Well my latest update is a new picture of the family.  Oh my how we have changed and grown.  Thanks to Angalee, of Wink*Flash photography for helping us look good.

Oh my it has been too long.  So many things have happened since I last thought to post.  Arianna celebrated her 7th birthday, the years are just flying by.  She is still doing wonderful, her health has been great.  She did however just recently break her left tib and fib, we are not sure how, she does have low bone density.  The cast will come off on the 21st, counting down the days!  School will start again soon, but not soon enough for her, she is bored with mommy.

So here is my big girl, in her new wheelchair with a matching pink cast. Not to happy about it!

Big news.  Our friends from Uruguay are traveling here to Utah for some medical care they can't get for the son there.  Thiago also has Trisomy 13.  There is only one other case of  T13 in the country, and they just don't put much hope in these kids surviving so they don't help them.  I just can't wait to meet them face to face, the online friendship is just not enough anymore!

I know there is so much more to share, but the kids need my attention now.  At least I got a little update!

How proud I am!

Yesterday my wonderful and sweet Kenna donated 8 inches of her hair.  A local salon gave you a free cut and Disney gave you tickets to the Dare to Dream Ice show.  We happened to arrive just before a news crew and the taped Kenna's cut.  Here is the news spot.

http://www.ksl.com/index.php?sid=24187893&nid=148&title=disney-prompts-slc-residents-to-donate-hair-to-children-with-hair-loss&fm=home_page&s_cid=queue-2#ooid=lreWlsOTrMQ0sljkIn_duDEgB10LazR2

We also received a special invite to meet and greet the Disney cast prior to the ice show, this is only for those that donated hair.  We will have such a fun girls night out!

Warning for my friends that use suction.

I have had issues with our suction, and without this friend and her investigation skills I would not have know where to turn, please read this post.

I am so glad I have a mommy support network to rely on!

9 months and growing

Well my little boy is growing up fast.  He is now 9 months old.  He keeps me very busy. He is crawling everywhere, has been for 3 months now. He loves to help pull the clean laundry out of the baskets , chase the dog, and play in the dogs water dish. He is such a joy to have.  But he is also the reason I don't post much anymore, little time for myself as it is. 
The girls are keeping me very busy too.  Arianna loves her new school, she has a great new aide, Anna, who speaks to her in Spanish, Arna loves it and laughs!  She gets to swim every Friday, loves the water!
Kenna is loving the 3rd grade, she is a smart kid and does well in all her subjects.  I will try to keep up better, but they may not happen with all the holiday busy stuff going on.

'Family'

This is the Three Amigos, Ashton 13 (FT18), Arianna 6 (FT13), and Aaron 2 (FT18). Dr John Carey, and of course  the mommies of these amazing miracles. 

Last night was the annual Utah SOFT bbq.  We spent time talking and enjoying these kiddos.  We also talked about the sweet angels that came ans touched all our lives so briefly.  I love my SOFT family, love that we can help each other find love and healing.  Sad that this only happens once a year.

photo courtesy of the Peterson family.

Enough already

This mommy has shingles.  I really could do without one more health issue on my plate.  I just hope and pray that Ossie does not get sick with chicken pox because of my virus.  I am on an antiviral med and a topical cream to help heal the lesions on my back, but there is not much I can do for the pain, just try to keep pushing through my day.
Keep this little family in your prayers please!