fat Fu: Fat, Major Depression, Asperger's: Where the Social Model meets the Medical Model
Her Own Self: Blogging Against Disablism Day TODAY!
Notes From Greencastle: Us vs. Us
A Pretty Simple Blog: Defining "disablism"
Urbania To Stoneheads: BADD: expectations and stereotypes
Wheelchair Pride: Disablism: What can YOU do about it?


The Language of Disablism
(Posts about the language which surrounds disability and the way that it may empower or disempower us.)

Benefit Scrounging Scum: Words Hurt
Biodiverse Resistance: Disability Terminology: too much confusion, so much frustration
The Hand Mirror: Lose the language. Now (cross-posted at In a Strange Land)
Life at Full Tilt: Reflections on Language
Life Decanted: Abled vs. Disabled
Lounalune: The d-label
Wheelchair Dancer: Piss on Pity



Disablism Interacting with Other 'Isms'

(Posts about the way in which various discriminations interact; the way that the prejudice experienced as a disabled person may be compounded by race, gender, age, sexuality etc..)


Feministe: Disability and Class
Memoirs of a Genderqueer Femme Anarchist: BADD and May Day
Queers United: Blogging Against Disablism Day
Sexual Assault Centre of Edmonton: Which Women Matter? Ableism and Sexual Violence
Shakesville: Domestic Work is Real Work
Stop Street Harassment: Blogging Against Disablism: Street Harassment Edition
whirlwitch: Step it up, wimp!



Disablism in Literature, Culture and the Media

Butterfly Dreams: Special People, Normal World
Ashy's Blog: "Anyone can do it"

Growing up with a disability: We all do it.
Floating in Space: No, I'm Spasticus
Radio Clare: Blogging Against Disablism Day
Sweet Perdition: Monkey Shines: An Experiment in Fear (of disability)
Trouble is Everywhere: BADD: Bloody Torchwood


History

Disability Studies, Temple U: BADD: A Week-by-Week Calender of Disability History Birthdays




Relationships, Love and Sex

Autistic Self Advocacy Network, SW Ohio: Not Children: Tony Atwood Still Doesn't Get It
Bleeting in the Fields: Blue and Red have a chat about disablism
Dreaming of Butterflies: Blogging Against Disablism
Elf: Resist biologically: be erotic! - Tim Leary

Never That Easy: BADD Girl
Poverty in America: Poverty and Disablism
Pure Glucose: Place. My blog for Blog Against Disablism Dad
Sexual Ambiguities: Blogging Against Disablism Day
Spectrum Siblings: Connecting through disability
Walking Wounded: Not here for your entertainment
The World According to J. J. in L. A.: BADD: She can do that?



Non-English Language Blogs


Other


Hierman eri mielt
ä: Making Discrimination Easy
Trouble is Everywhere: BADD: How the Non-Disabled Person can Participate (from one non-disabled person to another) (cross-posted at Trouble is a State of Mind)



General Thoughts on Disablism

Angelikitten: Common Sense and Courtesy
Autism - Change.org: Just Because I'm Quiet Doesn't Mean I'm Quiet Doesn't Mean I Don't Understand
The Beauty Offensive: I Like a Good Fight
Blue Girl: Funny Thing Happened After I Read More About Frances Farmer
Deaf Girl Speaking: BADD: randomness
Driftwood: My Gorilla is Quite Tame
Equal Not Special: Blogging Against Disablism Day
Fizzyblogic: A mass of dots.
FridaWrites: On Wheelchairs and Safety
F**k You Megan Fox!: Blog Against Disablism Day
The Gonzolog: Blogging Against the Supremacist Attitudes of the Mediocritariat
Hatman: Blogging Against Disablism Day
Inner Dreams: Not Your World
Here's the Kicker: Blogging against disablism
How to be an Inspiration: It Should Have Been Me
The Life and Times of Emma: Where You Least Expect It
A Load of Old Squit: When helping yourself doesn't help
LDN journal: The pill that retains my humanity
Midden: BADD - 1st May
Midlife & Treachery: Don't Assume
Morrígan Reborn: Blogging Against Disablism Day
The Muffin Blog: The Narrative
MyOwnWench: BADD - badass, bad news, bad day
My Spelling Sucks: Reading Dyslexia Laughing and CP
Nick's Crusade: Ablism: Idiotic Comments From Idiots
Normal is Overrated: Assumptions, Assumptions
Optistatic: A Kind of Verbal Meander
Paul Canning: Life in a Wheelchair
The Pickards: Lip-Service Equality
Pizza Viola: BADD
Radio Clare: Blogging Against Disablism Day
Sanabitur Anima Mea: Mild and Severe Disability
The Secret Life of a Girl on Wheels: Lucky
Smarking_off: Blogging Against Disablism Day
SpeEdChange: Suicidal Ideation
Sunny Dreamer: Visiting Italy
This is you reading about me...or not: BADD Thoughts
Through My Eyes: Happy BADD = Let's all be positive about disability
Touched By An Alien: Stereotypes of Success
Until the dolphin flies and the parrots live at sea: Disablism sure isn't disabled at all
Wheelie Catholic: Moments of ableism
The View From Room 7609: Is it an annoyance? I don't think so.



Parenting Issues
(whether disabled parents or the parents of a disabled child.)

Baxter Sez: Pride and Joy
Beneath the Wings: The Shopping Trip - part 2
Blank Shield Press: My son looks normal
Cheaper Than Therapy: Sometimes You Just Gotta Say
Disabilities the Invisible Discrimination: Blogging Against Disablism Day
Homepaddock: Losing fear and ignorance of disability
Let Kids Play!!: What makes disability?
Memo To Self: Blogging Against Disablism - A Photo Essay
This is My Blog: Well-meaning Insults
To The Max: My child has a right to play - dont shut him out because he's disabled
Whitterer On Autism: Blogging Against Disablism Day


Healthcare Issues
(For example, the provision of healthcare, institutionalistaion of disbaled people, reproductive ethics and euthanasia)

Astrid's Journal: BADD Behaviour: Disablism in Psychiatry
A Comic Life Indeed: Tales From The Clinic: Out With The Old, In With The Eu-Genics
Finding My Way: Journey of an Uppity Intellectual Activist Crip: Ableism Where I'd Least Expect It.
Incurable Hippy's Musings and Rants: Access to Healthcare
Mysteries and Questions surrounding the
Ashey X case: The damage the Ashley case has done and the damage it can stil do

Nick's Crusade: Government-Sponsored Ablism and Segregation Tears Families Apart
The Strangest Alchemy: Blogging Against Disablism Day 2009
What Sorts of People: There's a word for that kind of thing


Impairment-Specific Prejudice
(Posts about those experiences specific to people with a particular condition or type of condition.

Diary of a Nobody: Anti-Depressants

Glitter, Vinyl and Thread: Things all able-bodied people should read - or even non-abled-bodied who don't have fibro or chronic fatigue
HAM. BLOG: Invisible Illness Bingo 2
It's Never That Simple: Autism, Assumptions and Ability
Random Babble: I wasn't going to do this...
Morphine Breath: Blogging Against Disablism Day
One Sick Mother: Invisible Disabilities: Depression
The Pursuit of Harpyness: Pain-Free is Privilege
Screw Bronze: Disablism within Disability
Scr
íbhneoir páirt-aimseartha: On Being an M.E./ Aspie alien
Shauna's Life of Pain and Other Fun Things: A Chance to Educate Others About Pain
Slywolf: Mine Are Invisible
Womanist Musings: Fibromyalgia: The Invisible Pain
The Voice Within: Blogging agaisnt disablism day


Personal Journeys
Posts about learning experiences and realisations authors have had about the nature of disability discrimination and the impact on their lives.

Access for All - Angela M. Hooker: The Best Laid Plans and Blogging Against Disablism Day 2009
Bad Cripple: Ableism and a Water Shed Experience
The Bitch Who Roared: This post is dedicated to Lyn, who taught me so much
A box full of butterflies: Coming to terms with being out of spoons
Butterfly Cauldron: The sharks are here every day
Cathie From Canada: BADD Day
Desertrosedark: What disablism means to me
Diabola in musica: Not a Stereotype
Diary of a Goldfish: A Living Learning Experience
Diary of a Nobody: Invisible Disabilities
Diary of a Wordsmith: BADD08-09 - a snapshot of changes
Don't Type Angry: Blogging Against Disablism Day
Gordon's D-Zone: A Life Apart
Haddayr's Blog: Blog Against Disablism Day
I'm Just Not Impressed: The Invisible Human
Jem's Lair: I started feeling safe
Jenelle's Journey: Blogging Against Disablism Day 2009
Laughing Wild: But I'm NOT disabled!
Life, Liberty and Good Coffee: Uncle Ronnie and "the Leg"
Linguanaut: A blinkered life
The Man Outside: Two legs bad, fewer legs better
The Multiple Sclerosis Foudations: Blogging Against Disablism Day 2009
Notes, Nothings, and Common Refrains: "Oh look! It's Peter Pan!" ("That's right! I can't walk. But I can fly!")
Primary Decomposition: Blogging against disablism
Recessional: Carries the act so convincingly the fact is sometimes she believes it
Remember the Tinman: On being a good nutter for BADD
Shakesville: BADD: Out of my closet
Simul lustus Et Peccator: Blogging Against (Dis)ablism Day 2009
Sophia's Call: Mary Magdalene, My Sister

Standing Tall Through Everything: Blogging Against Disablism
A Stellarlife: Bloggers Unite Against Disablism May 1
Timmblr: Letters I've written, never meaning to send.
Unwritten Memoirs: I'm an idiopath, so what?
Zero at the bone: Talking about it



Disablism and Politics

(For example, the political currency of disability, anti-discrimination legislation, etc.)

Autism - Change.org: Direct Action: ADAPT at the White House, Tony Atwood update
Bruce Lawson's personal site: Accessibility and what India can teach us
Cynical Chatter from The Underworld: Fear and Loathing in the UK
Humanitarian Relief -Change.org: "It Is Persons With Disabilities That Are First To Die"
Whose Planet is it Anyway?: Community Choice Act Needs High Priority

Art Against Disablism

Philippa's Photography, Incurable Hippie: Creative Protest
RachelCreative: When Disability is Invisible


A Living Learning Experience

(My blog against disablism, complete with utterly irrelevant pictures of flowers to break up the text).

Many people believe that there is something to be learnt from disabled people. Some people believe that this is why people like me are here – why God allowed me to exist - so that I might teach other people something. About life. About human resilience. About human frailty. And you can see them, sometimes, searching for that lesson; they ask probing questions, they try to make connections. Other people can find the most tedious aspects of your life of tremendous interest.

And then you find that, all of sudden, a lesson has been learnt. People who know you describe situations or conversation where, because they know you they were able to act or speak up in a way that they wouldn't have done without your acquaintance. Sometimes, you are deeply proud of them. Other times, you hear these stories and wonder what on Earth you did wrong.

But then personally, I didn't always teach the right lessons.

These innocent primula are without prejudiceThe first lesson I taught was about my condition. People want to know, it was new to me and I wanted to explain. I wanted people to know that my needs were legitimate; I hadn't chosen a life of incapacity and dependence - it was all to do with molecules and mitochondria.

Big mistake. Biology has nothing to do with the problems we experience with other people; this was just like a person of colour explaining their genetic lineage, their particular ethnic mix to a white person who wants to know why they are that precise shade of brown. Or a gay person outlining their sexual history to a curious straight, as if sheer detail leads to acceptance.

It is not that those stories should never be told, but there is no responsibility on our part to tell them. People ask what's wrong with us because they don't know any better, just as not so long ago, British black and Asian people would be asked where they came from. The sort of person who asks such a question isn't going to learn very much from a direct answer.

We do not need to justify our difference. Anyone who has an ounce of respect for us, even as strangers, will assume that nobody chooses disadvantage of any variety.


Consider the liliesThe second lesson I taught was about suffering. Well, I did feel rather sorry for myself. I wanted people to see how well I was taking it, the million things I could no longer do (perhaps only a hundred of which I ever aspired to). At the same time, I thought that resisting assistance, medication or the dreaded wheelchair proved me to be a strong and resilient person.

Big mistake. An acquired impairment almost always encompasses loss, but nobody else is going to understand what you go through. Some won't see the big deal, others will wonder how you can go on living. And disabled people don't have any monopoly on tragedy and loss, not nearly – far worse things can happen to a person than being born or becoming disabled.

We do not need to justify our difference. We don't have to mind any more or less than we actually do. There's no weakness in having an impairment and not being locked in a constant quest for a cure. We have no duty to suffer and no duty to want to change. Sometimes we're better off getting on with our lives.


A rose by any other nameThe third lesson I taught was that I was perfectly normal. I was the same as everyone else, I had the same needs and desires, the same ambitions. I attempted to forego every ounce of eccentricity to make it clear that there was only one difference. I wasn't even going to describe myself as "disabled" because to do so was to mark myself out from the crowd.

Big mistake. I wasn't normal. Never before in my life had I aspired to being normal and this was the worst possible moment to start. It was if I imagined that people would be suspicious. As if, should I reveal myself to be eccentric in any other respect, they might see it all as part of the same package. That my illness was an extension of my weirdo personality.

We do not need to justify our difference. Human beings deviate from one another. There isn't a limit on how many differences a person is allowed to have. I dearly hope that my illness is one of the least interesting things about who I am.


I don't know what this flower is calledThe fourth lesson I taught was that the stereotype was wrong. I wished to defy others expectations of disabled people, to show that I was bright and had an interesting life. I wasn't going to be like what you thought disabled people were like. I was going to be so much better than that.

Big mistake. There is more than one stereotype of the disabled person, and resistance to one can merely play to another. For my part, I couldn't be much less equipped for defying expectations; I really am very inactive and my brain doesn't work.

Of course, my problem wasn't that anyone assumed my brain not to work, it was that people weren't prepared to treat people like that with respect. People with intellectual impairments or mental illness, people who weren't economically-productive members of society. People who weren't sassy or brave or an inspiration to others. I regarded such people as deserving of my respect, so why should I be afraid to be recognised as one of them?

We do not need to justify our difference. We are all worthwhile human beings. We don't owe anyone a good story in order to be treated with respect.


Read my tulips - they speak the truth!I guess I may have done a lot of damage, but it takes time to learn yourself. And what did I learn?

Well, I know a few things now, but I am not duty-bound to teach. I am not obliged to spend my life answering inappropriate questions or confronting ignorance whenever it arises.

People learn through exposure. We all contribute to this just by living our lives. If a person sees disabled people around them, and if people with invisible impairments are open about their status, then people will see that impairment as part of the human condition and disabled people as equals. Some of us have the capacity to do something about our under-representation in the corridors of power, in the media and in the arts. All this makes a big difference.

People learn through conversation. Conversation is not to be under-estimated as a tool for social change. The model of disability we, the experts, present to our kith and kin effects the conversations that they in turn have with other people and the conversations that those others then have. We have no hope - let alone the responsibility - of explaining all the academic arguments and instilling the best use of language to those who have no interest. But we can influence the stories which are told about us and our experiences.

People learn through our allies. Some of us don't have any kind of voice. Where we are considered something less than human, our testimony is considered unreliable. Non-disabled people need to speak up.

People learn by experience. Every time any challenge is made to behaviour, a failure to comply with the law, a prejudiced news story or systems that hold us back, people pay attention. Some people are slow-learners, but there's no getting round that. Some people are slow-learners about gender, race and sexuality, but our persistence is undoubtedly paying off in these areas. Disability is taking just a little bit longer.

Sunday, April 19, 2009

On Being Moved Without Moving

Everyone has to have seen or heard this Youtube clip of Susan Boyle singing on Britain's Got Talent and even I am blogging about it.

But something bugs me in the thousands of articles that have been written about this event. People are going to great lengths to tell of how very moved they were. Not because she sang an rather lovely song extremely well. But because she surprised everybody who imagined that the physical appearance of a person related to what talents they might have. But Dennis Palumbo speaks my thoughts when he asks What if Susan Boyle Couldn't Sing?
“The unspoken message of this whole episode is that, since Susan Boyle has a wonderful talent, we were wrong to judge her based on her looks and demeanor. Meaning what? That if she couldn't sing so well, we were correct to judge her on that basis? That demeaning someone whose looks don't match our impossible, media-reinforced standards of beauty is perfectly okay, unless some mitigating circumstance makes us re-think our opinion?”
Lisybabe calls this disablism, which I am not entirely convinced about – although you ought to read her post on it anyway. However, it is fair to say that the same thing happens to other disabled people all the time. We aren't admired for the talents we happen to have or the things we happen to do, and we aren't respected just for ourselves. We are admired and respected because we defy expectations. Expectations being so low, most of us defy them at least some of the time. When we fail to do so for some reason, we are no longer afforded the basic respect to which everyone is entitled.

There is this awful phenomenon where people talk about how they have been moved by some event, to demonstrate what a sensitive person they are, as if the sheer strength of an emotional response makes them good. This is especially the case when a member of a minority group has achieved something. A lot of what was said in the UK about Barack Obama before he took office was along these lines - especially given our usually poisonous levels of cynicism about politicians. People seemed to forgot that the reason the election of a black president was not about the novelty of a black man being highly intelligent and charismatic, but about the US electorate doing the right thing for a change (apologies to my American readers; I know you have been doing the right thing all along, but your countrymen have not).

Last summer I heard a certain famous person say on the telly, in all seriousness, “I love the Paralympics, I genuinely do and I cry buckets every time one of them gets a medal.” This is a ridiculous thing to confess to. It is kind of groovy when someone who is into sport declares an interest in the Paralympics, because it is taken much less seriously than other events - it suggests that they consider disabled athletes as legitimate as non-disabled athletes. But then crying when inevitably, some of them get medals? No athlete, disabled or not, trains as they do in order to compete for our tears.

I cry rather easily - I would have cried if it had been a clip Lily Allen singing I dreamed a dream (though for perhaps slightly different reasons) and I would have cried during Obama's inaugural address if he had recited On The Ning Nang Nong (which, let's face it, would still have raised the bar for US presidential eloquence). But this doesn't reflect very much on me or my values.

And this is my worry. Everyone is saying that the Susan Boyle story just goes to prove all that stuff about books and their covers, but if everyone who says this or nods their head really means it, a social revolution must now be taking place. Not that people will stop judging by appearances, just that we'll start acting on the obvious premise that it's not just very young and pretty people who have talents in the performing arts. We don't enjoy music with our eyes.

But in order to do this, we have to realise that the surprise isn't the point. The point is that there ought not to have been any surprise. Susan Boyle's novelty is her great singing voice, not her talent in contrast to our expectations of her.

Incidentally, the article that amused me most about Susan Boyle, mostly on the grounds of its title (although it's analysis is reasonably sound) is Susan Boyle: The New Face - and Voice! - of the "Spinster Cat Lady". I'm just wondering who the old face of the Spinster Cat Lady was...

Monday, April 13, 2009

Blogging Against Disablism Day will be on 1st May, 2009

Blogging Against Disablism Day 2008 is now underway. Please click here to read the contributions or register your own.


Blogging Against Disablism Day, May 1st 2009Blogging Against Disablism day will be on Friday, 1st May. This is the day where all around the world, disabled and non-disabled people will blog about their experiences, observations and thoughts about disability discrimination. In this way, we hope to raise awareness of inequality, promote equality and celebrate the progress we've made.

How to take part.

1. Post a comment below to say you intend to join in. I will then add you to the list of participants on the sidebar of this blog. Everyone is welcome.

2. Spread the word by linking to this site, displaying our banner and/ or telling everyone about it. The entire success of Blogging Against Disablism Day depends entirely on bloggers telling other bloggers and readers in advance.

3. Write a post on the subject of disability discrimination, disablism or ableism and publish it on May 1st - or as close as you are able. Podcasts, videocasts and on-line art are also welcome. You can cover any subject, specific or general, personal, social or political. In the previous three BADD, folks have written about all manner of subjects, from discrimination in education and employment, through health care, parenting, family life and relationships, as well as the interaction of disablism with racism and sexism. Every year I have been asked, so it's worth saying; the discrimination experienced by people with mental ill health is disablism, so naturally such posts are welcome too.

You can see the archives for previous years here: 2006, 2007, 2008.

Blogging Against Disablism Day is not a carnival of previously published material. The point about doing this around one day is that it is a communal effort and all the posts connect to one another. You can of course use your own post to promote other things you've written as you wish.

4. Come back here to Diary of a Goldfish on the day to let everyone know that you've posted and to check out what other people have written. I shall post links to everyone's posts throughout the day, creating an archive. However, I do need you to comment and leave the URL of your post or else I shan't find your post and won't be able to link to it.


Accessibility

Naturally, Blogging Against Disablism Day invites contributions from people with all variety of impairments and none at all. You are welcome to contribute with podcasts, video-blogging or anything else that allows you to take part. And whilst May 1st is when this all takes place, nobody who happens to have a bad day that Friday is going to be left out of the archive.

If anyone has any questions about web accessibility, JackP has suggested checking out the Accessify Forum.

I am not an expert on web accessibility myself, so if there are any suggestions about how I can make this day more accessible, please e-mail me at diaryofagoldfish at googlemail.com


The Linguistic Amnesty

Whilst discussions about language and the way it can be used to oppress or empower us are more than welcome, please respect the language that people, particularly to describe themselves in their own contributions. We all have personal preferences, there are cultural variations and different political positions which affect the language we use. Meanwhile, non-disabled contributors can become nervous about using the most appropriate language to use, so please cut everyone as much slack as possible on the day.

At the same time, do not feel you have to use the same language that I do, even to talk about "disablism". If you prefer to blog against disability discrimination, ableism or blog for disability equality, then feel free to do so.

Last year I wrote a basic guide to the Language of Disability which I hope might explain some of the thinking behind the different language disabled people prefer to use about themselves.


Links & Banners


To link back to this post, simply copy and paste the following code:


These banners have seemed popular over the last couple of years and I can't think of anything better. If anyone fancies editing these images or coming up with something new, then please do so. You are free to use these as you like, so long as you use them in support of Blogging Against Disablism Day. If you already have the banner, you just need to change the URL that it links to from last year's BADD. Otherwise, you simply need to copy the contents of one of these boxes and paste it on your blog, in a post or on the sidebar as you like. The banners come in two colour combinations and two sizes. The sizes are a 206 pixels square or 150 x 200 pixels.

Blogging Against Disablism Day, May 1st 2009This is the black and white banner which reads "Blogging Against Disablism". Here's the code for the square one:



And here's the code for the narrower one (which can be seen here):




Blogging Against Disablism Day, May 1st 2009This is the colourful banner which reads "Blogging Against Disablism". This is the code for the square one:



And here's the code for the narrower one (which can be seen here):




Please leave a (comment including the URL of your blog) to let everyone know you are joining in and I shall add a link to you on the sidebar. Also, if you have any questions, please ask.

Tuesday, April 07, 2009

How to be a Disabled Villain

In the wake of a global economic downturn and mass unemployment, disabled people find themselves among the most vulnerable people in the jobs market, just at a time when welfare reforms place increasing pressure on us all to find work. Some of us have to consider branching out in ways that others may not thoroughly approve of. I know I've written before about my ample qualifications as a Bond Villain, but this subject has been bugging me lately, plus Yanub's Disability Blog Carnival is on the related subject Action Heroes - if I can get this posted in time.

The latest offense was in an otherwise benign youngsters' movie called The City of Ember where we meet a sinister character played by Mackenzie Crook (the one from The Office who was then in Pirates of the Carribbean). Now Crook does a decent sinister, he was made up with a very pale face and lank hair and in any case we knew from his actions that this character was not to be trusted long before - as in half an hour before - attention was drawn to his limping gait and built-up shoe.

There are so many disabled villains in movies that you almost don't notice – just as you almost don't notice the number of English accents among the fictional villain community. But the Englishness thing is okay; it's always an upper middle-class English accent which suggests sophistication as well as cunning and a cold heart. The disability thing is all about wrongness. This character is wrong whilst the uniformly perfect and pretty heroes and heroines are right, and if you couldn't work that out from what is being said and done (which you really ought to have), here's a big visual clue.

And of course the biggest objection, the massive great problem with disabled villains is that these are almost the only disabled characters in mainstream movies. It's okay to have black villains - well, Samuel L. Jackson, who seems to play all of them - because there are a handful of black heroes and side-kicks. But disabled folk are still either completely absent or rotten to the core.

So anyway, some say that we're going through a period of history when people are hungry for heroes, beacons of virtue and courage in a world that has been so damaged by greed and hate. However, there can't be any meaningful heroism if as disabled people, we don't hobble up to the plate and embrace the role the fates assigned to us. Plus the pay is good. So here are

Some Dos and Don'ts of Disabled Villainy

Do be eccentric. The great advantage of being disabled is that one has to think outside the box in so many aspects of one's life that one is already ideally suited to a novel career like supervillainy. One must fully embrace one's deviation. Consider Darth Vadar; the fetish had always been there, but only after he became disabled did he acquire the confidence to wear that gear in public. They say if you can't beat them, join them. I say if you can't join them, fire lasers as them.

Don't be bitter. There's a fine line between the misanthropy necessary for taking over the world by violent means and bitterness. Bitterness is ugly, it suggests a longing for the love and acceptance of a world that denies us access to public transport. Like Mrs Clennam in Little Dorrit - uh, maybe that's a little too classical a reference, but she was a rare example of a female disabled villain. Not a very good one though, as she used a wheelchair and in her bitterness chose to live upstairs in a structurally unsound to say nothing of DDA non-compliant building.

Do be charming. Whatever harm you wish to exact on the world, it still pays to be friendly. Think of Leigh Teabing in The Da Vinci Code (another English villain, as you could tell by the tea in his surname – it's all about the symbolism). He was such a pleasant and sophisticated gent, his English accent and post-polio syndrome were the only clues to his being a crook. Whereas the morbid Silas, with his magical albinism, well he was just a kinky fanatic with no charm to him whatsoever. Except in the movie he was played by Paul Bettany who is dreamy.

Don't be socially inept
. People with impairments which can effect social skills are by no means barred from a career in villainy - in fact, as people with autism and mental illness are overrepresented in the ranks of geniuses, we must presume that a number are evil geniuses. Yet in order to make good in badness, one has to at least maintain a basic level of personal hygiene and social propriety. Living on a diet of raw fish (like the Penguin) and having a totally inappropriate sense of humour (like the Joker) may be a step too far.

Do have the funky tech. Villains and especially supervillains tend to have money and technology on their side, so one must have the most state-of-the-art prosthetics, wheelchairs, canes and so on. I'm sure the guy who made a USB-compatible prosthetic finger has since moved into his own underground lair. Dr. Loveless in Wild Wild West also had the right idea; the movie was set during the American Civil War and yet the guy had a steam-powered wheelchair. Which was the best thing about that movie, apart from the eye candy (Will Smith and Salma Hayek - I know both can act, but in that one they just looked pretty).

Don't fake it.
Villains pretending to be disabled just gives the rest of us a bad name. Simon Grueber, the Jeremy Irons character in Die Hard with Avengence has a profound stammer which, considering the amount of talking the character does under considerable pressure isn't at all convincing. And Verbal Kint (Kevin Spacey) in The Usual Suspects had Cerebral Palsy except... well, you know if you saw the movie, which you really should have by now. Clearly, both characters were putting it on for the parking spaces.

Do nurture the young
. Was Long John Silver the best disabled fictional character of all time? Probably. On which subject,
Don't attempt to murder children or you might get eaten by a crocodile.

Do dress your wounds properly
. Everyone knows that one of the most dangerous aspects of a severe burn is infection, but for some reason Hollywood villains leave these things completely exposed to the elements. Recent examples include the Afghani warlord in Iron Man and the character of Arthur Dent who I guess had become "Two-Face" by the end of The Dark Knight. It doesn't matter that they're out of comic books, it's just not hygienic.

And finally, perhaps most crucially

Do get away with it. Most supervillains, despite usually being much much smarter than their goody-goody adversaries, are ultimately defeated. One has responsibility to avoid this at all costs, not only to oneself, but to all disabled people who aspire to be bad. Think Mr Potts in It's a Wonderful Life. Nobody liked him, his actions drove a good man to attempt suicide, but hey, that guy didn't claim a penny in disability benefits his whole life. Now that's a role model.


( Yes, I am terribly ashamed of having watched, let alone remembered watching, some of the above movies. And once I've posted this, I shall think of a great number of far better and more respectable examples. Or perhaps you can. )