Excellent news in the fight against SMA!

Families of SMA and Nationwide Children's hospital have agreed to a 3-year cooperative agreement in the amount of $3,752,462 to help further fund pre-clinical drug development of Dr. Brian Kaspar's Gene Therapy program. 

Press Release from Families of SMA:

http://www.fsma.org/LatestNews/index.cfm?ID=7638&TYPE=1150

If you would like to make a personal contribution towards Dr. Kaspar's Gene Therapy program you may do so through Sophia's Cure Foundation.  Thank you as always for your continued love & support of Avery and all of her SMA friends & their families.

Pictured (from left to right) at Dr. Kaspar's labs in Nationwide Children's Hospital: Avery's friend/donor, Avery's Dad & Mom, Dr. Brian Kaspar, & Sophia's Dad (Vincent Gaynor). 

Please continue to share Avery's story by updating your social networks, e-mailing all of your
contacts, and talking to your friends/co-workers.   The more people who are aware of SMA, the less likely future children will be affected by SMA, and the more likely there will be a cure for Avery's friends who already have SMA! 

http://www.facebook.com/AverysBucketList

https://twitter.com/#!/AveryBucketList

Help Families of SMA

Please continue to share Avery's story by updating your social networks, e-mailing all of your contacts, and talking to your friends/co-workers.   The more people who are aware of SMA, the less likely future children will be affected by SMA, and the more likely there will be a cure for Avery's friends who already have SMA! 

After Avery's diagnosis, Families of SMA sent her a care package that included many amazing things to help us get Avery around comfortably and keep her entertained. Items from FSMA pictured w/Avery include her radio flyer wagon which allowed her to breathe comfortably while we took her on walks, a lightweight cat ball which unlike other toys, Avery was able to grip and lift, and her pinwheel which she wouldn't take her eyes off of. 
You can help Families of SMA (Florida chapter) by buying this $10 Groupon:

http://www.groupon.com/deals/greater-florida-chapter-of-families-of-spinal-muscular-atrophy

For every 30 donations, two newly diagnosed families will receive extremely helpful care packages. 

Thank you as always for your continued love & support of Avery and all of her friends with SMA.

 Don't forget to share Avery's story by following & forwarding her blog, following her on Twitter (AveryBucketList) and Like her on Facebook (Averys Bucket List)!  The more people who are aware of SMA, the less likely future children will be affected by SMA, and the more likely there will be a cure for Avery's friends who already have SMA!

http://www.facebook.com/AverysBucketList

https://twitter.com/#!/AveryBucketList