Jan 6, 2025 · Dysautonomia is incurable and untreatable, all one can expect is to have some of the symptoms treated, not the cause. I have been through over 30 different medications unsuccessfully and countless tests and investigations and been diagnosed as Dysauntonomia, in particular Autonomic polyneuropathy.

Nov 12, 2021 · In patients with dysautonomia, the normal reflexes of the ANS are thrown off balance. The most common form of dysautonomia is called “orthostatic intolerance”, in which patients have difficulty tolerating the upright position. Common symptoms are dizziness, palpitations and exercise intolerance.

May 5, 2016 · My son, daughter, and I all suffer from dysautonomia, and all of our symptoms are quite different. I was surprised to discover we all had the same underlying disorder. Clearly genetic in our case, but I have done lots and lots of research, and it seems that dysautonomia manifests differently in each person affected.

Feb 21, 2023 · After finally getting a copy of The Dysautonomia Project, reading it a few times, underlining certain sentences (sipping water constantly, unable to stand for 30 minutes, dreading things like shopping, heart rate 120’s) I had to admit how much my life has and is slowly changing, so slowly at times that I don’t really notice it while it’s ...

Jan 12, 2025 · I have lost control of my digestive system from mouth to the other end including bladder. My BP is uncontrollable despite being medicated. I understand what Dysautonomia can do but haven't found any information to the random symptoms I get which constantly change all the time, other than random symptoms can be part of dysautonomia.

Apr 15, 2022 · Curious I have recently received a POTs diagnosis along with long COVID and other dysautonomia. I am working on getting into physical therapy, but until then what is recommended for the 45 min of aerobic activity 5 days a week?

Sep 20, 2021 · Ok. Thank you. I guess I'm still confused with peripheral neuropathies and if it has anything to do with what some doctors think I may have which is an autonomic nervous system malfunction but when I look that up it automatically points to dysautonomia yet I don't fit into any of the 15 categories.

Mar 11, 2022 · Authors in Nature Genetics identified (Elevated basal serum tryptase identifies a multisystem disorder associated with increased TPSAB1 copy number) families with an elevated baseline serum tryptase, which was associated with the triad of dysautonomia, MCAD and joint hypermobility. The observations from these papers show increasing evidence ...

Aug 26, 2022 · I had full dysautonomia tests which was "abnormal" but then they said they can't really tell anything because there are no reference values for people my age! (So why test?) I think I will wait to talk with my PCP who really listens, can get something done, and whom I trust. She doesn't dismiss me like the electrophysiologist seems to.

Sep 11, 2021 · I have an ILR, paroxysmal AFib, tachy-brady, labile hypertension which is quite stable in a healthy range, lightheaded most of the time, dizzy with BP drops, some other dysautonomia symptoms, and 3 autoimmune things. Taking 12.5 mg metoprolol. More sends HR into 40's, 50's otherwise. I exercise at least 6 days/week, mostly swim so I can't fall.